Neuroblastoma Children's Cancer Alliance UK
 | |
| Abbreviation | Neuroblastoma Alliance UK |
|---|---|
| Formation | 2006 |
| Type | Charity |
Chief Executive | Nathan bond |
| Website | http://www.ncca-uk.org/ |
The Neuroblastoma Children's Cancer Alliance UK, commonly referred to as NCCA UK, is a UK charity that helps children and families affected by neuroblastoma, a type of childhood cancer. The charity helps families by helping them to access and fundraise for their child's treatment abroad when no treatment is available in the UK, offering support and funding research into the condition.[1]
History
The charity was set up in April 2006 as the 2Simple Trust. The charity initially had broad aims, but the trustees decided to focus on helping children with neuroblastoma after learning about the potential to save children's lives from a parent, Yvonne Brown, whose son Jack was diagnosed with the disease.[2]
Despite receiving pioneering treatment abroad that his parents had fundraised for, Jack Brown died in 2009.[3] The charity has continued its work with families affected by neuroblastoma and by January 2013 had funded treatment for 21 children abroad.[4]
In 2011, the charity rebranded as the Neuroblastoma Children's Cancer Alliance UK, which is abbreviated to NCCA UK.[2]
Neuroblastoma Alliance UK's work
Financial assistance for treatment
The Neuroblastoma Alliance UK helps families access and fundraise for their child's treatment abroad. Various new treatments for neuroblastoma are being trialled in the UK, but if children do not meet the criteria for a trial, or need treatment that is only available abroad, families have to pay for their child's treatment abroad.[1]
The costs of treatment abroad vary from around £80,000 for treatment in Germany [5] to more than £300,000 for treatment in the United States.[6]
The charity has a number of appeals for children that are fundraising to receive treatment abroad.[4] Some of the families supported by the charity have attracted high profile media and celebrity support for their fundraising campaigns.[6][7][8][9]
Support for families
The charity helps families affected by neuroblastoma by putting them in touch with other families that have gone through a similar situation.[10] It also holds events for parents so they can meet other families and learn more about advances in research and treatment.[4]
Research
The NCCA UK has funded research, including a project at University College Hospital, London, which aims to improve radiation treatments for patients with neuroblastoma.[11][12]
See also
- The Neuroblastoma Society
- Help Fight Childhood Cancer
- Band of Parents
- CLIC Sargent
- Children With Leukaemia
- Leukaemia & Lymphoma Research
References
- ^ a b Neuroblastoma Alliance UK website, About us
- ^ a b "Hendon charity helping families affected by childhood cancer neuroblastoma rebrands". Hendon Central News.
- ^ Roberts, Alison (29 July 2009). "After four years our son couldn't fight cancer any more". London Evening Standard.
- ^ a b c Neuroblastoma Alliance UK website, Your appeal with us
- ^ Neuroblastoma Alliance UK website, Aarin Bhatt appeal
- ^ a b Dolan, Andy (31 January 2011). "The twin facing a £300,000 battle to stay alive (while her sister is perfectly healthy)". Mail Online.
- ^ Wighton, Kate (17 June 2010). "Fry's tweetment for cancer kids". The Sun.
- ^ Bendoris, Matt (26 November 2009). "Time is running out for our little fighter". The Sun.
- ^ Bird, Nick (29 June 2010). "Our fight for a cure for Adam's cancer". Express.co.uk.
- ^ Neuroblastoma Alliance UK website, Contact us
- ^ Neuroblastoma Alliance UK website, Research
- ^ The Journal of Nuclear Medicine