Practice-based research network

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A practice-based research network (PBRN) is a group of practices devoted principally to the care of patients and affiliated for the purpose of examining the health care processes that occur in practices. PBRNs are characterized by an organizational framework that transcends a single practice or study. They provide a "laboratory" for studying broad populations of patients and care providers in community-based settings.[1]

Contents

History of Primary Care Research [edit]

Before there were research institutes or networks of practices, there were individual practitioners who studied their patients’ problems with scientific rigor. Among these were five general practitioners who have been recognized for their seminal work during the past 125 years. They are James Mackenzie, Will Pickles, John Fry, F.J.A. Huygen and Curtis G. Hames. Each of these pioneers demonstrated that important new knowledge could be discovered by practicing family physicians. And this is far from an accepted principle in the United States. These doctors all wondered about their patients’ problems and they developed a means of gathering and recording data on their patients.

Each of these research pioneers provide inspiration for the development of practice-based, primary care research networks because each demonstrated that important new knowledge could be discovered by the practicing family doctor. They each wondered about their patients, developed means of gathering and recording data, and found collaborators and support from their staff and local communities. Unfortunately, they practiced in an era that was over-committed to specialism. Research focused on molecular mechanisms of disease. The rush to specialization by the medical community and the linking of research to specialists resulted in decades of neglect of primary care and virtually no recognition of the need to investigate care in the primary care setting. Instead, the common wisdom viewed primary care practices as relatively boring places that could be potential sites of application of the fruits of research done elsewhere in research laboratories, hospitals and institutes.[2]

Among the early regional networks started in the 1970s were the Family Medicine Information System in Colorado (FMIS)[3] and the Cooperative Information Project.[4] These regional networks learned from each other and succeeded in conducting studies focused on what was happening in primary care. They attracted funding from medical schools, national philanthropic foundations and federal programs such as Health for Underserved Rural Areas. As the 1970s closed, these early networks enjoyed sufficient success to stimulate debate about the next steps in the context of the microcomputer’s development. Among them was a small group convened by Gene Farley in Denver in 1978 to consider establishing a national sentinel practice system. It was this idea that lead to the Ambulatory Sentinel Practice Network and provided in retrospect what appears to have been a nidus for the establishment of primary care PBRNs in the United States.

PBRNs are feasible and that represent a useful infrastructure for the scientific discovery of family practice and primary care. Experience to date points out the great advantages enjoyed by those with enduring, core financial support — such as the Dutch with their early national commitment to primary care and their willingness to invest in primary care research. It is also obvious that these networks require collaboration, coop- eration and a spirit of sharing and trust.

These networks are now at once both a place and a concept. As a place, they are a laboratory for surveillance and research. As a concept, they express the still unmet need for practicing primary care clinicians to accept responsibility to improve frontline clinical care by understanding what is happening in their practices. Successes to date have been sufficient to incite the Institute of Medicine’s 1994 committee studying the future of primary care to recommend support to stabilize and expand practice-based primary care research networks.[5]

Practice Based Research Network Links [edit]

North American Primary Care Research Group

Oklahoma Physician Research /Resource Network

Practice Partner Research Network

Agency for Healthcare Research and Quality - PBRN Programs

International Federation of Primary Care Research Networks

National Research Network- American Academy of Family Physicians

Currently Active PBRN [edit]

  1. AAFP NRN- AAFP National Research Network Kansas
  2. AANPNR- American Academy of Nurse Practitioners Network for Research Texas
  3. ACCESSPBRN- ACCESSPBRN Illinois
  4. ACCP PBRN- American College of Clinical Pharmacy Practice-Based Research Network Kansas
  5. ACERN- Ambulatory Care Evaluation and Research Network New York
  6. ACORN- Virginia Ambulatory Care Outcomes Research Network Virginia
  7. ACPNet- ACPNet Pennsylvania
  8. APBRN- Alabama Practice Based Research Network Alabama
  9. APN-ARC- Advanced Practice Nurse-Ambulatory Research Consortium Ohio
  10. ARCHNAP St. Louis Ambulatory Care Research Consortium for Nurses in Advanced Practice Missouri
  11. AT-PBRN- Athletic Training Practice-Based Research Network Arizona
  12. ATSU SOMA PBRN- A.T. Still University School of Osteopathic Medicine in Arizona PBRN Arizona
  13. AppNET- The Appalachian Research Network Tennessee
  14. ArkPBRN- Arkansas Practice Based Research Network Arkansas
  15. BIGHORN- Building Investigative Practices for Better Health Outcomes Colorado
  16. BWPC PBRN- Brigham and Women's Primary Care Practice-Based Research Network Massachusetts
  17. BraveNet- The Bravewell Integrative Medicine Research Network North Carolina
  18. C-AHEAD PBRN- Center for the Advancement of Healthcare Education and Delivery PBRN Colorado
  19. CAPRICORN- Capital Area Primary Care Research Network District of Columbia
  20. CARinG Network- Cincinnati Area Research Group Network Ohio
  21. CCPC- Connecticut Center for Primary Care Connecticut
  22. CDN- Clinical Directors Network, Inc. New York
  23. COCONet- Colorado Child Outcomes Network Colorado
  24. CORC- CAMHS Outcomes Research Consortium UK
  25. CONCORD-PBRN- Consortium for Collaborative Osteopathic Research Development Practice-Based Research Network Texas
  26. CORNET- Continuity Research Network Virginia
  27. CPNet- Community Physician's Network Georgia
  28. CSPC- Centre for Studies in Primary Care
  29. CSRN- CLEAR Scoliosis Research Network Texas
  30. CaReNet - Colorado Research Network Colorado
  31. Cedars-Sinai PBRN-Cedars-Sinai Medical Delivery Network PBRN California
  32. CenTexNet- Central Texas Primary Care Research Network Texas
  33. DC PrimCare PBRN- District of Columbia Primary Care Practice-Based Research Network District of Columbia
  34. DO-Touch.NET- Doctors of Osteopathic Medicine Treating with OMM: Usefulness in Current Healthcare Missouri
  35. DesertNet- DesertNet Arizona Primary Care Research Network Arizona
  36. E-CARE- Eastern Carolina Association for Research & Education North Carolina
  37. EBD-PBRN- Evidence-Based Decisions in Dentistry Practice-Based Research Network California
  38. EPICnet- Eastern Pennsylvania Inquiry Collaborative Network Pennsylvania
  39. GR-PBRN- Greater Rochester Practice Research Network New York
  40. GRIN- Great Lakes Research Into Practice Network Michigan
  41. HCH PBRN- Health Care for the Homeless Practice Based Research Network Tennessee
  42. HHR- Holistic Healthcare and Research Centre
  43. HPRN- High Plains Research Network Colorado
  44. HamesNet- HamesNet Georgia
  45. Healthy Communities- Physicians of Southwest Washington Foundation for Quality Improvement Washington
  46. ICPA PBRN- International Chiropractic Pediatric Association PBRN Pennsylvania
  47. IDND- Indianapolis Discovery Network for Dementia Indiana
  48. IFHRN- Institute for Family Health Research Network New York
  49. IRENE- Iowa Research Network Iowa
  50. ISRN-RN - Improvement Science Research Network Texas
  51. JCCCR- Jefferson Coordinating Center for Clinical Research Pennsylvania
  52. JDPBRN - Dental PBRN Japan
  53. JHCP-PCRN- Johns Hopkins Community Physicians Primary Care Research Network Maryland
  54. JaxHERO- Jacksonville Health Equity Research Organization Florida
  55. KAN- Kentucky Ambulatory Network Kentucky
  56. LA Net- LA Net Community Health Network California
  57. LAC DHS ACN-R&I- Los Angeles County Department of Health Services, Ambulatory Care Network - Research & Innovation California
  58. La MAISON- Louisiana Medical Home Ambulatory Improvements and Outcomes Network Louisiana
  59. Lutheran Network- Lutheran Family Health Center Network New York
  60. MAFPRN- Minnesota Academy of Family Physicians Research Network Minnesota
  61. MAPPR- Mecklenburg Area Partnership for Primary Care Research North Carolina
  62. MASNRN- Massachusetts School Nurse Research Network Massachusetts
  63. MCHS PBRN- Mayo Clinic Health System Practice Based Research Network Minnesota
  64. MGPC-PBRN- Massachusetts General Primary Care Practice Based Research Network Massachusetts
  65. MPCRN- Military Primary Care Research Network Maryland
  66. MPPBRN- Minnesota Pharmacy Practice-Based Research Network Minnesota
  67. MTN- MO Therapy Network Missouri
  68. MedEdNet- Medical Education Research Network Oregon
  69. Mercy- Sisters of Mercy Health System Network Missouri
  70. MetroNet - Metropolitan Detroit Practice-based Research Network Michigan
  71. NC MARCH- North Carolina Multisite Adolescent Research Consortium for Health North Carolina
  72. NC-FM-RN- North Carolina Family Medicine Research Network North Carolina
  73. NCCHRN- North Carolina Child Health Research Network North Carolina
  74. NECF PBRN- New England Clinicians Forum Practice-Based Research Network Connecticut
  75. NEON- Northeastern Ohio Network Ohio
  76. NFPCRN - North Florida Pediatric Community Research Network Florida
  77. NIPC-PBRN- National Interdisciplinary Primary Care PBRN Iowa
  78. NJPCRN - New Jersey Primary Care Research Network New Jersey
  79. NP-PITTNet- NursePractitioner-PITTNet Pennsylvania
  80. NYC RING- New York City Research & Improvement Networking Group New York
  81. NYU-HHC CRA- New York University (NYU)-Health and Hospitals Corporation (HHC) Clinical Research Association (CRA) New York
  82. National Dental PBRN- The National Dental Practice-Based Research Network Alabama
  83. NetHaven at Yale- NetHaven Practice Based Research Network Connecticut
  84. NorTex- North Texas Primary Care Practice Based Research Network Texas
  85. NorthShore PBRN- NorthShore Practice-Based Improvement Research Network Illinois
  86. Northwest PRECEDENT- Northwest Practice-based REsearch Collaborative in Evidence-based DENTistry Washington
  87. OCHRN- Oklahoma Child Health Practice Based Research Network Oklahoma
  88. OKPRN- Oklahoma Physicians Resource/Research Network Oklahoma
  89. OPTI-WestNet- OPTI-West Practice-Based Research Network Colorado
  90. OQUIN- Outpatient Quality Improvement Network South Carolina
  91. OSU-PCPBRN- Ohio State University Primary Care Practice Based Research Network Ohio
  92. PAMFRI- Palo Alto Medical Foundation Research Institute California
  93. PBRN-VA- VA Mental Health Practice-Based Research Network Texas
  94. PCRC- Duke Primary Care Research Consortium North Carolina
  95. PDC PBRN- Pediatric Diagnostic Center PBRN California
  96. PPOC- The Pediatric Physicians' Organization at Children's Massachusetts
  97. PRN- Portland Research Network Oregon
  98. PROS- Pediatric Research in Office Settings Illinois
  99. PSARN- Penn State Ambulatory Research Network Pennsylvania
  100. PeRC- The Pediatric Research Consortium Pennsylvania
  101. Pediatric PittNet- Pediatric PittNet: University of Pittsburgh CTSI PBRN Pennsylvania
  102. RAP- Research Association of Practices of the PBRN Shared Resource Ohio
  103. RCPCrN- Robeson County Primary Care research Network North Carolina
  104. REACH Network- Research and Education for Academic Achievement Network Illinois
  105. RIOS NET- Research Involving Outpatient Settings Network New Mexico
  106. Rx-SafeNet- Medication Safety Research Network of Indiana Indiana
  107. SAFTINet- Scalable Architecture for Federated Translational Inquiries Network Colorado
  108. SALT-Net- The Studying, Acting, Learning, and Teaching Network New York
  109. SAPPHIRE- South Asian Practice Partnership for Health Improvement and Research New York
  110. SCOR Network- Slone Center Office-based Research Network Massachusetts
  111. SCPPRN- South Carolina Pediatric Practice Research Network South Carolina
  112. SERCN- Southeast Regional Clinicians Network Georgia
  113. SF Bay CRN- San Francisco Bay Collaborative Research Network California
  114. SICTRN- Southeastern Integrated Clinical and Translational Research Network Florida
  115. SIPRO- Southern Illinois Practice Research Organization Illinois
  116. SOAR-Net- Southwestern Ohio Ambulatory Research Network Ohio
  117. SPUR-Net- Southern Primary-care Urban Research Network Texas
  118. SRN- ShowMe Research Network Missouri
  119. STARNet- South Texas Ambulatory Research Network Texas
  120. STOHN- South Texas Oral Health Network Texas
  121. STP PBRN- South Texas Psychiatric Practice-Based Research Network Texas
  122. SWIRLNet- South West Innovative Research and Learning Network Colorado
  123. Safety Net West- Safety Net West Oregon
  124. South Asian PBRN- South Asian PBRN
  125. Southeast Wisconsin Alliance for Translating Research into Practice- Southeast Wisconsin Alliance for Translating Research into Practice Wisconsin
  126. TAMHSC-RCHI- Texas A&M Health Science Center Rural and Community Health Institute Texas
  127. The Dartmouth CO-OP Project- Dartmouth-Northern New England CO-OP Project New Hampshire
  128. UCLA PCRN- UCLA Primary Care Research Network California
  129. UMASS-FM-PBRN - UMass Family Medicine PBRN Massachusetts
  130. UNYNET - Upstate New York Practice Based Research Network New York
  131. UT Pharm Net- University of Tennessee Pharmacist Practice Based Research Network Tennessee
  132. UUPCRN- Utah Health Research Network Utah
  133. VCMCDDCP- Ventura County Medical Center Diabetes Data Control Project Practice Based California
  134. WPRN- WWAMI Region Practice and Research Network Washington
  135. WREN- Wisconsin Research and Education Network Wisconsin
  136. WU PAARC- Washington University Pediatric and Adolescent Ambulatory Research Consortium Missouri
  137. WesTRN - West Texas Research Network Texas

References [edit]

  1. ^ "PBRN's in the 21st Century - The Pearls of Research". American Academy of Family Physicians. 
  2. ^ "PBRN's in the 21st Century - ThePearls of Research". American Academy of Family Physicians. 
  3. ^ Green, LA (1978). "A family medicine information system: the beginning of a network for practicing and residency family physicians.". Journal of Family Practice 7 (3): 567–76. 
  4. ^ Nelson, EC (1981). "The cooperative information project, part 1: a sentinel prac- tice network for service and research in primary care.". Journal of Family Practice 13 (5): 641–9. 
  5. ^ Donaldson, MS (1996). Primary Care. Washington DC: National Academy Press. 
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