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Orla Tinsley is an Irish campaigner, author and journalist from Co.Kildare in Ireland.
Orla Tinsley is an Irish campaigner, author and journalist. In 2005 at the age of 18 she began writing for The Irish Times on the state of Cystic Fibrosis care in Ireland. Her work launched a lengthy nation-wide campaign to improve healthcare services and awareness of cystic fibrosis. In 2008 she was named Rehab Young Person of the Year for her work. In 2009 she received the Irish Tatler Woman of the Year award and in 2010 Irish Medical Journalist of the Year.
In 2011 Ms Tinsley reported on a special documentary for RTE's flagship current affairs programme Prime Time on the journey, triumph's and failures of the eight year campaign.
That same year her bestselling memoir 'Salty Baby' was published. It was shortlisted for Best Newcomer at the Irish Book Awards and Tinsley was also shortlisted as Young Journalist of the Year.
The Adult Cystic Fibrosis unit that Ms. Tinsley campaigned for along with many of her friends opened. Since 2012 she has focused on transgender rights and in 2013 was named Journalist of the Year by the Irish Gay and Lesbian Association.



In 2013 Ms Tinsley was one of the first people in the world to be treated with a new Cystic Fibrosis drug by Vertex which changed her prognosis. The drug improves lung function and health for people with CF. She now lives in New York City and is a student at Columbia University.
=== ACTIVISM ===
In 2005 at the age of 18 Tinsley began writing for ''The Irish Times'' on the state of Cystic Fibrosis care in Ireland. Her work launched a lengthy campaign to improve healthcare services and awareness of cystic fibrosis in Ireland. The campaign spanned several years and was a nationwide community effort sustained by the stories and energy of people with CF and their families and communities around Ireland.


In 2008 Ms Tinsley was named Rehab Young Person of the Year for her work.
In 2009 she received the Irish Tatler Woman of the Year award and in 2010 Irish Medical Journalist of the Year.
In 2011 Ms Tinsley presented a special documentary for Radio Telefis Eireann's flagship current affairs programme ''Prime Time'' to apply pressure for building to begin at St Vincent Hospital.

=== Memoir ===
In 2011 her bestselling memoir 'Salty Baby' was published. It was shortlisted for Best Newcomer at the Irish Book Awards. She was also shortlisted for Young Journalist of the Year at the ''Irish Newspaper Awards'' in both 2011 and again in 2012.
.
=== RESULT ===
The Adult Cystic Fibrosis unit that Ms. Tinsley campaigned for along with many of her friends opened in July 2012. The 100 bed ward block has isolation rooms that treat people with CF and other illnesses that need isolation like cancer and infectious diseases.

=== TRANSGENDER RIGHTS ===
Since 2012 she Ms Tinsley focused on transgender rights and in 2013 was named Broadcaster and Journalist of the Year by the Irish Gay and Lesbian Association. That same year she launched a campaign to get Kalydeco into Ireland after the national centre for pharmacoeconomics rejected it on a cost basis. The drug, made by Vertex, is the first to treat the cause of cystic fibrosis and not just the symptoms. In Feburary 2013 the Minister for Health announced that the drug would be made available.

In 2014 Ms Tinsley began writing a column for ''The Irish Independent'' and that same year she was a guest speaker at the European Cystic Fibrosis Conference in Sweden.

Since late 2013 Ms Tinsley is one of the first people in the world to be treated by the second new Cystic Fibrosis drug Orkambi by Vertex which treats the most common mutation of CF. The drug has proven to improve lung function and health for people with CF.

=== NEW YORK CITY ===
In 2014 Ms Tinsley announced on ''Saturday Night with Miriam'' that she had been awarded a scholarship to the Writing Program at Columbia University.
She now lives in New York City.

Revision as of 00:22, 28 May 2015

Orla Tinsley is an Irish campaigner, author and journalist from Co.Kildare in Ireland.


ACTIVISM

In 2005 at the age of 18 Tinsley began writing for The Irish Times on the state of Cystic Fibrosis care in Ireland. Her work launched a lengthy campaign to improve healthcare services and awareness of cystic fibrosis in Ireland. The campaign spanned several years and was a nationwide community effort sustained by the stories and energy of people with CF and their families and communities around Ireland.


In 2008 Ms Tinsley was named Rehab Young Person of the Year for her work. In 2009 she received the Irish Tatler Woman of the Year award and in 2010 Irish Medical Journalist of the Year. In 2011 Ms Tinsley presented a special documentary for Radio Telefis Eireann's flagship current affairs programme Prime Time to apply pressure for building to begin at St Vincent Hospital.

Memoir

In 2011 her bestselling memoir 'Salty Baby' was published. It was shortlisted for Best Newcomer at the Irish Book Awards. She was also shortlisted for Young Journalist of the Year at the Irish Newspaper Awards in both 2011 and again in 2012. .

RESULT

The Adult Cystic Fibrosis unit that Ms. Tinsley campaigned for along with many of her friends opened in July 2012. The 100 bed ward block has isolation rooms that treat people with CF and other illnesses that need isolation like cancer and infectious diseases.

TRANSGENDER RIGHTS

Since 2012 she Ms Tinsley focused on transgender rights and in 2013 was named Broadcaster and Journalist of the Year by the Irish Gay and Lesbian Association. That same year she launched a campaign to get Kalydeco into Ireland after the national centre for pharmacoeconomics rejected it on a cost basis. The drug, made by Vertex, is the first to treat the cause of cystic fibrosis and not just the symptoms. In Feburary 2013 the Minister for Health announced that the drug would be made available.

In 2014 Ms Tinsley began writing a column for The Irish Independent and that same year she was a guest speaker at the European Cystic Fibrosis Conference in Sweden.

Since late 2013 Ms Tinsley is one of the first people in the world to be treated by the second new Cystic Fibrosis drug Orkambi by Vertex which treats the most common mutation of CF. The drug has proven to improve lung function and health for people with CF.

NEW YORK CITY

In 2014 Ms Tinsley announced on Saturday Night with Miriam that she had been awarded a scholarship to the Writing Program at Columbia University. She now lives in New York City.