The Brittle Bone Society was established in 1968 in Dundee by Margaret Grant, who has OI. When she was young Margaret was aware that there was virtually no support for people with OI and that many medical professionals knew little or nothing about the condition. When her daughter Yvonne was born some years later very little had changed. For many years Margaret was the driving force of the Brittle Bone Society, which was recognised when she was awarded an MBE in 1989.
The Society now has more than 1,000 members and works closely with specialist medical units and other professionals throughout the UK. Its current chief executive is Patricia Osborne.