List of patient-reported quality of life surveys

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This page lists patient-reported quality of life surveys used in the field of medicine, pharmaceuticals, and other scientific trials. These surveys are patient-reported outcome measures, may be questionnaires or surveys, and may be used to evaluate patient satisfaction, symptoms, disease state, or psychological well-being.


  1. The Adult Asthma Quality of Life Questionnaire (AQLQ) was developed at McMaster University in Ontario, Canada and was published in 1992.[15] It has since been used as a comparison tool[16] as well as a tool in clinical trials.[17][18]
  2. The Asthma Life Impact Scale (ALIS) measure was developed in 2010 by Galen Research.[19] It has been translated into 16 languages.[20]
  1. The Parents’ Index of Quality of Life in Atopic Dermatitis (PiQOL-AD) measures the impact that atopic dermatitis has on quality of life, from the parents’ perspective.[21] It has 28 items and was developed simultaneously in the United Kingdom, The Netherlands, Germany, Italy, Spain, France and the United States.[22] It has been utilised in several research studies investigating the treatment of paediatric atopic dermatitis with pimecrolimus.[23][24][25] and also in a research study regarding health-related quality of life measurement in children in Ibero-American countries.[26]
  2. The Quality of Life Index for Atopic Dermatitis (QoLIAD) measures the impact that atopic dermatitis has on a given patient’s quality of life.[27] It is a 25 item questionnaire for patients over the age of 16.[28] The QoLIAD has also been utilized in studies looking into educational intervention,[29][30] topical corticosteroids[31] and pimecrolimus.[32]
  1. The Quality of Well-Being Scale (QWB) was developed in the 1970s, and a self-administered version called the QWB-SA was published in 1996.[59] The QWB has been used in studies investigating HIV patients[60][61] and musculoskeletal disease,[62] amongst others.
  2. The EQ-5D is a generalised health-related quality of life measure which was developed in 1991 by the EuroQol Group.[63] It has five standard dimensions and has been translated into over 60 languages.[64] The EuroQoL has been extensively used in clinical trials, investigating a range of topics including overactive bladder,[65] attention deficit hyperactivity disorder[66] and denosumab for osteoporosis.[67]
  3. The Nottingham Health Profile (NHP) is a general patient-reported outcome designed to measure a patient’s view of their own health status, in a number of areas.[68] It can be completed in 5 minutes.[69] It was developed in 1975 and current copyright belongs to Galen Research.[70] Clinical research studies where the NHP has been utilized include investigations into erythropoiesis-stimulating agents,[71] glucocorticoid replacement therapy[72] and transcutaneous electrical nerve stimulation for tinnitus.[73]
  4. The Short Form 36 (SF-36) Health Survey is a survey of general health developed by the RAND corporation.[74] It was designed for use in clinical practice, research, health policy evaluations and population surveys.[75] It has been used in numerous studies including ones investigating giardia intestinalis,[76] breast cancer survivors[77] and Parkinson's disease.[78]
  5. The Sickness Impact Profile (SIP) was developed in 1997 by the Johns Hopkins University.[79] It consists of 136 items and has been adapted for strokes,[80] patients with ileal urinary diversions[81] and ex-ICU patients.[82]
  6. The Health Utilities Index measures health status, health-related quality of life and produces utility scores.[83] It was developed by Health Utilities Inc. in Canada.[84] It has been used in clinical studies investigating knee osteoarthritis,[85] urinary incontinence[86] and children who have been admitted to intensive care.[87]
  1. The Herpes Outbreak Impact Questionnaire (HOIQ) is designed to determine the impact of recurrent genital herpes outbreaks on a patient’s life.[88] Its efficacy has been tested in an Australian clinical trial.[89]
  2. The Herpes Symptom Checklist (HSC) was developed alongside the HOIQ in order to assess daily symptoms of genital herpes outbreaks.[90] It was also used in an Australian clinical trial which tested the effectiveness of famciclovir.[91]
  3. The Recurrent genital herpes quality of life measure (RGHQoL) was developed in 1998 by Galen Research in order to assess the impact recurrent genital herpes has on quality of life.[92] It has been used in clinical trials investigating famciclovir,[93] suppressive antiviral therapy[94] and patient perspectives and quality of life.[95][96]


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  2. ^ Clinical trial number NCT00428090 for "Rosiglitazone (Extended Release Tablets) As Monotherapy In Subjects With Mild To Moderate Alzheimer's Disease" at
  3. ^ Clinical trial number NCT00348309 for "Rosiglitazone (Extended Release Tablets) As Adjunctive Therapy For Subjects With Mild To Moderate Alzheimer's Disease (REFLECT-2)" at
  4. ^ Clinical trial number NCT00348140 for "Rosiglitazone (Extended Release Tablets) As Adjunctive Therapy In Subjects With Mild To Moderate Alzheimer's Disease (REFLECT-3)" at
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  7. ^ Jitta, D.J.; DeJongste, M.J.; Kliphuis, C.M.; Staal, M.J. (2011). "Multimorbidity, the predominant predictor of quality-of-life, following successful spinal cord stimulation for angina pectoris.". Neuromodulation. 14 (1): 13–18. PMID 21992156. doi:10.1111/j.1525-1403.2010.00321.x. 
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  10. ^ Doward, L C; Spoorenberg, A; Cook, SA; Whalley, D; Helliwell, PS; Kay, LJ; McKenna, SP; Tennant, A; Van Der Heijde, D; Chamberlain, MA (2003). "Development of the ASQoL: A quality of life instrument specific to ankylosing spondylitis". Annals of the Rheumatic Diseases. 62 (1): 20–6. PMC 1754293Freely accessible. PMID 12480664. doi:10.1136/ard.62.1.20. 
  11. ^ Van Der Heijde, Désirée M; Revicki, Dennis A; Gooch, Katherine L; Wong, Robert L; Kupper, Hartmut; Harnam, Neesha; Thompson, Chris; Sieper, Joachim (2009). "Physical function, disease activity, and health-related quality-of-life outcomes after 3 years of adalimumab treatment in patients with ankylosing spondylitis". Arthritis Research & Therapy. 11 (4): R124. doi:10.1186/ar2790. 
  12. ^ Davis, John C.; Revicki, Dennis; Van Der Heijde, Désirée M. F.; Rentz, Anne M.; Wong, Robert L.; Kupper, Hartmut; Luo, Michelle P. (2007). "Health-related quality of life outcomes in patients with active ankylosing spondylitis treated with adalimumab: Results from a randomized controlled study". Arthritis & Rheumatism. 57 (6): 1050–1057. doi:10.1002/art.22887. 
  13. ^ Marzo-Ortega, Helena; McGonagle, Dennis; O'Connor, Philip; Emery, Paul (2001). "Efficacy of etanercept in the treatment of the entheseal pathology in resistant spondylarthropathy: A clinical and magnetic resonance imaging study". Arthritis & Rheumatism. 44 (9): 2112–2117. doi:10.1002/1529-0131(200109)44:9<2112::AID-ART363>3.0.CO;2-H. 
  14. ^ Marzo-Ortega, H; McGonagle, D; Haugeberg, G; Green, MJ; Stewart, SP; Emery, P (2003). "Bone mineral density improvement in spondyloarthropathy after treatment with etanercept". Annals of the Rheumatic Diseases. 62 (10): 1020–1. PMC 1754338Freely accessible. PMID 12972490. doi:10.1136/ard.62.10.1020. 
  15. ^ Juniper, E.F.; Guyatt, G.H.; Epstein, R.S.; Ferrie, P.J.; Jaeschke, R.; Hiller, T.K. (1992). "Evaluation of impairment of health related quality of life in asthma: development of a questionnaire for use in clinical trials". Thorax. 47 (2): 76–83. PMC 463574Freely accessible. PMID 1549827. doi:10.1136/thx.47.2.76. Retrieved 25 November 2013. 
  16. ^ Kim, M.A.; Ye, Y.M.; Park, J.W.; Lee, J.H.; Lee, S.K.; Kim, C.W.; Jung, K.S.; Kim, J.H.; Yoo, H.S.; Kim, S.H; Shin, Y.S; Nahm, D.H.; Park, H.S. (2013). "A Computerized Asthma-Specific Quality of Life: A Novel Tool for Reflecting Asthma Control and Predicting Exacerbation". International Archives of Allergy and Immunology. 163 (1): 36–42. PMID 24247849. doi:10.1159/000356336. Retrieved 25 November 2013. 
  17. ^ Cano Fuentes, G.; Dastis Bendala, C; Morales Barroso, I; Manzanares Torne, M.L.; Fernandez Gregorio, A.; Martin Romana, L.; Morales Barroso, I; Manzanares Torné, M. L.; Fernández Gregorio, A; Martín Romana, L (2013). "A randomised clinical trial to evaluate the effectiveness of an educational intervention developed for adult asthmatics in a primary care centre". Atencion primaria. 46 (3): 117–39. PMID 24176681. doi:10.1016/j.aprim.2013.04.005. 
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  19. ^ Meads, David M.; McKenna, Stephen P.; Doward, Lynda C.; Pokrzywinski, Robin; Revicki, Dennis; Hunter, Cameron; Glendenning, G. Alastair (2010). "Development and validation of the Asthma Life Impact Scale (ALIS)". Respiratory Medicine. 104 (5): 633–43. PMID 20053543. doi:10.1016/j.rmed.2009.11.023. 
  20. ^ Crawford, SR. "Further Developments of the Asthma Life Impact Scale (ALIS)" (PDF). Galen Research. Retrieved 14 October 2013. 
  21. ^ Arnold, RJG; Zhou, Y; Wong, KS; Sung, J (2005). "Psk8 Impact of Atopic Dermatitis on the Quality-Of-Life of Parents of Children with Atopic Dermatitis". Value in Health. 8 (3): 332. doi:10.1016/S1098-3015(10)62872-0. 
  22. ^ McKenna, Stephen P.; Whalley, Diane; Dewar, Abigail L.; Erdman, Ruud A. M.; Kohlmann, Thomas; Niero, Mauro; Baró, Eva; Cook, Sharon A.; Crickx, Beatrice; Frech, Feride; Van Assche, Daniel van (2005). "International development of the Parents' Index of Quality of Life in Atopic Dermatitis (PIQoL-AD)". Quality of Life Research. 14 (1): 231–41. PMID 15789957. doi:10.1007/s11136-004-4231-z. 
  23. ^ McKenna, SP; Whalley, D; De Prost, Y; Staab, D; Huels, J; Paul, CF; Van Assche, D (2006). "Treatment of paediatric atopic dermatitis with pimecrolimus (ElidelR, SDZ ASM 981): Impact on quality of life and health-related quality of life". Journal of the European Academy of Dermatology and Venereology. 20 (3): 248–54. PMID 16503881. doi:10.1111/j.1468-3083.2006.01383.x. 
  24. ^ Wahn, U.; Bos, J. D.; Goodfield, M.; Caputo, R.; Papp, K.; Manjra, A.; Dobozy, A.; Paul, C.; Molloy, S.; Hultsch, T.; Graeber, M.; Cherill, R.; De Prost, Y.; Flare Reduction in Eczema with Elidel (Children) Multicenter Investigator Study Group (2002). "Efficacy and Safety of Pimecrolimus Cream in the Long-Term Management of Atopic Dermatitis in Children". Pediatrics. 110 (1 Pt 1): e2. PMID 12093983. doi:10.1542/peds.110.1.e2. 
  25. ^ Kapp, Alexander; Papp, Kim; Bingham, Ann; Fölster-Holst, Regina; Ortonne, Jean-Paul; Potter, Paul C.; Gulliver, Wayne; Paul, Carle; Molloy, Stephen; Barbier, Nathalie; Thurston, Mark; De Prost, Yves; Flare Reduction in Eczema with Elidel (infants) multicenter investigator study group (2002). "Long-term management of atopic dermatitis in infants with topical pimecrolimus, a nonsteroid anti-inflammatory drug". Journal of Allergy and Clinical Immunology. 110 (2): 277–84. PMID 12170269. doi:10.1067/mai.2002.126500. 
  26. ^ Rajmil, Luis; Roizen, Mariana; Psy, Alfonso Urzúa; Hidalgo-Rasmussen, Carlos; Fernández, Gabriela; Dapueto, Juan José; Working Group on HRQOL in Children in Ibero-American Countries (2012). "Health-Related Quality of Life Measurement in Children and Adolescents in Ibero-American Countries, 2000 to 2010". Value in Health. 15 (2): 312–22. PMID 22433763. doi:10.1016/j.jval.2011.11.028. 
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  28. ^ Ehlken, B; Kugland, B; Schramm, B; Quednau, K; Berger, K (2003). "Psn12 Quality-Of-Life in Patients Suffering from Atopic Dermatitis in Germany". Value in Health. 6 (6): 787–788. doi:10.1016/S1098-3015(10)62005-0. 
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