Asbestos Disease Awareness Organization

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Asbestos Disease Awareness Organization[1] (ADAO) is an independent organization headquartered in Redondo Beach, California. Founded by Linda Reinstein[2] and Doug Larkin on April 1, 2004, The Asbestos Disease Awareness Organization (ADAO) is the largest independent asbestos victims’ organization in the U.S. Since 2004, ADAO has been dedicated to preventing consumer, environmental and occupational asbestos-caused diseases through national and international education, advocacy, and community initiatives. ADAO has also worked to have products that contain asbestos properly regulated, including children's toys that have included asbestos without warnings in recent year such as a "CSI" fingerprint toy kit containing asbestos powder.[3]

ADAO and Ms. Reinstein are regularly invited to give presentations at international scientific and medical symposia. Invited appearances on behalf of ADAO include testimony before the U.S. Senate in January, 2012,[4] the Senate Committee on Environment and Public Works in 2007,[5] a presentation at the Mesothelioma Applied Research Foundation ("MARF") [6] in Washington, D.C., U.S. Occupational Health and Safety Administration hearings in 2010 [7] and an appearance at TEDx in Manhattan Beach, California.[8] On behalf of ADAO, Linda Reinstein has presented in India, Japan, France, Great Britain, Brazil and other countries to protect public health.

Mission[edit]

ADAO’s goals include the following:

  • Education. Educate the public and medical community about asbestos-related diseases and preventing asbestos exposure. Support research that leads to early detection, prevention and a cure.
  • Advocacy. Collaborate with organizations around the world for a global asbestos ban. Raise awareness that asbestos is still legal and lethal in the U.S.
  • Community. Unite asbestos victims to Share Their Stories, learn about treatment options, and support each other.

ADAO has stated repeatedly and publicly that it will not be influenced by outside sources such as drug companies, law firms or companies that manufacture or use asbestos.

== Annual International Asbestos Awareness Conferences ==

Along with the Barbara Ann Karmanos Cancer Institute located in Detroit, Michigan, ADAO annually hosts the Asbestos Awareness Conference (AAC). The AAC is an international medical conference where medical researchers, international NGO participants and persons with asbestos diseases can meet, interact and learn the latest in medical, scientific and regulatory developments. The first conference was held in 2005. At the Sixth Annual AAC, U.S. Senator and then Assistant Majority Leader Dick Durbin and Jordan Barab, US Occupational Safety and Health Administration Deputy Director spoke at the 6th Annual Asbestos Awareness Conference in Chicago, Illinois.

2013 AAC Program[edit]

The 9th Annual Asbestos Awareness Conference[9] will be held in the Washington, D.C. area on March 22–24, 2013.

2013 ADAO Asbestos Awareness Conference Session Speakers

  • Brad Black, MD
  • Karen Banton, Widow of Bernie Banton and CEO of the Bernie Banton Foundation
  • Jill Cagle, Mesothelioma Widow
  • Barry Castleman, ScD
  • Cathy Conrad, PhD
  • Paul Demers, PhD
  • Eleanor B. Ericson, RN, BSN, CCRN
  • Sean Fitzgerald, PG, Scientific Analytical Institute
  • Arthur Frank, MD, PhD
  • Fernanda Giannasi, ABREA
  • Lisa Hyde-Barrett, RN
  • Meagan Jensen, Student
  • Brent Kynoch, Environmental Information Association
  • Tom Laubenthal, Environmental Institute
  • Richard Lemen, PhD, MSPH
  • Charles Levenstein, PhD, MSOH
  • Barbara Minty McQueen, Author, Photographer, and Widow of Film Star Steve McQueen
  • Captain Aubrey K. Miller, M.D., M.P.H., Senior Medical Advisor, Office of the Director, National Institute of Environmental Health Sciences (NIEHS), National Institutes of Health (NIH)
  • James Millette, PhD
  • Celeste Monforton, DrPH, MPH
  • Elizabeth Ness, RN, MSN
  • Mavis Nye, Mesothelioma Patient
  • Christine Oliver, MD, MPH, MS, FACPM
  • Emily Reinstein, Student
  • Linda Reinstein, ADAO
  • Tony Rich, Industrial Hygienist
  • Kristin Samuelson, Student
  • John Thayer, Former AOC Supervisor
  • Heather Von St. James, Mesothelioma Patient
  • Laura Welch, MD
  • Christine Winter, Independent Asbestos Training Providers
  • Jordan Zevon, ADAO National Spokesperson & Musician

2012 AAC Highlights[edit]

On March 29-April 1, 2012, the ADAO hosted the 8th Annual Asbestos Awareness Conference in Redondo Beach, California. The conference was entitled "Asbestos: An International Public Health Crisis." Featured speakers included Dr. Frank, Dr. Black, Barry Castleman, Matthew Peacock (Journalist with the Australian Broadcasting Corporation and author), Jordan Zevon and Barbara Minty McQueen among others.

2012 ADAO Asbestos Awareness Conference Session Speakers

  • Debbie Brewer, Mesothelioma Patient
  • Niccolò Bruna, Director of “Dust: The Great Asbestos Trial”
  • Barry Castleman, ScD
  • Stacy Cattran, ADAO Volunteer
  • Larry Davis, Mesothelioma Patient
  • Siobhan Doherty, NATAS
  • Alec Farquhar, Occupational Health Clinics for Ontario Workers (OHCOW)
  • Arthur Frank, PhD, MD, Drexel University School of Public Health
  • Fernanda Giannasi, ABREA
  • Mitch Golant, PhD, CSC
  • Rich Haffey, Mystic Air Quality Consultants
  • Michael Harbut, MD, MPH, FCCP
  • Eric Jonckheere, ABEVA
  • Sandy Kinart, Victims of Chemical Valley, OHCOW
  • Brent Kynoch, Environmental Information Association
  • Richard Lemen, PhD, MSPH
  • Barbara McQueen, (KEYNOTE SPEAKER)
  • Celeste Monforton, DrPH, MPH
  • Leah Nielsen, ADAO Volunteer
  • Andy Oberta, MPH, CIH, The Environmental Consultancy
  • Joao Carlos Duarte Paes, ABIFibro
  • Matt Peacock, Reporter, Australian Broadcasting Corporation (KEYNOTE SPEAKER)
  • Bruno Pesce, AFeVA
  • Nicola Pondrano, AFeVA
  • Linda Reinstein, ADAO
  • Tony Rich, Industrial Hygienist
  • Ann Samuelson, ADAO Volunteer
  • Sari Sairanen, Canadian Auto Workers’ (CAW)
  • Joel Shufro, New York Coalition for Occupational Safety and Health (NYCOSH)
  • Dan Sterman, MD, University of Pennsylvania
  • Christine Winter, Independent Asbestos Training Providers
  • Jordan Zevon, ADAO National Spokesperson and Musician
  • Paul Zygielbaum, Mesothelioma Patient


2011 AAC Highlights[edit]

In April 2011, speakers at the 7th Annual Asbestos Awareness Conference in Atlanta, Georgia included politicians such as U.S. Senator Max Baucus and scientists, community activists and persons suffering from asbestos diseases.

2011 ADAO Asbestos Awareness Conference Session Speakers

  • Brad Black, MD, Center for Asbestos Related Disease in Libby, Montana(CARD)
  • Barry Castleman, ScD and Author
  • Billy Ray Cyrus performer and son of Ron Cyrus, Mesothelioma Patient
  • Sean Fitzgerald, PG
  • Raja Flores, MD, Chief of Thoracic Surgery, Mount Sinai Hospital, New York
  • Arthur Frank, MD, PhD Chair, Department of Environmental and Occupational Health, Drexel University School of Public Health and ADAO Science Advisory Board Co-Chair
  • Sugio Furuya, Asian Ban Asbestos Network – Japan[10]
  • Fernanda Giannasi, Associação Brasileira dos Expostos ao Amianto (ABREA)
  • Julie Gundlach, Mesothelioma Patient
  • Michael Harbut, MD, MPH, FCCP, Barbara Ann Karmanos Cancer InstituteBarbara Ann Karmanos Cancer Institute
  • Tanis Hernandez, LCSW, Center for Asbestos Related Disease (CARD)
  • Brent Kynoch, Environmental Information Association
  • Richard Lemen, PhD, MSPH, Assistant Surgeon General, United States Public Health Service (USPHS) (Ret.), ADAO Science Advisory Board Co-Chair
  • Guadalupe Aguilar Madrid, MD, MSc, PhD
  • Aubrey Miller, MD, MPH, NIH/National Institute of Environmental Health Sciences
  • Celeste Monforton, MPH, DrPH
  • Kristen Olson, Mesothelioma Family Member
  • Joachim Rösler, MPH, Facharzt für Arbeitsmedizin, Sozialmediziner
  • Kimberly Rowse, RN, Center for Asbestos Related Disease (CARD)
  • Kathleen Ruff, Right on Canada
  • Kim (Olson) Sebesta, mesothelioma family member
  • Jordan Summers, musician
  • Heather Von St James, mesothelioma patient
  • James S. Webber, PhD
  • Jordan Zevon, ADAO National Spokesperson and Musician (and son of Warren Zevon)
  • Paul Zygielbaum, mesothelioma patient

Other events and programs[edit]

ADAO annually hosts "Asbestos Awareness Week" from April 1 - 7. In 2011 and 2012, this week was honored by the U.S. [Senate] with an official proclamation of this week through a Senate Resolution.[11]

In 2011, ADAO created a Public Service Announcement that is now posted on YouTube to promote knowledge of the fact that asbestos is not banned in many countries world-wide, despite common perceptions otherwise.

See also[edit]

References[edit]

External links[edit]