Leukaemia & Lymphoma Research

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Leukaemia & Lymphoma Research (previously Leukaemia Research Fund) is the one of many charities in the UK exclusively dedicated to funding research into all blood cancers including leukaemia, lymphoma and myeloma.

Leukaemia & Lymphoma Research’s vision is to beat blood cancers. They invest money into blood cancer research throughout the UK to ensure that all patients have their disease diagnosed early and accurately, receive personal, targeted treatments which are effective and have minimal side effects in order to beat or manage their cancer.

History[edit]

Leukaemia & Lymphoma Research was originally set up in 1960 as the Leukaemia Research Fund. The charity was started by the Eastwood family from Middlesbrough who began raising money following the death of their 6-year-old daughter Susan.[1]

Since its foundation in 1960, Leukaemia & Lymphoma Research has invested in a number of different research projects which have helped improve understanding, diagnosis and treatment of blood cancers.

In 1960 children diagnosed with leukaemia had a very poor chance of survival and Susan’s parents were determined to make something positive come from their personal tragedy, so they started fundraising for research that would find a cure for leukaemia. Since then the charity has expanded to include over 150 branches. The research funded by the charity has enabled more people than ever before to survive blood cancer. The survival rate for the most common form of childhood leukaemia has increased to over 90%, and for adults the survival rate is now as high as 70-80% for some forms of blood cancer. Research

In the financial year 2010/2011 the charity reported a 15% increase in voluntary income and a 30% increase in investment in new research commitments compared with the previous year. The charity raised a total of £20m in the year (2010: £19m) and was able to spend £24m (2010: £18m) on charitable activities.[2]

In 2011 the charity launched a Trials Acceleration Programme (TAP) to enable quicker and greater access to new treatments which has subsequently received government recognition as a model of good practice.[3] This programme aims to make the process of clinical trials quicker and easier within the UK. TAP links 13 treatment centres around the UK coordinated by a central hub in Birmingham to set up more clinical trials in blood cancer. TAP breaks down the barriers that exist in the UK in getting new treatments to blood cancer patients when they most need them.[4]

A recent genetic study by a group of Newcastle University scientists published in the Journal of Clinical Oncology found that another research project funded by Leukaemia & Lymphoma Research had reduced chances of a rare subtype of childhood leukaemia returning by 75%. The charity currently commits more than £20 million per year into its research. In its most recent funding round in March 2013 the charity awarded £14.4 million to 26 different projects[5] including a grant to research project being led by Professor John Lunec at Newcastle University which will use DNA sequencing technology to spot genetic mistakes underlying faulty ‘p53’ proteins.[6]

Activities[edit]

The charity receives no government funding and is entirely dependent on voluntary donations from fundraising events or individuals in order to fund its research.

Fundraising Events The charity holds a number of fundraising events throughout the year including several shows at the Royal Albert Hall and sports events such as The London Bikeathon, which is the largest independently organised bikeathon in the capital.[7]

Sports Events Supporters of the charity take part in a number of sporting events throughout the year. The events include running, cycling, swimming, triathlons and challenges. Their bright iconic t-shirts can often be seen at events up and down the country, as many supporters take part throughout the year as part of the charity’s sports team “The Unstoppables”.[8]

Information Services[edit]

Leukaemia & Lymphoma Research also write and publish patient information booklets which provide information on a wide range of subjects including blood cancers and related disorders, clinical trials and booklets specifically designed for children with blood cancers.[9]

LLR provide information for children, parents and many other people affected by blood cancers as well as detailed information on the various types of leukaemia, lymphoma and myeloma.

Specific sub-sets of leukaemia[10] included are;

Specific sub-sets of lymphoma[16] included are;

Specific sub-sets of myeloma included are;

Other blood disorder information;[20]

Celebrity supporters[edit]

The charity has a number of celebrity supporters, including Alastair Campbell who is currently their Chairman of Fundraising, their patron the Duke of Kent, Sir Ian Botham who is the president of the charity and the Calendar Girls who have raised over £3million with their story since 1999.[23]

External links[edit]

References[edit]

  1. ^ http://www.beatbloodcancers.org/ourstory
  2. ^ http://leukaemialymphomaresearch.org.uk/about-us/nitty-gritty-financials
  3. ^ http://www.bis.gov.uk/assets/biscore/innovation/docs/s/12-1346-strategy-for-uk-life-sciences-one-year-on.pdf
  4. ^ http://leukaemialymphomaresearch.org.uk/research/clinical-trials/trials-acceleration-programme
  5. ^ http://jco.ascopubs.org/content/early/2013/08/12/JCO.2013.48.9377.abstract
  6. ^ http://leukaemialymphomaresearch.org.uk/sites/default/files/march_2013_file.pdf
  7. ^ http://leukaemialymphomaresearch.org.uk/get-involved/sports-challenges/cycling/london-bikeathon
  8. ^ http://leukaemialymphomaresearch.org.uk/get-involved
  9. ^ http://leukaemialymphomaresearch.org.uk/information
  10. ^ http://leukaemialymphomaresearch.org.uk/information/leukaemia
  11. ^ https://leukaemialymphomaresearch.org.uk/information/leukaemia/acute-lymphoblastic-leukaemia-all
  12. ^ https://leukaemialymphomaresearch.org.uk/information/leukaemia/acute-myeloid-leukaemia-aml
  13. ^ https://leukaemialymphomaresearch.org.uk/information/leukaemia/hairy-cell-leukaemia-hcl
  14. ^ https://leukaemialymphomaresearch.org.uk/information/leukaemia/chronic-lymphocytic-leukaemia
  15. ^ http://leukaemialymphomaresearch.org.uk/information/childhood-leukaemia
  16. ^ http://leukaemialymphomaresearch.org.uk/patient-information/lymphoma
  17. ^ https://leukaemialymphomaresearch.org.uk/information/lymphoma/hodgkin-lymphoma
  18. ^ https://leukaemialymphomaresearch.org.uk/information/lymphoma/non-hodgkin-lymphoma
  19. ^ https://leukaemialymphomaresearch.org.uk/information/lymphoma/hodgkin-lymphoma
  20. ^ http://leukaemialymphomaresearch.org.uk/information/other-blood-disorders
  21. ^ https://leukaemialymphomaresearch.org.uk/information/other-blood-cancers/myelodysplastic-syndromes-mds
  22. ^ https://leukaemialymphomaresearch.org.uk/information/other-blood-cancers/myeloproliferative-neoplasms-mpn
  23. ^ http://leukaemialymphomaresearch.org.uk/news/our-celebrity-supporters/calendar-girls