International Lyme and Associated Diseases Society: Difference between revisions
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The '''International Lyme And Associated Diseases Society''' (ILADS, pronounced {{IPA|/ˈaɪlædz/}}) describes itself as a nonprofit, international, multi-disciplinary medical society, dedicated to the diagnosis and appropriate treatment of Lyme and its associated diseases. ILADS promotes understanding of Lyme and its associated diseases through research and education and strongly supports physicians and other health care professionals dedicated to advancing the standard of care for Lyme and its associated diseases. The Society supports research to disprove the conventional medical opinion of the ''Infectious Disease Association of America'' that "patients who remain seronegative, despite continuing symptoms for 6-8 weeks, are unlikely to have Lyme disease."<ref name="idsa-guide">{{cite journal |author=Wormser GP, ''et al.'' |title=Clinical practice guidelines by the IDSA |
The '''International Lyme And Associated Diseases Society''' (ILADS, pronounced {{IPA|/ˈaɪlædz/}}) describes itself as a nonprofit, international, multi-disciplinary medical society, dedicated to the diagnosis and appropriate treatment of Lyme and its associated diseases. ILADS promotes understanding of Lyme and its associated diseases through research and education and strongly supports physicians and other health care professionals dedicated to advancing the standard of care for Lyme and its associated diseases. The Society supports research to disprove the conventional medical opinion of the ''Infectious Disease Association of America'' that "patients who remain seronegative, despite continuing symptoms for 6-8 weeks, are unlikely to have Lyme disease."<ref name="idsa-guide">{{cite journal |author=Wormser GP, ''et al.'' |title=Clinical practice guidelines by the IDSA |Clin Infect Dis. 2006 Nove 1;43(9):1089-134. Epub 2006 Oct 2}}</ref> and |
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the "unproven and very improbable assumption that chronic B. burgdorgeri infection can occur in the absence of antibodies against B. burgdorferi in serum." <ref name="nejm-cld">{{cite journal |author=Feder HM, Johnson BJ, O'Connell S, ''et al.'' |title=A critical appraisal of "chronic Lyme disease" |journal=N. Engl. J. Med. |volume=357 |issue=14 |pages=1422–30 |year=2007 |month=October |pmid=17914043 |doi=10.1056/NEJMra072023 |url=http://content.nejm.org/cgi/content/full/357/14/1422}}</ref> |
the "unproven and very improbable assumption that chronic B. burgdorgeri infection can occur in the absence of antibodies against B. burgdorferi in serum." <ref name="nejm-cld">{{cite journal |author=Feder HM, Johnson BJ, O'Connell S, ''et al.'' |title=A critical appraisal of "chronic Lyme disease" |journal=N. Engl. J. Med. |volume=357 |issue=14 |pages=1422–30 |year=2007 |month=October |pmid=17914043 |doi=10.1056/NEJMra072023 |url=http://content.nejm.org/cgi/content/full/357/14/1422}}</ref> |
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Revision as of 09:33, 27 December 2013
The International Lyme And Associated Diseases Society (ILADS, pronounced /ˈaɪlædz/) describes itself as a nonprofit, international, multi-disciplinary medical society, dedicated to the diagnosis and appropriate treatment of Lyme and its associated diseases. ILADS promotes understanding of Lyme and its associated diseases through research and education and strongly supports physicians and other health care professionals dedicated to advancing the standard of care for Lyme and its associated diseases. The Society supports research to disprove the conventional medical opinion of the Infectious Disease Association of America that "patients who remain seronegative, despite continuing symptoms for 6-8 weeks, are unlikely to have Lyme disease."[1] and the "unproven and very improbable assumption that chronic B. burgdorgeri infection can occur in the absence of antibodies against B. burgdorferi in serum." [2]
Examples of false Seronegativity are extensively documented on their website, including papers published by authors of the IDSA treatment guidelines.[3][4]
Controversy exists as to the existence of "chronic Lyme disease", with ILADS advocating for the use of long term antibiotics for treatment for Lyme disease that does not respond to the consensus treatment guidelines. The assumption that there is a persistent infection is not supported by high quality clinical evidence, and the use of long term antibiotics is not recommended.[2] However, patient advocacy organizations, as well as the Center for Science in the Public Interest support the ILADS position.[citation needed] Major US medical authorities, including the Infectious Diseases Society of America, the American Academy of Neurology, and the National Institutes of Health, have stated that there is no convincing evidence that Borrelia is involved in chronic Lyme disease. However an author of the IDSA guideline is the lead researcher on a paper showing high failure rates of disease in late stage Lyme.[5]
ILADS has also questioned the generalizability and reliability of some of the trials referred to by IDSA and the reliability of the current diagnostic tests.[6]
As a result of this fundamentally different view of the nature of long-term effects of Borrelia infection, ILADS has produced treatment recommendations which conflict with those of major mainstream medical bodies. A 2004 article in the Pediatric Infectious Disease Journal on the prevalence of inaccurate online information about Lyme disease cited the ILADS website as a source of such inaccurate material.[7]
ILADS has also accused the IDSA of inflammatory and Misleading Statements, such as "Occasionally, these patients are treated with unconventional and highly dangerous methods such as bismuth injections or deliberate inoculation of plasmodia to cause malaria."[2] ILADS does not recommend these therapies, the malaria incident was over 17 years ago, and the bismuth incident was one physician.
References
- ^ Wormser GP; et al. "Clinical practice guidelines by the IDSA".
{{cite journal}}: Cite journal requires|journal=(help); Explicit use of et al. in:|author=(help); Text "Clin Infect Dis. 2006 Nove 1;43(9):1089-134. Epub 2006 Oct 2" ignored (help) - ^ a b c Feder HM, Johnson BJ, O'Connell S; et al. (2007). "A critical appraisal of "chronic Lyme disease"". N. Engl. J. Med. 357 (14): 1422–30. doi:10.1056/NEJMra072023. PMID 17914043.
{{cite journal}}: Explicit use of et al. in:|author=(help); Unknown parameter|month=ignored (help)CS1 maint: multiple names: authors list (link) - ^ Breier F, Khanakah G, Stanek G; et al. "Isolation and PCR typing of B afzelii from a skin lesion in a seronegative patient".
{{cite journal}}: Cite journal requires|journal=(help); Explicit use of et al. in:|author=(help); Text "Br J Dermatol. 2001 Feb;144(2):387-92" ignored (help)CS1 maint: multiple names: authors list (link) - ^ "Lyme disease associated with fibromylagia".
{{cite journal}}: Cite journal requires|journal=(help); Text "Dinerman H, Steere AC" ignored (help) - ^ Steere AC, Berardi VP, Weeks KE, Logigian EL, Ackermann R. "Evaluation of the inthrathecal antibody response to Borrelia burgorferi as a diagnostic test for Lyme neuroborreliosis". J Infect Dis 1990 Jun;161(6):1203-9.
{{cite journal}}: CS1 maint: multiple names: authors list (link) - ^ Stricker RB (2007). "Counterpoint: long-term antibiotic therapy improves persistent symptoms associated with Lyme disease". Clinical Infectious Diseases. 45 (2): 149–57. doi:10.1086/518853. PMID 17578772.
{{cite journal}}: Unknown parameter|month=ignored (help) - ^ Cooper JD, Feder HM (2004). "Inaccurate information about lyme disease on the internet" (PDF). Pediatr. Infect. Dis. J. 23 (12): 1105–8. PMID 15626946.
{{cite journal}}: Unknown parameter|month=ignored (help)
External links
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