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== Research ==
== Research ==
FARE has developed research infrastructure to support advances in the understanding, management, treatment and prevention of food allergy. Initiated in 2015 and expanded in 2020, the FARE Clinical Network <ref>{{Cite web |title=FARE Clinical Network {{!}} Food Allergy Research & Education |url=https://www.foodallergy.org/research-innovation/elevating-research/fare-clinical-network |access-date=2022-07-12 |website=www.foodallergy.org |language=en}}</ref> is a coalition of academic, research and clinical care centers specializing in food allergy. In 2021, 51 FARE Clinical Network centers conducted more than 45 food allergy clinical trials and treated 250,000 food allergy patients in 23 states and the District of Columbia. FARE has also established a food allergy patient registry <ref>{{Cite journal |last=Food Allergy Research & Education |date=2022-01-22 |title=The FARE Patient Registry: A Registry for the Food Allergy Community |url=https://clinicaltrials.gov/ct2/show/NCT04653324}}</ref> as well as a biobank and biorepository <ref>{{Cite web |title=Cincinnati Children’s to House Food Allergy Biobank and Biomarker Discovery Center |url=https://scienceblog.cincinnatichildrens.org/cincinnati-childrens-to-house-food-allergy-biobank-and-biomarker-discovery-center |access-date=2022-07-12 |website=Research Horizons |language=en}}</ref> and a data coordination center <ref>{{Cite web |title=In the News: Tetralogy of Fallot Strategies, Pediatric Stroke and SARS-CoV-2, Oxygen Therapy Timing |url=https://www.research.chop.edu/cornerstone-blog/in-the-news-tetralogy-of-fallot-strategies-pediatric-stroke-and-sars-cov-2-oxygen-therapy-timing |access-date=2022-07-12 |website=www.research.chop.edu}}</ref> to support FARE Clinical Network research. These initiatives support the development of a centralized food allergy patient data platform to facilitate food allergy research breakthroughs worldwide.
FARE has developed research infrastructure to support advances in the understanding, management, treatment and prevention of food allergy. Initiated in 2015 and expanded in 2020, the FARE Clinical Network <ref>{{Cite web |title=FARE Clinical Network {{!}} Food Allergy Research & Education |url=https://www.foodallergy.org/research-innovation/elevating-research/fare-clinical-network |access-date=2022-07-12 |website=www.foodallergy.org |language=en}}</ref> is a coalition of academic, research and clinical care centers specializing in food allergy. In 2021, 51 FARE Clinical Network centers conducted more than 45 food allergy clinical trials and treated 250,000 food allergy patients in 23 states and the District of Columbia. FARE has also established a food allergy patient registry <ref>{{Cite journal |last=Food Allergy Research & Education |date=2022-01-22 |title=The FARE Patient Registry: A Registry for the Food Allergy Community |url=https://clinicaltrials.gov/ct2/show/NCT04653324}}</ref> as well as a biobank and biorepository <ref>{{Cite web |title=Cincinnati Children’s to House Food Allergy Biobank and Biomarker Discovery Center |url=https://scienceblog.cincinnatichildrens.org/cincinnati-childrens-to-house-food-allergy-biobank-and-biomarker-discovery-center |access-date=2022-07-12 |website=Research Horizons |language=en}}</ref> and a data coordination center <ref>{{Cite web |title=In the News: Tetralogy of Fallot Strategies, Pediatric Stroke and SARS-CoV-2, Oxygen Therapy Timing |url=https://www.research.chop.edu/cornerstone-blog/in-the-news-tetralogy-of-fallot-strategies-pediatric-stroke-and-sars-cov-2-oxygen-therapy-timing |access-date=2022-07-12 |website=www.research.chop.edu}}</ref> to support FARE Clinical Network research. These initiatives support the development of a centralized food allergy patient data platform to facilitate food allergy research breakthroughs worldwide.

FARE co-funded the Learning Early About Peanut Allergy (LEAP) study, published in 2015, <ref>{{Cite journal |last=Du Toit |first=George |last2=Roberts |first2=Graham |last3=Sayre |first3=Peter H. |last4=Bahnson |first4=Henry T. |last5=Radulovic |first5=Suzana |last6=Santos |first6=Alexandra F. |last7=Brough |first7=Helen A. |last8=Phippard |first8=Deborah |last9=Basting |first9=Monica |last10=Feeney |first10=Mary |last11=Turcanu |first11=Victor |date=2015-02-26 |title=Randomized Trial of Peanut Consumption in Infants at Risk for Peanut Allergy |url=https://doi.org/10.1056/NEJMoa1414850 |journal=New England Journal of Medicine |volume=372 |issue=9 |pages=803–813 |doi=10.1056/NEJMoa1414850 |issn=0028-4793 |pmc=PMC4416404 |pmid=25705822}}</ref> which has led to a shift in national dietary guidelines <ref>{{Cite web |last=National Institute of Allergy and Infectious Diseases |date=January 5, 2017 |title="Addendum Guidelines for the Prevention of Peanut Allergy in the United States: Report of the NIAID-Sponsored Expert Panel" |url=https://www.niaid.nih.gov/sites/default/files/addendum-peanut-allergy-prevention-guidelines.pdf |url-status=live |access-date=July 12, 2022 |website=niaid.nih.gov}}</ref> to encourage [[Peanut allergy#Prevention|introduction of age-appropriate peanut foods during infancy to lower infant risk of developing peanut allergy]]. Additional FARE-supported research studies are investigating early introduction of multiple food allergens, desensitization to multiple food allergens using allergen-specific immunotherapies and allergen-non-specific medications, and improved methods of food allergy diagnosis.


== Awareness ==
== Awareness ==

Revision as of 16:47, 12 July 2022

Food Allergy Research & Education
Founded2012; established through merger of the Food Allergy & Anaphylaxis Network (est.1991) and the Food Allergy Initiative (est. 1998)
FocusFood allergies
Location
Area served
United States
MethodResearch, Education, Awareness, Advocacy
CEO
Sung Poblete
Revenue
$18,707,655 USD (for year ending December 31, 2020)
Websitewww.foodallergy.org

Food Allergy Research & Education (FARE) is a non-profit organization dedicated to food allergy awareness, education, research, and advocacy; the organization provides information, programs, and resources about food allergies and anaphylaxis, a severe, potentially life-threatening allergic reaction.[1] Working on behalf of more than 32 million Americans who have potentially life-threatening food allergies,[2] [3] [4] FARE’s mission is to improve the quality of life and health of those with food allergies, and to provide hope for the development of new treatments.[5]

FARE formed in 2012 through the merger of two food allergy patient advocacy organizations: the Food Allergy & Anaphylaxis Network (FAAN), a clearinghouse for food allergy information founded in 1991 by the parent of a child with food allergies, and the Food Allergy Initiative (FAI), founded in 1998 by concerned parents and grandparents who were committed to advancing food allergy research.[6] The new organization combined FAAN’s expertise in patient education with FAI’s leadership in research funding. As FARE marks its 10th anniversary in 2022, the organization’s donor-supported investments in food allergy research, education and advocacy totaled $100 million.[7]

Research

FARE has developed research infrastructure to support advances in the understanding, management, treatment and prevention of food allergy. Initiated in 2015 and expanded in 2020, the FARE Clinical Network [8] is a coalition of academic, research and clinical care centers specializing in food allergy. In 2021, 51 FARE Clinical Network centers conducted more than 45 food allergy clinical trials and treated 250,000 food allergy patients in 23 states and the District of Columbia. FARE has also established a food allergy patient registry [9] as well as a biobank and biorepository [10] and a data coordination center [11] to support FARE Clinical Network research. These initiatives support the development of a centralized food allergy patient data platform to facilitate food allergy research breakthroughs worldwide.

FARE co-funded the Learning Early About Peanut Allergy (LEAP) study, published in 2015, [12] which has led to a shift in national dietary guidelines [13] to encourage introduction of age-appropriate peanut foods during infancy to lower infant risk of developing peanut allergy. Additional FARE-supported research studies are investigating early introduction of multiple food allergens, desensitization to multiple food allergens using allergen-specific immunotherapies and allergen-non-specific medications, and improved methods of food allergy diagnosis.

Awareness

Through media,[14] and awareness programs,[15] FARE helps people better understand the daily challenges of managing food allergies. FARE's Ambassadors include:

  • Frank Dicopoulos — participated in FARE's Walk for Food Allergy event in Long Branch, NJ.[16]
  • Chris Dodd — Senator (D-Conn.) until 2011 has been working with FARE to educate others about food allergies. Sen. Dodd is co-sponsor of the Food Allergy and Anaphylaxis Management Act.[17]
  • Adam Pascal — recording artist and Broadway star who believes in families educating themselves as best as they can about food allergies.[18]
  • Ming Tsai — worked extensively with FARE to advocate for individuals with food allergies in restaurants.[19]
  • Trace Adkins — country music star who served as the 2010 National Honorary Chair for FARE's Walk for Food Allergy.

In 2010, 37 states recognized Food Allergy Awareness Week,[20] an initiative FARE began in 1998, with official proclamations. The organization has also raised awareness through numerous newspaper and magazine articles, television reports, and fundraising events across the U.S., such as the Walk for Food Allergy: Moving Toward a Cure.[21]

Advocacy

Teal Pumpkin Flyer on display at a house in San Francisco

FARE advocates for national, state and local policies that have a positive impact on members of the food allergy community. On the national level, FARE was instrumental in passing the Food Allergen Labeling and Consumer Protection Act (FALCPA) over the objections of large food manufacturers,[22] in 2004. As a result of FALCPA, the presence of major food allergens (milk, egg, wheat, soy, fish, shellfish, peanuts, and tree nuts) must be indicated, in simple terms, on packaged food items. At the state level, FARE has helped enact policies in more than 30 states that make epinephrine (adrenaline) more available from Emergency Medical Services, has helped create food allergy management guidelines for schools in more than ten states,[23] and spearheaded a new law in Massachusetts designed to help raise awareness of food allergy among restaurant staff.[24] On a local level, FARE has helped summer camps, child care centers, recreational facilities, colleges/universities, and public/private schools develop policies and approaches with the food allergy community in mind.

In 2014, FARE started the Teal Pumpkin Project, where families participating in Halloween signal that they have alternative treats available for people with allergies by placing a teal pumpkin or a flyer from the FARE website at their door.

The Food Allergy & Anaphylaxis Alliance

FARE is the founding member of the Food Allergy & Anaphylaxis Alliance,[25] an international alliance of patient education groups that collaborate on food allergy issues from a more global perspective. In 2010, the Alliance held its tenth annual meeting, and attracted participation from both the World Health Organization and the World Allergy Organization. Currently, the Alliance comprises 14 members representing 13 countries.

See also

References

  1. ^ "Anaphylaxis - Symptoms and causes". Mayo Clinic. Retrieved 2022-07-11.
  2. ^ Gupta, Ruchi S.; Warren, Christopher M.; Smith, Bridget M.; Jiang, Jialing; Blumenstock, Jesse A.; Davis, Matthew M.; Schleimer, Robert P.; Nadeau, Kari C. (2019-01-04). "Prevalence and Severity of Food Allergies Among US Adults". JAMA Network Open. 2 (1): e185630–e185630. doi:10.1001/jamanetworkopen.2018.5630. ISSN 2574-3805.
  3. ^ Gupta, Ruchi S.; Warren, Christopher M.; Smith, Bridget M.; Blumenstock, Jesse A.; Jiang, Jialing; Davis, Matthew M.; Nadeau, Kari C. (2018-12-01). "The Public Health Impact of Parent-Reported Childhood Food Allergies in the United States". Pediatrics. 142 (6): e20181235. doi:10.1542/peds.2018-1235. ISSN 0031-4005.
  4. ^ Bureau, US Census. "National Population Totals and Components of Change: 2010-2019". Census.gov. Retrieved 2022-07-11.
  5. ^ "About Us - Food Allergy Safety & Education | FARE". www.foodallergy.org. Retrieved 2022-07-11.
  6. ^ "Leading Food Allergy Organizations Announce Completion of Merger and Introduce New Name". www.businesswire.com. 2012-11-12. Retrieved 2022-07-12.
  7. ^ "10th Anniversary Celebration | Food Allergy Research & Education". www.foodallergy.org. Retrieved 2022-07-12.
  8. ^ "FARE Clinical Network | Food Allergy Research & Education". www.foodallergy.org. Retrieved 2022-07-12.
  9. ^ Food Allergy Research & Education (2022-01-22). "The FARE Patient Registry: A Registry for the Food Allergy Community". {{cite journal}}: Cite journal requires |journal= (help)
  10. ^ "Cincinnati Children's to House Food Allergy Biobank and Biomarker Discovery Center". Research Horizons. Retrieved 2022-07-12.
  11. ^ "In the News: Tetralogy of Fallot Strategies, Pediatric Stroke and SARS-CoV-2, Oxygen Therapy Timing". www.research.chop.edu. Retrieved 2022-07-12.
  12. ^ Du Toit, George; Roberts, Graham; Sayre, Peter H.; Bahnson, Henry T.; Radulovic, Suzana; Santos, Alexandra F.; Brough, Helen A.; Phippard, Deborah; Basting, Monica; Feeney, Mary; Turcanu, Victor (2015-02-26). "Randomized Trial of Peanut Consumption in Infants at Risk for Peanut Allergy". New England Journal of Medicine. 372 (9): 803–813. doi:10.1056/NEJMoa1414850. ISSN 0028-4793. PMC 4416404. PMID 25705822.{{cite journal}}: CS1 maint: PMC format (link)
  13. ^ National Institute of Allergy and Infectious Diseases (January 5, 2017). ""Addendum Guidelines for the Prevention of Peanut Allergy in the United States: Report of the NIAID-Sponsored Expert Panel"" (PDF). niaid.nih.gov. Retrieved July 12, 2022.{{cite web}}: CS1 maint: url-status (link)
  14. ^ FARE Media Center Archived 29 December 2010 at the Wayback Machine
  15. ^ Awareness Archived 29 December 2010 at the Wayback Machine
  16. ^ Frank Dicopoulos Archived 29 December 2010 at the Wayback Machine
  17. ^ Dodd Family Connection Archived 30 December 2010 at the Wayback Machine
  18. ^ Adam Pascal Archived 16 January 2011 at the Wayback Machine
  19. ^ Ming Tsai Archived 29 December 2010 at the Wayback Machine
  20. ^ Food Allergy Awareness Week Archived 11 August 2010 at the Wayback Machine
  21. ^ FAAN Walk for Food Allergy Archived 29 December 2010 at the Wayback Machine
  22. ^ Food Allergen Labeling and Consumer Protection Act of 2004 Archived 28 May 2009 at the Wayback Machine
  23. ^ Statewide Guidelines for Schools Archived 30 December 2010 at the Wayback Machine
  24. ^ Massachusetts Food Allergy Awareness in Restaurants Archived 7 January 2010 at the Wayback Machine
  25. ^ FAAA Goals & Accomplishments Archived 29 December 2010 at the Wayback Machine

External links

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