Hearing Health Foundation: Difference between revisions
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'''Hearing Health Foundation''' is an organization created to promote awareness in the prevention and cure of hearing loss through groundbreaking research, founded in 1958 by Collette Ramsey-Baker (1918-2010) with the name Deafness Research Foundation. It is America’s leading source of private funding for research into the science of hearing and balance. The primary aims of the foundation are to promote the awareness in the prevention of [[noise induced hearing loss]], provide seed money to fund research of hearing and balance science and cure hearing loss through the Hearing Restoration project. The foundation is based in New York City, New York. It had an endowment of over US$26 million as of 2010. Since 1958, Hearing Health Foundation has awarded approximately 2,000 grants totaling over $26.5 million through the Emerging Research Grants program.<ref>Foundation Center http://dynamodata.fdncenter.org/990s/990search/ffindershow.cgi?id=DEAF003</ref> In 2011, the Deafness Research Foundation changed its name to Hearing Health Foundation and announced the Hearing Restoration Project. <ref>Deafness Research Foundation Announces New Name http://www.prnewswire.com/news-releases/deafness-research-foundation-announces-new-name-and-reaffirms-its-unwavering-dedication-to-the-prevention-research-and-cure-for-hearing-loss-129803073.html</ref> |
'''Hearing Health Foundation''' is an organization created to promote awareness in the prevention and cure of hearing loss through groundbreaking research, founded in 1958 by Collette Ramsey-Baker (1918-2010) with the name Deafness Research Foundation. It is America’s leading source of private funding for research into the science of hearing and balance. The primary aims of the foundation are to promote the awareness in the prevention of [[noise induced hearing loss]], provide seed money to fund research of hearing and balance science and cure hearing loss through the Hearing Restoration project. The foundation is based in New York City, New York. It had an endowment of over US$26 million as of 2010. Since 1958, Hearing Health Foundation (HHF) has awarded approximately 2,000 grants totaling over $26.5 million through the Emerging Research Grants program.<ref>Foundation Center http://dynamodata.fdncenter.org/990s/990search/ffindershow.cgi?id=DEAF003</ref> In 2011, the Deafness Research Foundation changed its name to Hearing Health Foundation and announced the Hearing Restoration Project. <ref>Deafness Research Foundation Announces New Name http://www.prnewswire.com/news-releases/deafness-research-foundation-announces-new-name-and-reaffirms-its-unwavering-dedication-to-the-prevention-research-and-cure-for-hearing-loss-129803073.html</ref> |
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Since it’s inception, the work of HHF’s grantees has led to many of today’s standard treatments for hearing loss, such as [[cochlear implants]], treatments for ear infections and surgical therapy for [[otosclerosis]]. HHF’s grantees have become leaders in hearing research, with many receiving important federal grants. Former grantees make up 20 percent of recipients of the prestigious Association for Research in Otolaryngology Award of Merit (1). |
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== History == |
== History == |
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In celebration of the 50th Anniversary, the DFR rang the opening bell at the New York Stock Exchange in 2008.<ref>Opening Bell NYSE http://hearinghealthfoundation.org/timeline#</ref> |
In celebration of the 50th Anniversary, the DFR rang the opening bell at the New York Stock Exchange in 2008.<ref>Opening Bell NYSE http://hearinghealthfoundation.org/timeline#</ref> |
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The organization decided to change its name from The Deafness Research Foundation to Hearing Health Foundation to better communicate the foundation’s mission of helping to prevent, research and cure hearing loss. In September 14, 2011 the Chair of the Board, Clifford P. Tallman, Jr., announced the name change of the DFR to Hearing Health Foundation and presented a new research consortium, the Hearing Restoration Project. "The name Deafness Research Foundation served us well," explained Tallman. "Our research, however, showed that 'deafness' is an outdated term and now has a different connotation from how we were initially using it. Over the last half-century, we have done important work. Our new name reflects our determination to change the social stigma tied to hearing loss and to fund new and promising research that may bring a cure for hearing loss to the public." |
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Source: PR Newswire (http://s.tt/1bFEJ) <ref>Deafness Research Foundation Announces New Name http://www.prnewswire.com/news-releases/deafness-research-foundation-announces-new-name-and-reaffirms-its-unwavering-dedication-to-the-prevention-research-and-cure-for-hearing-loss-129803073.html</ref> |
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==Activities== |
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The focus of HHF is hearing and balance research, through the Emerging Research Grants Program and the Hearing Restoration Project(HRP). Bought in 2002, the Hearing Health magazine is a publication of Hearing Health Foundation. |
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Hearing Restoration Project: HHF provides financial assistance and administrative management for The Hearing Restoration Project (HRP). The HRP initiative brings together notable researchers with the goal of researching and developing a genuine cure for most forms of acquired hearing loss by regenerating the inner ear hair cells that enable hearing. HRP aims to raise $50 million ($5 million per year over 10 years) in funding for scientific research towards inner ear hair cell regeneration. |
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Emerging Research Grants Program: HHF has awarded over $26.5 million through more than 2,000 scientific research grants to researchers who are dedicated to exploring new avenues of hearing and balance science. This seed money has led to dramatic innovations that increase options for those living with hearing loss, as well as protecting those at risk. Hearing Health Foundation supports research in the following areas: |
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* Fundamental Auditory Research - development, genetics, molecular biology, physiology, anatomy, and regeneration biology |
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* [[Cochlear implants]] |
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* Surgical therapy for [[otosclerosis]] |
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* [[Hair cell]] regeneration |
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* [[Hearing aid|Hearing aids technology]] |
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* [[Central Auditory Processing Disorder]](CAPD)medical therapy |
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* [[Noise-induced hearing loss]] |
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* [[Presbycusis]] or age-related hearing loss |
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* Viral infections causing [[hearing loss]] |
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* Sudden [[deafness]] |
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* [[Ototoxicity]] or drug-induced hearing loss |
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* [[Temporal bone]] pathology |
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* [[Otitis media]], or ear infections |
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* [[Usher Syndrome]] |
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* Vestibular and Balance Disorders (dizziness and [[vertigo]], [[Meniere's disease]]) |
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* [[Tinnitus]] (ringing in the ears) and |
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* [[Hyperacusis]] (decreased tolerance of sound) |
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==Hearing Health Magazine== |
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Hearing Health Magazine is the ultimate consumer resource on hearing loss and related products. It earned this position over the past 28 years through steadfast dedication from staff, quality contributions, and collaborative support from advertisers. Hearing Health magazine is published quarterly and has a readership of 215,000. The magazine educates individuals about the effects of hearing loss on health and quality of life, and aims to provide real-world solutions based on the latest research and technology. The award winning magazine is the largest on hearing loss. |
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==The Promise of Cell Regeneration Summit== |
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In 2011, Hearing Health Foundation hosted the first public-focused health conference bringing together some of the nation’s top leaders in the field of cell regeneration research in the ear to discuss current research and potential therapies to restore hearing as part of the HRP. |
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==Safe and Sound Prevention Program== |
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Hearing Health Foundation has partnered with the National Institute on Deafness and Other Communication Disorders (NIDCD) to provide noise-induced hearing loss prevention information and resources to the public. In 2011 Hearing Health Foundation demonstrated how sound travels and educated approximately 18,000 children at Nickelodeon’s “Day of Play” at the Mall in Washington, DC. |
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== References == |
== References == |
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{{reflist}} |
{{reflist}} |
Revision as of 16:08, 1 July 2012
Founded | 1958[1] |
---|---|
Founder | Collette Ramsey-Baker |
Type | Public Charity- 501(c)(3)[2] |
Focus | Healthcare |
Location | |
Area served | United States |
Key people | Andrea Boidman (Executive Director) Doug Olson (Development Director) James DePaiva (Honorary Board Member) Kassie DePaiva (Honorary Board Member) |
Endowment | Over US$26 million as of 2010[3] |
Employees | 7 |
Website | Hearing Health Foundation |
Formerly called | Deafness Research Foundation (1958-2011)[4] |
Hearing Health Foundation is an organization created to promote awareness in the prevention and cure of hearing loss through groundbreaking research, founded in 1958 by Collette Ramsey-Baker (1918-2010) with the name Deafness Research Foundation. It is America’s leading source of private funding for research into the science of hearing and balance. The primary aims of the foundation are to promote the awareness in the prevention of noise induced hearing loss, provide seed money to fund research of hearing and balance science and cure hearing loss through the Hearing Restoration project. The foundation is based in New York City, New York. It had an endowment of over US$26 million as of 2010. Since 1958, Hearing Health Foundation (HHF) has awarded approximately 2,000 grants totaling over $26.5 million through the Emerging Research Grants program.[5] In 2011, the Deafness Research Foundation changed its name to Hearing Health Foundation and announced the Hearing Restoration Project. [6]
Since it’s inception, the work of HHF’s grantees has led to many of today’s standard treatments for hearing loss, such as cochlear implants, treatments for ear infections and surgical therapy for otosclerosis. HHF’s grantees have become leaders in hearing research, with many receiving important federal grants. Former grantees make up 20 percent of recipients of the prestigious Association for Research in Otolaryngology Award of Merit (1).
History
Hearing Health Foundation, originally named Deafness Research Foundation, was founded by Collette Ramsey-Baker in February 1, 1958 to help further research and improve treatments for the millions of Americans with hearing loss.[7]. Born in Waverly, Tennessee, Collette lived with substantial hearing loss for many years before she had her hearing completely restored at age 35, with an early fenestration operation. In gratitude,she founded the Deafness Research Foundation (DRF). A recurrent model for the renowned painter, Howard Chandler Christy and an avid golfer, she received letters of commendation from many leaders and well-known people including US Presidents Hoover and Eisenhower, Helen Keller and Cardinal Spellman.[8]
In 1960, the DRF and the American Academy of Otolaryngology and Ophthalmology create the National Temporal Bone Banks Program, to collect and study the human temporal bone, and to encourage temporal bone donation. In 1992 the NIDCD National Temporal Bone, Hearing and Balance Pathology Resource Registry (The Registry) is founded as a nonprofit organization. The Registry was established by the National Institute of Deafness and other Communication Disorders (NIDCD) of the National Institutes of Health in order to continue and expand on the activities of the former National Temporal Bone Banks Program. [9]
In 1963, leading ear, nose and throat specialists came together in order to advance the research in their respective fields. This innovative group became a professional organization called The Centurions and were supporters of the work and mission of the DRF. [10]
By 1972, the DFR was funding research on cochlear implants, with later grants in single channel to multi-channel implants, speech perception among cochlear implant users, and implants in children. Substantial research and significant contribution in the prevention and treatment of middle ear infection was made by researchers who were awarded grants. In 1977 the DFR funded research in outer ear hair cell motility that led to a new method for measuring the health of a newborn's ear, and began funding research to understand how sensory cells transmit sounds from the world to the brain.
DFR funded research led, in 1987, to the discovery of spontaneous regeneration of hair cells in chickens, thus igniting the field of hair cell regeneration in humans. Research on the regrowth of cochlea cells may lead to medical treatments that restore hearing. Unlike birds and reptiles, humans and other mammals are normally unable to regrow the cells of the inner ear that convert sound into neural signals when those cells are damaged by age or disease. [11]
In 1989 the DFR funded Meniere's Disease Study Center for improved evaluation and better treatments of Meniere's Disease. [12]
In celebration of the 50th Anniversary, the DFR rang the opening bell at the New York Stock Exchange in 2008.[13]
The organization decided to change its name from The Deafness Research Foundation to Hearing Health Foundation to better communicate the foundation’s mission of helping to prevent, research and cure hearing loss. In September 14, 2011 the Chair of the Board, Clifford P. Tallman, Jr., announced the name change of the DFR to Hearing Health Foundation and presented a new research consortium, the Hearing Restoration Project. "The name Deafness Research Foundation served us well," explained Tallman. "Our research, however, showed that 'deafness' is an outdated term and now has a different connotation from how we were initially using it. Over the last half-century, we have done important work. Our new name reflects our determination to change the social stigma tied to hearing loss and to fund new and promising research that may bring a cure for hearing loss to the public." Source: PR Newswire (http://s.tt/1bFEJ) [14]
Activities
The focus of HHF is hearing and balance research, through the Emerging Research Grants Program and the Hearing Restoration Project(HRP). Bought in 2002, the Hearing Health magazine is a publication of Hearing Health Foundation.
Hearing Restoration Project: HHF provides financial assistance and administrative management for The Hearing Restoration Project (HRP). The HRP initiative brings together notable researchers with the goal of researching and developing a genuine cure for most forms of acquired hearing loss by regenerating the inner ear hair cells that enable hearing. HRP aims to raise $50 million ($5 million per year over 10 years) in funding for scientific research towards inner ear hair cell regeneration.
Emerging Research Grants Program: HHF has awarded over $26.5 million through more than 2,000 scientific research grants to researchers who are dedicated to exploring new avenues of hearing and balance science. This seed money has led to dramatic innovations that increase options for those living with hearing loss, as well as protecting those at risk. Hearing Health Foundation supports research in the following areas:
- Fundamental Auditory Research - development, genetics, molecular biology, physiology, anatomy, and regeneration biology
- Cochlear implants
- Surgical therapy for otosclerosis
- Hair cell regeneration
- Hearing aids technology
- Central Auditory Processing Disorder(CAPD)medical therapy
- Noise-induced hearing loss
- Presbycusis or age-related hearing loss
- Viral infections causing hearing loss
- Sudden deafness
- Ototoxicity or drug-induced hearing loss
- Temporal bone pathology
- Otitis media, or ear infections
- Usher Syndrome
- Vestibular and Balance Disorders (dizziness and vertigo, Meniere's disease)
- Tinnitus (ringing in the ears) and
- Hyperacusis (decreased tolerance of sound)
Hearing Health Magazine
Hearing Health Magazine is the ultimate consumer resource on hearing loss and related products. It earned this position over the past 28 years through steadfast dedication from staff, quality contributions, and collaborative support from advertisers. Hearing Health magazine is published quarterly and has a readership of 215,000. The magazine educates individuals about the effects of hearing loss on health and quality of life, and aims to provide real-world solutions based on the latest research and technology. The award winning magazine is the largest on hearing loss.
The Promise of Cell Regeneration Summit
In 2011, Hearing Health Foundation hosted the first public-focused health conference bringing together some of the nation’s top leaders in the field of cell regeneration research in the ear to discuss current research and potential therapies to restore hearing as part of the HRP.
Safe and Sound Prevention Program
Hearing Health Foundation has partnered with the National Institute on Deafness and Other Communication Disorders (NIDCD) to provide noise-induced hearing loss prevention information and resources to the public. In 2011 Hearing Health Foundation demonstrated how sound travels and educated approximately 18,000 children at Nickelodeon’s “Day of Play” at the Mall in Washington, DC.
References
- ^ Foundation Timeline and History http://hearinghealthfoundation.org/timeline
- ^ http://dynamodata.fdncenter.org/990s/990search/ffindershow.cgi?id=DEAF003
- ^ http://hearinghealthfoundation.org/lib/sitefiles/pdf/Annual_Report_FINAL.pdf
- ^ http://www.prnewswire.com/news-releases/deafness-research-foundation-announces-new-name-and-reaffirms-its-unwavering-dedication-to-the-prevention-research-and-cure-for-hearing-loss-129803073.html
- ^ Foundation Center http://dynamodata.fdncenter.org/990s/990search/ffindershow.cgi?id=DEAF003
- ^ Deafness Research Foundation Announces New Name http://www.prnewswire.com/news-releases/deafness-research-foundation-announces-new-name-and-reaffirms-its-unwavering-dedication-to-the-prevention-research-and-cure-for-hearing-loss-129803073.html
- ^ http://hearinghealthfoundation.org/timeline#
- ^ Collette Ramsey Baker http://www.legacy.com/obituaries/tcpalm/obituary.aspx?n=collette-ramsey-baker&pid=142683060
- ^ What is the Registry http://www.tbregistry.org/What_Is_The_Registry.php
- ^ DRF Centurions - At the Forefront of Our Cause http://www.readperiodicals.com/201001/1958203321.html#b
- ^ Edge AS, Chen ZY (2008). "Hair cell regeneration". Current Opinion in Neurobiology. 18 (4): 377–82. doi:10.1016/j.conb.2008.10.001. PMID 18929656.
- ^ Reference needed
- ^ Opening Bell NYSE http://hearinghealthfoundation.org/timeline#
- ^ Deafness Research Foundation Announces New Name http://www.prnewswire.com/news-releases/deafness-research-foundation-announces-new-name-and-reaffirms-its-unwavering-dedication-to-the-prevention-research-and-cure-for-hearing-loss-129803073.html
External links
- Official Website
- Hearing Health Foundation Profile Foundation Center
- PR Newswire Article Deafness Research Foundation announces new name.