User:Geekdiva

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2014: My limitations explained, plus some advice helpful to people living in most of North America and especially in Washington State[edit]

Especially due to my chronic illness, when on a talk page, I have a problem with WP:BECONCISE. I tend to think out loud and have no time or energy left for revision, which is why I can't make the edits myself nor be likely to return to that page. It's also why I often add to the edit summary what others would put on talk pages. I use up everything I have on the edit with nothing left for Facebook, even, much less a talk page. For me, it's this OR that, talk page OR article edit. As ridiculous as it may sound, I have to make these calculations down to the very moment: If I make this edit I'll likely pass out in a little while (which I might do anyway), so do I make this edit or go with my helper to the store to escape cabin fever?

Even these words I'm posting right now, I've tossed them around my head for years, at least since 2009. But randomly puzzling my way through Wikipedia when I can allows me to keep my brain refreshed, my skills up to returning to work if my body ever allows it, and my self-esteem mollified by feeling a bit like I contribute to the world that has helped me.

Advice with links through a background story[edit]

For all the USA's faults, I know there are many places in the world where I would have been dead by now. When I have a helper who's from one of those places and, say, is supporting 24 people on disability-assistant income, we often talk about it. For example, I'm grateful to live in clean low-income housing just a few blocks from where I used to own a condo. The rent is pegged to my income & I can deduct part of my medical expenses. If I ever can return to work, most likely my income would drop at first, but this living situation takes a lot of fear out of that possibility.

The US SSA's Ticket to Work program also would help, although I find the name of the beneficiary web site, Choose Work, a bit laughable. It demonstrates the well-established, well-meaning prejudice that disability is a choice of "giving in" to the illness, especially when it's an invisible illness and an invisible disability. I worked my entire adult life with fibromyalgia AND went to school at night to finish my degree even though I had a career, but suddenly I'm a malingerer when I get too ill to work and, in spite of everything I tried and still try, can't climb out of that hole? Sheesh! Even friends and family say this kind of thing to us and, more often and for longer, behind our backs. See Stigma_management#Invisible_stigma_management.

I found help to maximize my independence with an Independent Living Plan from my local Center for Independent Living (Seattle & Bellevue-area's Alliance of People with disAbilities at http://www.disabilitypride.org), which helps people at any level of disability, working or not. I found them by calling the Washington Information Network 211 (http://win211.org/) at 2-1-1: community services and information. See N11 code for the other North American Numbering Plan numbers ranging from 2-1-1 to 9-1-1.

What's in my present affecting my possible futures[edit]

Anyway, I still have to abandon more changes than I'd like and often push myself further than I should, ending up with symptoms like the worst flu you've ever had and escalating my daily fever spike from the Still's (see Still's Disease.org).

I can't be reliable...yet. Not quite yet. Not yet for 14 years now. But in every way I can through all this, I've always been setting myself up for all good possible futures. --Geekdiva (talk) 21:43, 12 August 2014 (UTC)

  1. ^ Lettres Provinciales (1656-1657), no. 16.

2009: Who, what, where, but no how or why[edit]

Who I am: Geekdiva.

Where I worked: I was a technical writer, editor, & trainer for Adobe, Intel, and a couple of places in Seattle you've never heard of. Ten years ago, I became very ill with Adult Onset Still's Disease. I last worked in June of 2001. It took 7 years to get my SSDI approved, and I still don't have my private long-term disability approved.

What I'd do if I could do more: Help out more around here, write the book in my head, create the PBS show I've somewhat written down, see more of my friends and the world, and play my harp.

What I do in spite of my limitations: Study Japanese by osmosis. If I can't do anything else, I at least watch the subtitled version of various anime to pick up some vocabulary. One bedside shelf holds dozens of dictionaries and other reference books. The other holds this computer, which I was too sick to use for a few years, but by working hard on the little steps I've stretched my limitations enough to get back online, at least a little.

--Geekdiva (talk) 01:41, 6 June 2009 (UTC) (Hey, look! In wikitime, it's already my birthday, while here it's June 5th!)

2007: I exist[edit]

I just created my first edit, so I'm creating a simple user page.

--Geekdiva 04:47, 25 September 2007 (UTC)