Myotonic Dystrophy Foundation

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The Myotonic Dystrophy Foundation (MDF) is an American 501(c)(3) non-profit organization founded by families living with myotonic dystrophy (DM). Their stated mission is support & education, research, and advocacy.


The MDF evolved during the International Myotonic Dystrophy Consortium (IDMC-5) in October 2005 to create a national advocacy organization for people living with myotonic dystrophy.

Alliances and Funding[edit]

Based in San Francisco, the MDF has formed strategic alliances with several independent organizations to raise funds for DM research, including the Run America Foundation of Portland, Oregon; The Hunter Research Fund of Atlanta, Georgia; and the Stone Family Circle of Friends of Richmond, Virginia. The MDF complements the existing efforts of the Muscular Dystrophy Association (MDA), the National Institutes of Health (NIH), the Centers for Disease Control and Prevention (CDC), and other governmental and philanthropic agencies.

External links[edit]