Epilepsy Action

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Epilepsy Action
MottoWe exist to improve the lives of everyone affected by epilepsy
Formation6 July 1950; 69 years ago (1950-07-06) [1]
FounderLady Cynthia Colville [1]
TypeCharitable organisation
Registration no.234343 [2]
HeadquartersYeadon, West Yorkshire, United Kingdom
Coordinates53°51′52″N 1°41′39″W / 53.86441°N 1.69408°W / 53.86441; -1.69408
ServicesEpilepsy advice and information
Membership (2018)
9,615 [3]
Margaret Ford, Baroness Ford [3]
Richard Chapman [4]
Chief executive
Philip Lee [3]
Revenue (2018)
£3.7m [3]
Staff (2018)
70 [3]
Formerly called
British Epilepsy Association

Epilepsy Action is a UK charity providing information, advice and support for people with epilepsy.

It provides freephone and email helplines and a wide range of information booklets. It has around 100 local support groups across England, Wales and Northern Ireland and a network of volunteers working in the community.

It also organises conferences for people with epilepsy and health professionals with an interest in the condition. It also has a website that includes information about epilepsy and runs an online community for people with the condition and their carers.

It undertakes and encourages non-laboratory research into epilepsy and the issues surrounding living with the condition.

The charity has received international media coverage on a number of occasions due to its work in highlighting bad practice in online videos in relation to photosensitive epilepsy.


  1. ^ a b 'Epilepsy Action history wall', Epilepsy Action, 2010
  2. ^ Charity Commission. British Epilepsy Association, registered charity no. 234343.
  3. ^ a b c d e 'Epilepsy Action 2018 Annual Report and Accounts', Epilepsy Action, 9 April 2019
  4. ^ 'List of council members', Epilepsy Action, 9 July 2019
  5. ^ 'Olympics inquiry into logo-launch seizures', The Daily Telegraph, 13 June 2007
  6. ^ 'London 2012 Olympics withdraw film after seizures', Epilepsy Action, 5 June 2007
  7. ^ 'Kanye West's 'All Of The Lights' Video Gets Epilepsy Warning', MTV, 25 February 2011
  8. ^ 'Epilepsy charity criticises Twitter for flashing ads', BBC News, 10 July 2015

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