World Federation of Hemophilia
|This article may rely excessively on sources too closely associated with the subject, preventing the article from being verifiable and neutral. (August 2012)|
|Method||Treatment, Aid, and Education|
|Members||113 National Member Organizations|
|Key people||President Alain Weill|
|Mission||To improve and sustain care for people with inherited bleeding disorders around the world.|
The World Federation of Hemophilia (WFH) is an international non-profit organization dedicated to improving the lives of people with hemophilia (also spelled haemophilia) and other genetic bleeding disorders. It educates hemophiliacs and lobbies for improved medical treatment. 75% of people in the world with bleeding disorders do not know it and do not receive care.
The WFH was established by Frank Schnabel in 1963 and has its headquarters in Montreal, Canada. It has member organizations in 113 countries and official recognition from the World Health Organization. The current President is Alain Weill.
World Hemophilia Day
World Hemophilia Day is an international observance held annually on April 17 by the WFH. It is an awareness day for hemophilia and other bleeding disorders, which also serves to raise funds and attract volunteers for the WFH. It was started in 1989; April 17 was chosen in honor of Frank Schnabel's birthday.
Themes by year
- 2010: "The Many Faces of Bleeding Disorders – United to Achieve Treatment for All"
- 2009: "Together, We Care"
- 2008: "Count Me In"
- 2007: "Improve Your Life!"
- "World Federation of Hemophilia". Retrieved 2012-08-16.
- "Media Advisory: World Hemophilia Day Tulip Sale Event, April 15, 2010". Retrieved 2010-04-17.
- "World Hemophilia Day 2010". World Federation of Hemophilia. Retrieved 2010-04-17.
- "World Hemophilia Day 2009". World Federation of Hemophilia. Retrieved 2010-04-17.
- "World Hemophilia Day - 2008". Retrieved 2010-04-17.
- "World Hemophilia Day". Retrieved 2010-04-17.