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International Lyme and Associated Diseases Society

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The International Lyme and Associated Diseases Society (ILADS, pronounced /ˈaɪlædz/) is a non-profit pressure group[1][2] which advocates for greater acceptance of the controversial and unrecognized diagnosis "chronic Lyme disease".[3] ILADS was formed by advocates for the recognition of "chronic lyme disease" including physicians, patients and laboratory personnel, and has published alternative treatment guidelines and diagnostic criteria[4] due to the disagreement with mainstream consensus medical views on Lyme disease.[1]

ILADS sustains the Controversy as to the existence of "chronic Lyme disease", including advocating for long-term antibiotic treatment, but the existence of persistent borrelia infection is not supported by high quality clinical evidence, and the use of long term antibiotics is dangerous and contradicted.[5] Major US medical authorities, including the Infectious Diseases Society of America,[6] the American Academy of Neurology,[7] and the National Institutes of Health,[8] are careful to distinguish the diagnosis and treatment of "patients who have had well-documented Lyme disease and who remain symptomatic for many months to years after completion of appropriate antibiotic therapy"[6]: 1116  from patients who have not had well-documented Lyme disease; the consensus accepts the existence of post–Lyme disease symptoms in a minority of patients who have had Lyme. The consensus rejects long-term antibiotic treatment even for these patients, as entailing too much risk and lacking sufficient efficacy to subject patients to the risks.[6]: 1115 [7]: 99 [8] The consensus calls for more research into understanding the pathologies that afflict patients with post-Lyme syndrome and into better treatments.

A 2004 article in the Pediatric Infectious Disease Journal on the prevalence of inaccurate online information about Lyme disease cited the ILADS website as a source of such inaccurate material.[9] One source reported that several current and former physician officers of ILADS had been sanctioned by federal agencies or state medical boards.[2]

References

  1. ^ a b Johnson, Michael; Feder, Henry M. (December 2010). "Chronic Lyme Disease: A Survey of Connecticut Primary Care Physicians". The Journal of Pediatrics. 157 (6): 1025–1029.e2. doi:10.1016/j.jpeds.2010.06.031.
  2. ^ a b Auwaerter, P. G.; Bakken, J. S.; Dattwyler, R. J.; Dumler, J. S.; Halperin, J. J.; McSweegan, E.; Nadelman, R. B.; O'Connell, S.; Sood, S. K.; Weinstein, A.; Wormser, G. P. (21 November 2010). "Scientific evidence and best patient care practices should guide the ethics of Lyme disease activism". Journal of Medical Ethics. 37 (2): 68–73. doi:10.1136/jme.2009.032896.
  3. ^ Whelan, David (March 12, 2007). "Lyme, Inc". Forbes. Retrieved July 6, 2009.
  4. ^ "National Guideline Clearinghouse | Evidence assessments and guideline recommendations in Lyme disease: the clinical management of known tick bites, erythema migrans rashes and persistent disease". www.guideline.gov. Archived from the original on 2015-09-23. Retrieved 2015-09-21. {{cite web}}: Unknown parameter |dead-url= ignored (|url-status= suggested) (help)
  5. ^ Feder HM, Johnson BJ, O'Connell S, et al. (October 2007). "A critical appraisal of "chronic Lyme disease"". N. Engl. J. Med. 357 (14): 1422–30. doi:10.1056/NEJMra072023. PMID 17914043.
  6. ^ a b c Wormser GP; Dattwyler RJ; Shapiro ED; et al. (November 2006). "The clinical assessment, treatment, and prevention of lyme disease, human granulocytic anaplasmosis, and babesiosis: clinical practice guidelines by the Infectious Diseases Society of America" (PDF). Clin. Infect. Dis. 43 (9): 1089–1134. doi:10.1086/508667. PMID 17029130.
  7. ^ a b Halperin JJ, Shapiro ED, Logigian E, et al. (July 2007). "Practice parameter: treatment of nervous system Lyme disease (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology". Neurology. 69 (1): 91–102. doi:10.1212/01.wnl.0000265517.66976.28. PMID 17522387.
  8. ^ a b ""Chronic Lyme Disease" Fact Sheet". National Institute of Allergy and Infectious Diseases. September 3, 2015.
  9. ^ Cooper JD, Feder HM (December 2004). "Inaccurate information about lyme disease on the internet" (PDF). Pediatr. Infect. Dis. J. 23 (12): 1105–8. doi:10.1097/01.inf.0000145411.57449.f3. PMID 15626946.
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