Lorenzo Odone
| Lorenzo Odone | |
|---|---|
| Born | May 29, 1978 |
| Died | May 30, 2008 (aged 30) |
| Nationality | American |
| Known for | Adrenoleukodystrophy patient |
Lorenzo Michael Murphy Odone (May 29, 1978 – May 30, 2008) was an American adrenoleukodystrophy (ALD) patient whose parents, Augusto and Michaela Odone, sought a treatment for the disease and invented Lorenzo's oil.[1]
He was also the subject of the 1992 film Lorenzo's Oil which starred Nick Nolte and Susan Sarandon.[2] Additionally, Phil Collins translated a poem written by Michaela to Lorenzo to music for the song "Lorenzo" in his 1996 album Dance into the Light.
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[edit] Quest for a treatment
At that time there was not a lot of information available about this disease, let alone a treatment. His parents therefore decided to take matters into their own hands, and began researching myelin and adrenoleukodystrophy. They eventually invented "Lorenzo's oil", which they hoped would stop the progress of the disease. It is a mixture of olive and rapeseed oil.
[edit] Death
Lorenzo died at his home in Fairfax, Virginia on May 30, 2008, one day after his 30th birthday due to complications of aspiration pneumonia, with his father Augusto and his life long friend Oumouri at his side.[3]
[edit] See also
[edit] Further reading
- Kugler, Mary. "ALD and Lorenzo's Oil". About. http://rarediseases.about.com/cs/ald/a/041301.htm. Retrieved 2006-06-03.
- Vedantam, Shankar. "A Real-Life Sequel to 'Lorenzo's Oil'; After His Death, Scientist's Work May Bear Fruit." The Washington Post. January 28, 2007.
[edit] References
- ^ "Lorenzo Odone Subject of Lorenzo's Oil, the film portraying his parents' quest to cure his degenerative disease". The Telegraph. 01 Jun 2008. http://www.telegraph.co.uk/news/obituaries/2062622/Obituary-Lorenzo-Odone.html. Retrieved 14 June 2010.
- ^ "About Lorenzo, his Parents, and Oumouri". The Myelin Project. http://www.myelin.org/en/cms/?15. Retrieved 2010-01-02.
- ^ "Obituaries: Lorenzo Odone". The Telegraph. 01 Jun 2008. http://www.telegraph.co.uk/news/obituaries/2062622/Obituary-Lorenzo-Odone.html. Retrieved 05 September 2011.
[edit] External links
- Lorenzo Odone at Find a Grave
- Lorenzo Odone - Daily Telegraph obituary
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