Talk:Hyperacusis

I

I added a symptoms list but am very new to wikipedia. My information came from:

http://www.hyperacusis-tinnitus.com/hyperacusis-symptoms.html

and

http://www.vestibular.org/vestibular-disorders/specific-disorders/vestibular-hyperacusis.php

If the information needs to be cited can someone please take care of that? I'm sorry to be such a newb.

advocacy

I think there should be a section added about advocacy of Hyperacusis. Not everyone can cure it. I don't see why it's so difficult for people to comprehend the concept of, what is not considered so loud for you is extremely loud to me. Especially when it comes to sitting near chidren. I see ads for Fybromialgyia as saying "If you could see how I'm hurting, would you care?" Apperantly there's no room for that type of sympathy when it comes to Hyperacusis. Just, "Grin and bear it, listen to Pink Noise, and hope that works."

I don't ask for much, just not to sit down near a family of small children at a resturant so I won't have to cover my ears. Why is that so freaking difficult? It'd be different if I expected everyone around me to shut up. I don't think Hyperacusis would be ignored as an issue, if it weren't for that it means people don't want to be around the precious children.

Perhaps people don't understand the concept of disability:

I cannot change this.

Is it really that so many people are so selfish, as to not cause another person suffering, when it requires such small effort on their part? In fact the whole invisble disability thing. You know what, if I say this causes me problems, I don't do it for fun. Who would? Someone who enjoys having people assume the reason they have an issue with noise is a "retard". Or a person who likes that people don't belive they have a problem with loud noise, until they scream to block the noise out and then most certainly, are considered to be a "retard" by most people. Is that really the only option? To act "retarded" to get people to belive you?

I think people in the Hyperacusis community need to stop acting as if their only option is to try and make their invisible disability more convenient for others. I'm sorry, I don't see how listening to Pink Noise is going to magically make me not jump when I hear a balloon pop. We have to speak up on behalf of ourselves, like people with Fibromyalgia. They don't say, "Well I'll just have to put up with the pain when people touch me."

I'm sorry it's such a huge inconvenience for people to realize, that not everyone with a disability is in a wheelchair, or has their arms curled up and are drooling. That's part of being an adult, realizing that you can't judge everything just by sight alone. Although between this and the prevailing sizeism in our country, it seems there are alot of adults out there very comfortable in perceiving people like a small child would. Violet yoshi (talk) 13:11, 28 March 2008 (UTC)

I thought it'd be a good idea to mention this under this section, I appreciate this part of the symptoms section:

"A person suffering from hyperacusis might be startled by very low sound levels. Everyday sounds like shutting doors, ringing phones, running water, cooking, normal conversation and many others will hurt his/her ears. In extreme situations even the use of earplugs fails to bring relief and the patient may spend his life trying to avoid all sounds and just stay at home."

That's exactly how it is, I'm glad someone was able to communicate this in terms, I was unable to do myself due to the emotional impact I have from being misunderstood constantly with regards to the above experience. Thank you, to whoever posted that. Violet yoshi (talk) 13:26, 15 June 2009 (UTC)

hyperacusis ? hyperacousis

The first spelling would seem to link to 'acute' while the second would link to 'acoustic'; on the wider web both spellings occur. The slightly larger consensus is for acoustic but there should be a redirect 86.155.91.42 (talk) 16:01, 13 October 2008 (UTC)

Stigma

I think it should be mentioned that people with Hyperacusis, on almost a daily basis, encounter little to no understanding from others for their condition. For example, if a person with Hyperacusis asks to be seated away from noisy children, they usually are made to confront the parent and try to explain this to them, where the parent will attack the person with Hyperacusis claiming they're lying or "looking for attention"

There needs to be more awareness about this, that people who have Hyperacusis cannot choose to not experience pain when it comes to sudden loud noises. It is real pain, that in some cases, can be so severe the person may feel a need to scream from it. White noise & Pink noise can help, but as far as I'm aware there is no cure for Hyperacusis. I find it hard to function as someone with Hyperacusis, in a world where people treat me as if my pain in regards to it is insignificant.

Particularly, parents need to understand this isn't about them, their children, or their parenting abilities. It's a person who doesn't want to disturb their children, who is going out of their way to think of the children first. Only to be called a child hater, or told they know nothing because they aren't a parent. It's also common for parents to yell at the person with Hyperacusis, causing them pain and anxiety. They're only assuring that people with Hyperacusis see parents as agressive, or something to be fearful of, in regards to their Hyperacusis. I also, don't mean this in regards to all parents, but most of the ones I've come across have had this attitude that I must be lying for attention, when I have a real condition that can cause me real pain.Violet yoshi (talk) 18:50, 16 June 2009 (UTC)