at a 2013 Washington, D.C. venue via TEDx MidAtlantic
Sampson Gordon Berns
October 23, 1996
|Died||January 10, 2014 (aged 17)|
|Cause of death||Complications from Progeria|
|Education||Foxborough High School|
|Known for||HBO documentary on progeria, spreading progeria awareness|
Sampson Gordon "Sam" Berns (October 23, 1996 – January 10, 2014) was an American who had progeria and helped raise awareness about the disease. He was the subject of the HBO documentary Life According to Sam, which was first screened in January 2013. He died one year later, after appearing in a TEDx Talks video titled "My philosophy for a happy life."
Progeria Research Foundation
His parents, Scott Berns and Leslie Gordon, both pediatricians, received their son's diagnosis when he was less than two years of age. Roughly a year later, they established the Progeria Research Foundation in an effort to increase awareness of the condition, to promote research into the underlying causes of and possible treatments for the disease, and to offer resources for the support of sufferers and their families.
On November 9, 2013, the Boston Bruins welcomed Berns to drop the ceremonial first puck for a game against the Toronto Maple Leafs. He helped host Progeria Awareness Night at the TD Garden in Boston, dropping the ceremonial puck, serving as Assistant Equipment Manager for the team, and watching their warmups from the team's bench. Berns and Zdeno Chára, the Bruins captain, had been strong friends since 2006, when Berns attended a Bruins game and met Chára afterwards. Chára had scored in that game and Berns blurted out "You're the hero!". Chára responded: "No, no, you're my hero, our hero."
Before the puck dropped on Tuesday, January 14, 2014, the Bruins honored Berns with a moment of silence and a video tribute.
New England Patriots
Berns was to be an honorary captain when the New England Patriots hosted the Indianapolis Colts in a divisional playoff game on January 11, 2014; however, he died on January 10, the evening before the game.
TED Talk, Sam Berns
Life According to Sam
Life According to Sam is a 2013 documentary film based on the life of Sam Berns and has been shown at film festivals, including Sundance, and it was broadcast on HBO in October. The Academy of Motion Picture Arts and Sciences said it is among 15 documentaries considered for Oscar nominations.
National Institutes of Health, dedication to Sam Berns
- Hayley Okines — English girl who had progeria who had been the subject of television specials both in Europe and in the United States
- Lizzie Velásquez — American woman with Wiedemann–Rautenstrauch syndrome, a non-terminal condition similar to progeria, who is an author and motivational speaker
- Fox, Margalit (January 13, 2014). "Sam Berns, 17, Public Face of a Rare Illness, Is Dead". The New York Times. Retrieved January 14, 2014.
- "The Short, Remarkable Life of Sam Berns Turned Spotlight on Progeria". news.nationalgeographic.com. Retrieved January 14, 2014.
- "Sam Berns, Star of Life According to Sam, Dies at Age 17 – Regina Weinreich". The Huffington Post. Retrieved January 14, 2014.
- Sam Berns (December 13, 2013). "My philosophy for a happy life". YouTube. TEDx Talks. Retrieved November 2, 2015.
- "Progeria Research Foundation – Our Story". Progeria Research Foundation. Progeria Research Foundation. Retrieved January 15, 2014.
- "Progeria Research Foundation – Quick Facts". Progeria Research Foundation. Progeria Research Foundation. Retrieved January 15, 2014.
- Berman, Michele R. (October 16, 2013). "Life According To Sam Berns". MedPage Today. Retrieved January 14, 2014.
- Titunik, Vera (October 2, 2012). "Revisiting Sam Berns". The New York Times Magazine. Archived from the original on December 29, 2014. Retrieved January 14, 2014.
- "Sam Berns, public face of progeria, to be honored by Bruins". Sporting News. January 14, 2014. Retrieved November 25, 2014.
- "Remembering Sam- Boston Bruins". January 14, 2014. Retrieved November 25, 2014.
- "Remembering Sam". nhl.com.
- Steve Buckley. "Robert Kraft: I fell in love with Sam Berns". bostonherald.com.
- "New England Patriots fans dedicate win to teen, Sam Berns, who died of rare aging disease – Daily Mail Online". Mail Online.
- "Sam G. Berns's Obituary on New York Times". New York Times. Retrieved June 29, 2017.
- "Statement from Robert Kraft on the passing of Sam Berns". New England Patriots. Archived from the original on January 12, 2014.
- "TEDxMidAtlantic". tedxmidatlantic.com. Retrieved June 29, 2017.
- TEDx Talks (December 13, 2013). "My philosophy for a happy life – Sam Berns – TEDxMidAtlantic". Retrieved June 29, 2017 – via YouTube.
- Fox, Margalit (January 13, 2014). "Sam Berns, 17, Public Face of a Rare Illness, Is Dead". Retrieved June 29, 2017 – via NYTimes.com.
- Henig, Robin Marantz. "The Short, Exuberant Life of Sam Berns". The 6th Floor Blog. Retrieved June 29, 2017.
- "Life According to Sam". Retrieved June 29, 2017.
- "Life According to Sam (2013)". Retrieved June 29, 2017.
- Robin Marantz Henig (January 30, 2005). "Racing With Sam". The New York Times. Retrieved June 30, 2017.
- Progeria Research Foundation
- HBO: Documentaries | Life According to Sam | Home
- CNN – "Beloved teen Sam Berns dies at 17 after suffering from rare disease"
- My Philosophy for a Happy Life: Sam Berns gives a lecture at TEDxMidAtlantic 2013
- Sam Berns, 'remarkable' teen who battled rare rapid aging disease, progeria, dies at age 17