Friedreich's Ataxia Research Alliance
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| Founded | 1998 |
|---|---|
| Founders | Ronald J Bartek, Raychel Bartek |
| Legal status | 501(c)(3) nonprofit organization |
| Services | Grantmaking for medical research; public awareness and education |
Revenue (2016) | $5,381,493[1] |
| Expenses (2016) | $5,553,164[1] |
| Website | www |
The Friedreich's Ataxia Research Alliance (FARA) is a non-profit organization dedicated to curing Friedreich's ataxia and the related sporadic ataxias. Established in 1998, FARA supports basic and translational research, pharmaceutical/biotech drug development, clinical trials, and scientific conferences. It facilitates dialogue between the public and scientific community worldwide and promotes exchanges of information that drive medical advances.[2][3][4]
The turnover of FARA in 2016 was circa $5 million with 86.4% spent on research grants, 3.7% on education, awareness, and outreach programs, and 1.9% on conferences. FARA hs received a Four Star rating from Charity Navigator for 8 consecutive years.[1]
References
- ^ Medical and Health Information Directory: A Guide to Organizations, Agencies, Institutions, Programs, Publications, Services, and Other Resources Concerned with Clinical Medicine, Basic Biomedical Sciences, and the Technological and Socioeconomic Aspects of Health Care. Gale Cengage Learning. 2010. ISBN 141446777X.
- ^ https://rarediseases.org/organizations/friedreichs-ataxia-research-alliance/
- ^ http://www.marketwired.com/press-release/friedreichs-ataxia-research-alliance-fara-announces-recipients-2016-ataxian-athlete-2139184.htm
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