Cardiac Risk in the Young
Cardiac Risk in the Young (CRY) is a humanitarian charitable organization helping to raise awareness of cardiac risk, Sudden Cardiac Death (SCD), Sudden Death Syndrome (SDS, SADS). Established in May 1995 by Alison Cox (MBE) and based in the United Kingdom. The former tennis player Mark Cox is one of its patrons. [1]
The organisation initially promotes the heart screening of young people through ECG Testing Programmes and contributes to medical research. CRY holds ECG screening clinics for those aged 14 to 35 at three locations in the UK. The charity also offers support to those who have suffered a loss through a network of affected families & counselling groups, heart screening, ECG testing, sponsors medical research, donates medical equipment to surgeries and hospitals, funds the CRY Centre for Sports Cardiology at the Olympic Medical Instituteand the CRY Centre for Cardiac Pathology.
Some of the CRY's programmes, mainly the counselling programme, are financed by a grant from the Department of Health.
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[edit] Objectives
- To emphasise the considerable amount that can be done if the condition is diagnosed.
- To support medical research into Sudden Death Syndrome.
- To offer counsel and support to families affected.
- To highlight the symptoms.
- To put in place a national testing programme.
[edit] CRY can provide information on
- Hypertrophic Cardiomyopathy (HCM)
- Arrhythmogenic right ventricular dysplasia (ARVC)
- Dilated Cardiomyopathy (DCM)
- Restrictive cardiomyopathy (RCM)
- Myocarditis
- Coronary Artery Disease (CAD)
- Ion Channelopathies - Long QT syndrome (inc. Jervell and Lange-Nielsen syndrome & Romano-Ward syndrome), Brugada, Lev-Lenegre's Syndrome)
- Wolff-Parkinson-White syndrome (WPW)
- Coronary artery anomaly (CAAs)
- Marfan Syndrome
- Other cardiac conditions - Endocardial fibroelastosis (EFE), Tachycardia, Antibiotic Prophylaxis, Churg-Strauss Syndrome, Right bundle branch block (RBBB), Kawasaki Disease
[edit] Postcard Campaigns
On the 15th July 2004 CRY launched its National Postcard Campaign[2] to highlight the deaths of eight young people per week from undiagnosed heart problems by featuring their pictures. The campaign was launched at a Parliamentary Reception in Westminster. From August 2004 the Postcard has been re-launched as region specific including South West, North East, South, North West, Scotland and Wales versions. In February 2009 the postcard campaign was updated to "12 a week"[3] and continues to draw attention the number of young people with undetected heart conditions.
[edit] Patrons
- Sir Ian Botham OBE - Former England Cricketer and Honorary President of CRY
- Rob Andrew MBE - Former England Rugby Union International. RFU Director of Elite Rugby
- Jeremy Bates - Former British Tennis Player
- Mark Cox MBE - Former British Tennis Player
- Nick Easter - Harlequins and England Rugby Player
- Nick Gillingham MBE - Former British Swimmer
- James Cracknell OBE - Former British Rower. Winner of 2 Olympic gold medals
- Ben Brown - BBC Journalist
- Simon Halliday - Former England Rugby Union International
- Kathryn Harries - Opera Singer - Soprano
- John Inverdale - BBC Sports Presenter and Journalist
- Robert Jones MBE - Former Wales Rugby Union International
- Emily Maitlis - BBC News Presenter
- Professor William McKenna - Professor of Cardiology
- Sir Steven Redgrave CBE - Former British Rower. Winner of 5 Olympic gold medals
- Andy Scott - Former professional footballer. Manager of Brentford FC
- Roger Taylor MBE - Former British Tennis Player
- Professor Gaetano Thien - Professor of Cardiology
- Gregor Townsend MBE - Former Scotland Rugby Union International
- Professor G Michael Vincent - Founder of SADS Foundation, USA
- David Walliams - Comedy actor and TV personality
- Ray Wilkins MBE - Former England International footballer
- Sir Clive Woodward OBE - World Cup winning England Rugby Union Coach. Director of Elite Performance for the BOA
- Pixie Lott - Singer-Songwriter and Actress
[edit] Northern Ireland Patrons
- Mark Carruthers | - BBC News Presenter
- Michael Hoey - Professional Golfer
- Gary Longwell - Former Ireland Rugby Union International Player
- Jonny Evans - Manchester United and Northern Ireland Footballer
- Pat Jennings OBE KSG - Former Northern Ireland Goalkeeper
- Graeme McDowell MBE - Professional Golfer US Open Winner and Ryder Cup Player
[edit] References
[edit] External links
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