Amy Sequenzia

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Amy Sequenzia is an American, non-speaking autistic, multiply-disabled activist and writer about disability rights, civil rights and human rights. She also has epilepsy, cerebral palsy, dyspraxia,[1] and insomnia.[2]

Sequenzia is a co-editor of Typed Words, Loud Voices, a book about typed communication.[3] She is a frequent contributor to the Autism Women's Network[4] and Ollibean.com.[5] She is also a board member of the Autistic Self Advocacy Network[6] and is on the board of directors at Florida Alliance for Assistive Services and Technology.[7] She also writes poetry.[8] She has presented in several conferences in both the United States and other countries, including the conference "Reclaiming our Bodies and Minds" at Ryerson University in Toronto.[4] Her work is featured in books about being Autistic and Disabled.[a]

In her own words: "I type to communicate. I began typing when I was eight years old, but for many years I did not type much because of seizures that made me very tired all the time, and because of lack of support. Today I cannot imagine being silenced again."[4]

Disability Rights and Autism Activism[edit]

Sequenzia is deeply involved with the Neurodiversity movement and has been outspoken about the rights and worth of disabled people. She criticizes the medical model of autism.[1][9] Sequenzia argues against attempts to cure autism, believing autism is an inseparable part of an autistic person's personhood.[10] She supports all methods of communication a disabled person chooses to use and is a user of facilitated communication.[1][3][11] She supports attempts to cure epilepsy.[12][13]

Sequenzia uses identity-first language.[a] She has written against the use of functioning labels as a person who is typically labeled "low-functioning".[1] Sequenzia states that labeling individuals by what they "cannot do" causes others to judge autistic people unfairly and with prejudice.[14]

Amy Sequenzia has criticized Temple Grandin for only focusing on and listening to high-functioning autistics, as opposed to low-functioning and non-speaking autistics. She has said that Grandin doesn't view those autistics as worthy of her attention.[15][16]

Notes[edit]

  1. ^ a b As explained by journalist Sydney Parker: "Sequenzia prefers to be identified as Autistic with a capital 'A' instead of as a person with autism. 'I use identity-first language...'."[9]

References[edit]

  1. ^ a b c d Zurcher, Ariane (November 9, 2012). "An Interview With Amy Sequenzia, a Non-Speaking Autistic Writer and poet". The Huffington Post. Retrieved 2015-08-28. 
  2. ^ Sequenzia, Amy (October 28, 2013). "My Uncooperative Body". Autism Women's Network. Retrieved 2015-10-04. 
  3. ^ a b Sequenzia, Amy; Elizabeth J., Grace; Yergeau, Melanie (2015). Typed Words, Loud Voices. Autonomous Press. ISBN 978-0-9861835-2-2. 
  4. ^ a b c "Amy Sequenzia". Autism Women's Network. Retrieved 2016-02-09. 
  5. ^ "About Amy Sequenzia". Ollibean. Retrieved 2016-02-09. 
  6. ^ "Leadership". Autistic Self Advocacy Network. Retrieved 2015-12-26. 
  7. ^ "BoardMembers". Florida Alliance for Assistive Services and Technology. Retrieved 2016-02-09. 
  8. ^ Sequenzia, Amy. "My Voice, My Life : A Poem by Amy Sequenzia". Ollibean. Retrieved 2016-02-09. 
  9. ^ a b Parker, Sydney (March 20, 2015). "Autism: does ABA therapy open society's doors to children, or impose conformity?". The Guardian. Retrieved 2015-09-09. 
  10. ^ Perry, David M. (October 9, 2015). "Fix the Charity That Wants To 'Fix' Autism". Al Jazeera America. Retrieved March 2, 2016. 
  11. ^ Des Roches Rosa, Shannon (November 7, 2012). "Interview: Amy Sequenzia on Facilitated Communication". Thinking Person's Guide to Autism. Retrieved 2015-09-20. 
  12. ^ Sequenzia, Amy (April 17, 2015). "Celebrating My Life". Ollibean. Retrieved 2015-09-20. 
  13. ^ Sequenzia, Amy (March 28, 2013). "Pain in My Brain". Ollibean. Retrieved 2015-09-20. 
  14. ^ Bakan, Michael B. (2016). "Toward an Ethnographic Model of Disability in the Ethnomusicology of Autism". In Howe, Blake; Jensen-Moulton, Stephanie; Lerner, Neil; Straus, Joseph. The Oxford Handbook of Music and Disability Studies. Oxford University Press. pp. 29–30. ISBN 9780199331451. 
  15. ^ Sequenzia, Amy (19 January 2013). "When Autistics Grade Other Autistics". Ollibean. Retrieved 1 July 2017. 
  16. ^ Sequenzia, Amy. "Amy Sequenzia". www.facebook.com. Retrieved 1 July 2017. 

External links[edit]