|Born||23 April 1952|
|Died||9 March 1997 (aged 44)|
Berck-sur-Mer, Nord-Pas de Calais, France
|Occupation||Journalist, editor, writer|
|Notable works||The Diving Bell and the Butterfly|
Early life and career
Bauby was born in the 14th arrondissement of Paris, and grew up in the 1st arrondissement of Paris, on Rue du Mont-Thabor, north of the Tuileries Garden, living in the building where Alfred de Musset had lived.
He began his journalism career at Combat and then Le Quotidien de Paris. He received his first byline the day Georges Pompidou died in 1974. At age 28, he was promoted to editor-in-chief of the daily Le Matin de Paris, before becoming editor of the cultural section of Paris Match. He then joined the editorial staff of Elle, and later became the magazine's editor.
Bauby was in a relationship with Sylvie de la Rochefoucauld for ten years. They had a son and a daughter together. They separated when he began a relationship with Florence Ben Sadoun, also a journalist at Elle.
On 8 December 1995, at the age of 43, Bauby suffered a cerebrovascular seizure while driving his son to a night out at the theatre. When he woke up in hospital twenty days later, he could only blink his left eyelid. He was suffering from locked-in syndrome, in which the mental faculties remain intact but most of the body is paralyzed. In Bauby's case, his mouth, arms, and legs were paralyzed, and he lost 27 kilograms (60 lb) in the first 20 weeks after his stroke.
Before his seizure, Bauby had signed a contract to write a book. His speech therapist, Sandrine Fichou, arranged a 26-letter alphabet according to frequency of use, so that he could dictate. Claude Mendibil, a ghostwriter and freelance book editor, was sent by his publisher Robert Laffont to take the dictation using a system called partner-assisted scanning. She recited the alphabet until Bauby blinked at the correct letter, and recorded the 130-page manuscript letter by letter over the course of two months, working three hours a day, seven days a week.
The resulting book, The Diving Bell and the Butterfly, was published on Friday, 7 March 1997. Bauby died suddenly from pneumonia, aged 44, two days later. He is buried in a family grave at the Père-Lachaise cemetery in Paris, France.
A few days after Bauby's death, Bouillon de culture featured the book, and Jean-Jacques Beineix's short documentary, Assigné à résidence about Bauby in the Hôpital maritime de Berck, with the writer and editor, Claude Mendibil, and Bauby's partner, Florence Ben Sadoun.
In 2007, painter and director Julian Schnabel released a film version of The Diving Bell and the Butterfly adapted for the screen by Ronald Harwood. It starred Mathieu Amalric as Bauby. Critically acclaimed, the film received the Best Director Prize at Cannes Film Festival, and Golden Globe Awards for Best Foreign Language Film and Best Director, as well as four Academy Award nominations.
The film was criticized by Bauby's closest circle of friends as not faithful to events and biased in favor of his ex-partner Sylvie de la Rochefoucauld. His late-life partner Florence Ben Sadoun was represented as shunning him after his stroke, although in reality she visited him frequently at the hospital in Berck-sur-Mer where he lived during his final days. Bauby notes her visits in his memoir. Beth Arnold of Salon.com notes:
The film is said to be "based on a true story," which, of course, is from Bauby's book. The problem is that mixing his factually accurate journey through locked-in syndrome with a personal life that has been fictionalized for film has affected real people who were intensely involved in Bauby's life before and after his accident. Now some of his closest friends feel the movie may forever obscure the truth of his life. They fear this collision between art and reality has created a revisionist history that is accepted by filmgoers around the world, and that this is what will remain in the collective cultural memory. For the first time, they are speaking publicly about it. As one of Bauby's friends says, "There's the Real Story. The Film. And the New Real Story."
- "Bauby, Jean-Dominique (1952-1997)". Médiathèque de Saint hilaire.
- Tassel, Fabrice (11 March 1997). "L'ultime clin d'oeil de Bauby. Le journaliste paralysé est mort juste après la sortie de son livre". Libération (in French). Retrieved 23 January 2020.
- Arnold, Beth (23 February 2008). "The truth about "The Diving Bell and the Butterfly"". Salon.com. Retrieved 4 May 2014.
- Leslie Sowers (20 July 1999). "'Locked-in' quadriplegic shares life". Houston Chronicle. Archived from the original on 7 April 2005. Retrieved 4 May 2014.
- Bauby, Jean-Dominique (23 June 1998). The Diving Bell and the Butterfly: A Memoir of Life in Death. Knopf Doubleday Publishing Group. ISBN 0375701214.
- "Bauby's (Paris, 75004) : siret, TVA, adresse..." entreprises.lefigaro.fr.
- "The real story behind The Diving Bell and the Butterfly". the Guardian. 9 February 2008.
- "A Writer's Spirit Soared With a Blink of His Eye". Los Angeles Times. 15 March 1997.
- GAUDEMAR, Antoine de. "Vagabondages immobiles d'un mort toujoursvivant. Totalement paralysé mais lucide, Jean-Dominique Bauby a «dicté» son livre en clignant d'une paupière. ""Le scaphandre et le papillon"". Ed. Robert Laffont". Libération.
- "Elizabeth Day interviews ghost-writer Claude Mendibil". the Guardian. 27 January 2008.
- Boyles, Denis (10 October 2003). "Pre-Mortuarial Medicine". National Review Online. Archived from the original on 7 April 2005. Retrieved 4 May 2014.
- Thomas, Rebecca (8 February 2008). "Diving Bell movie's fly-away success". BBC. Retrieved 4 May 2014.
- Freireich, Paul (26 April 1998). "Q and A". New York Times. Retrieved 4 May 2014.
- OCLC 691949499
- Di Giovanni, Janine (29 November 2008). "The real love story behind The Diving Bell and the Butterfly". The Guardian. Retrieved 4 May 2014.
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