National Brain Tumor Society
|Focus||"A comprehensive resource for brain tumor patients, families, caregivers, researchers, and medical professionals."|
|Method||Research, Support, Resources, and Education.|
The National Brain Tumor Society (NBTS) is the largest non-profit organization dedicated to the brain tumor community in the United States. It was formed in 2008 by the merger of the National Brain Tumor Foundation and the Brain Tumor Society. Both organizations had been formed in the 1980s by parents and other individuals who wanted to increase both research funding and access to resources specific to brain tumors.
NBTS brings together research and public policy to affect change at all levels of the brain tumor research and development system, in order to get new, and better treatments to patients faster. In research, NBTS seeks new therapeutic targets, as well as to improve existing treatments, and encourages research that connects directly to patient care and enhances quality of life for all brain tumor patients. NBTS also provides education and information to help patients, families, and caregivers make informed decisions and develop strong support systems.
National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels.
|This section requires expansion with: give examples of activities of the organisation. (February 2011)|
In 2009, NBTS gave over $3.5 million in grants to fund brain tumor research across North America. Eighty-four percent of NBTS's expended resources support NBTS's program initiatives across the U.S.
- Brain Tumor Walk is a fundraising 5K walk and community day to support brain tumor research and patient services at NBTS. Events are organized by volunteers from the brain tumor community with support from NBTS staff. Brain Tumor Walks are currently held locations across the country (San Francisco, Charlotte, Denver, Portland, San Diego, Boston, Los Angeles, Phoenix, New York City, Long Island, and Dallas-Fort Worth.)
- The Boston Brain Tumor Ride (formerly the Ride for Research), a 10, 25, 40, or 62 mile bicycle ride through in Boston's western suburbs, was started in 1995 by the Corkin family. In 2008 and 2009, the Ride has raised more than $2 million to support the programs of NBTS. The name of the Ride was changed in 2010, the 16th anniversary of the Ride.
- The Race for Hope - DC is held annually in Washington, DC. This is a 5k fundraising walk/run, presented by Cassidy Turley.
- The Race for Hope - PA is held annually in Philadelphia, PA, beginning at the steps of the Philadelphia Museum of Art.
- "National Brain Tumor Society". About Us. Retrieved 2010-03-31.
- "National Brain Tumor Society". National Brain Tumor Society. Retrieved 2010-03-31.
- "Brain Tumor Walk". National Brain Tumor Society.
- "Boston Brain Tumor Ride". National Brain Tumor Society.
- "Race for Hope - DC". National Brain Tumor Society.
- "Race for Hope - PA". National Brain Tumor Society.