Talk:Marfan syndrome

Eyes

From the article:

Other reported symptoms are eye lenses falling out, and the inability to see objects moving in a direct line at the watcher. Some belief that the biblical stroy of Goliath is based on a man suffering from Marfan syndrome, which would explain his unusual height, and why he did not avoid a stone thrown at him.

Really? Evidence for all these assertions, please.

Oh I'm sorry! That's is acromegaly! Compare [1]. --Magnus Manske~

the wikipedia article on chromosome 19 lists marfan's as a disease of that gene. this article gives chromosome 15 as responsible for it. one of them must be correct. which is it?Cleobolus (talk) 17:23, 6 September 2009 (UTC)

Merger

This entry and the one on Marfan's syndrome clearly cover the same subject, so it would be good to unify them. -- Arteitle 06:50, 13 Sep 2003 (UTC)

Done. --Michael Snow 19:34, 10 Mar 2004 (UTC)

Lancet

The Lancet, Current Issue, Volume 366, Number 9501, 3 December 2005

has three articles about it. Anyone up to the job? JFW | T@lk 00:11, 4 December 2005 (UTC)

Losartan anyone

Works in mice: Habashi JP et al. Science. 2006;312:117-121 JFW | T@lk 23:39, 2 May 2006 (UTC)

Works in humans: Brooke BS et al. NEJM 358:2787 Nbauman (talk) 22:58, 28 June 2008 (UTC)

Famous People

It is not proven that Jeffry Hyman AKA Joey Ramone had this syndrome.

Is there any proof that Coulter has Marfan syndrome or is it just a rumor?

I added Kermit L. Hall given that from all the coverage of his sudden death that the circumstances of whatever "condition" that led to his death point to Mafans. (—Preceding unsigned comment added by Scrabbleship (talk • contribs) )

I have a big problem with adding speculative entries in the Famous people section. If you add an entry, I think it's incumbent upon you to cite the source. I am more concerned with living people as adding name here tends to have the appearance of an attack edit. I am not looking for a certified death certificate that says complications from Marfan Syndrome - just some WP:RS that qualifies if for inclusion. My $.02. --Geneb1955^Talk/_CVU 10:44, 5 October 2006 (UTC)

Speaking of "Famous Sufferers" of Marfan's, I find it doubtful that Osama bin Laden has Marfan's syndrome when his own Wiki page does not support the claim. Also, this site here (http://meaindia.nic.in/bestoftheweb/2002/04/17bow01.htm , simply CTRL + F (Marfan) and you'll find the relevant paragraph) does not support the statement, as it concludes there is no firm evidence for the claim (Another site cites that page to support that fact that it is unlikely he had it). Another site simply says he does (Without any evidence, and I am doubtful that any websites can qualify as primary sources... D: ). Another Wiki Page says this :Rumores dizem que Osama bin Laden também tem a Síndrome. Or, roughly translated, Rumours say that Osama has this syndome. The evidence seems to be, on the affirmative: Osama is lanky and tell, a bit like Lincoln (Or apparently Kerry). On the negative: Most people suffering from Marfan syndome are not likely to have well developed musculature. 24.89.197.136 01:40, 23 November 2006 (UTC)

To which of the 30 or so Robert Johnsons does this section intend to refer?

This section is somewhat problematic, I tagged it as needing sources. We need them for everything, but doubly so when we start diagnosing people who are still alive... - cohesion 02:55, 2 December 2006 (UTC)

Dural Ectasia

I added this to the requested articles list. Anyone care to take it on? I suffer from it, but am not a medical practitioner. So I'm looking for professional knowledge, not just web references that I can find on my own.

Dural ectasia --WS 22:57, 27 November 2006 (UTC)

Symptoms

I did some major revising of the symptoms section. I felt it read too much like a description of the disease, and not a description of how the symptoms present themselves. A paragraph still needs to be added on pneumothorax, because this is sometimes the first sign/symptom to show itself in individuals with the disease. The section also needs to have more references added. Leeirons 02:50, 5 December 2006 (UTC)

Bin Laden?

People have said that Osama Bin Laden has it? Could this be true? He certainly shows symptoms of it, also John Kerry does, but this isn't proven anywhere. —The preceding unsigned comment was added by 84.71.226.21 (talk) 22:01, 14 December 2006 (UTC).

Grafitti Attacks on the Article

I have reviewed the history of changes over the past few weeks and have noticed an occassional graffito is written into the article. The vandals perpetrating these attacks usually do it without logging in, thus leaving no contributor trace. I recommend that whenever any of the responsibly acting contributors log in to do some more editing, first look at the most recent edit. If it is an anonymous edit, just revert the article to the previous edit before doing more edits. Leeirons 13:02, 19 December 2006 (UTC)

It only takes a moment more to do a diff, and leave the appropriate {{test}} on the users page, thus helping reduce vandalism long term. Rich Farmbrough, 13:57 19 December 2006 (GMT).

I figured out how to do the diff, but what do you mean about "leave the appropriate test on the users page"? What does a "test" accomplish? :-) Leeirons 14:48, 19 December 2006 (UTC)

I nearly always do a diff anyway after clicking on the history tab, but I did not know that it was possible to edit without logging in. Are you wrong? Snowman 18:28, 19 December 2006 (UTC)

Yes, you can (generally) edit without logging in; the edit then shows up with your IP address as the username. —Ruakh_TALK 18:36, 19 December 2006 (UTC)

I count that as logged on with IP address (although not signed in with a personal name). He was actually stating the obvious. btw. Snowman 19:13, 19 December 2006 (UTC)

But there's nothing "logged on" about it … —Ruakh_TALK 21:53, 19 December 2006 (UTC)

Oops! Sorry, I just made some edits without logging on. I entered comments on the changes made, so it should be obvious that my anonymous entries are not grafitti. Leeirons 03:38, 28 December 2006 (UTC)

I made an edit a few days ago (just a grammar correction) but I do not have an account. Sorry for any trouble, just wanted to make sure no one uncorrects my correction. (Zippydaspinhead - 10:30 CMT, 6 February 2007)

What kind of a sick, twisted individual would deface an article like this? I have Marfan's syndrome, and I'm disgusted sometimes by people's utter lack of caring with respect to folks like me. I'm not taking it personally; I'm just amazed at how easily some can kick a man when he is down. On the other hand, I suppose that this is why the KKK exists. And yes -- Hitler WOULD have killed anyone with Marfan's, if he knew about it. SammyJames 01:45, 5 March 2007 (UTC)SammyJames

Well Known Persons

This list used to be very long and then was trimmed down due to lack of citations. It is beginning to grow again. I recommend that each new name should include a citation, or don't even bother adding it. Leeirons 14:45, 19 December 2006 (UTC)

I added citations for the three that were missing them.AlexMc 08:15, 20 December 2006 (UTC)

And added one person along with citation. AlexMc 08:31, 20 December 2006 (UTC)

Pulled the only non-notable person off the list. Hint: if they're not on Wikipedia, they're probably not all THAT prominent...--MattShepherd 20:57, 19 January 2007 (UTC)

I think i read in a book that a famous violin player... Paganini or Pa... i forgot the name :( It was said that he was able to play in very awkward ways because he could overstretch his fingers a lot. Maybe someone of you guys finds the book, its almost 10 years since i read that and i read it only once :/ all i know was that he was a great violin player of his time (i think he was italian but i aint sure..) —Preceding unsigned comment added by 80.108.103.172 (talk) 00:18, 10 November 2007 (UTC)

Heads-up: Joey Ramone probably didn't have Marfan syndrome. I don't know why very tall people always get slapped with that diagnosis. . . anyhow, you won't find a reference for it anywhere. I looked. —Preceding unsigned comment added by Danierrr (talk • contribs) 18:11, 2 March 2008 (UTC)

Giant baba also had marfan's syndrom. He's one of the biggest japanese pro wrestlers of all time. He died in 1999. —Preceding unsigned comment added by 81.205.105.15 (talk) 16:02, 4 June 2009 (UTC)

Pharoah

The pharoah link is dead, though I also heard this assertion at the King Tut travelling exhibit. Does anyone have a new link for this information?

WPCD

I think the article should be considered for the WPCD again as it has been a WikiProjects Medicine project of the week and has had a lot of improvements. Snowman 10:53, 4 February 2007 (UTC)

Nice work

I'd just like to say that editors here have done a stellar job on the article. It is written in an intelligent but not alienating tone and provides a lot of information about this disorder.

Many of our health and medicine related articles I come across are incomplete and/or written at either a far too academic, or kindergarten level of explanation. This is very comprehensive. And well presented to cap it off.

My only criticism at present is that it lacks any footnotes in the the "symptoms" section.

Good job guys.--ZayZayEM (talk) 06:01, 5 December 2007 (UTC)

Not clear whether Lincoln should be excluded

I followed the two references that follow the sentence "Abraham Lincoln was once believed to have suffered from Marfan Sydrome, although recent research has argued that he probably did not.[28][29]". It turns out that neither of them conclude that he did not have Marfan's. They only note that there is some debate. Therefore this seems like a mis-citation.yes it does —Preceding unsigned comment added by 68.90.245.210 (talk) 04:48, 15 December 2007 (UTC)

Ghent criteria

PMID 8723076 apparently lists the most recent diagnostic criteria. JFW | T@lk 00:42, 18 February 2008 (UTC)

Hammertoes

My step dad, like his famous brother John Tavener, has Marfan syndrome, as does his son. Both my step father and step brother have a condition called hammer toes where their toes grow out at slightly perpendicular angles. They tell me that this is a common condition for Marfan sufferers, but it's not listed in the symptoms page so I'm adding it.Juggertrout (talk) 00:18, 17 August 2008 (UTC)

Michael Phelps

I read in the Sydney Morning Herald that they test him for Mafans every year. Does anyone know if this is true? - Tbsdy lives (talk) 11:36, 18 August 2008 (UTC)

The citation for Phelps having marfan goes to a book where he states he had marfan like symptoms, but not marfan. Maybe he should be taken off the list of famous people. —Preceding unsigned comment added by 68.94.23.202 (talk) 15:41, 16 August 2008 (UTC)

Recent additions have added Michael Phelps to the list of well known people who have or are believed to have Marfan’s. One edit was uncited, one was incorrectly cited, and the most recent one (now removed) cited something called "clevelandleader.com", a website which appears to be a news blog. A few points:

• This claim involves a living person, and such a claim must be cited to a reliable source.
• A news blog (clevelandleader) is not a reliable source for a medical diagnosis.
• The article in question relies on Phelps own book, but the book itself does not support the interpretation placed on it by the article. Also see [2]; [3].
• At most the book says that Phelps may have a few of the physical attributes of those with the syndrome; there is no determination that he actually has it or is reliably believed to have it.

Accordingly the claim does not belong in the article. Kablammo (talk) 17:27, 18 August 2008 (UTC) (updated; Kablammo (talk) 23:55, 19 August 2008 (UTC))

People "believed to have" Marfan's

The listing of living people who are "believed" or "suspected" to have Marfan syndrome should be modified to list only those people who have been diagnosed with the condition. We have seen how journalists can turn a few symptoms into a diagnosis. WP:RS and WP:BLP should apply here. Kablammo (talk) 19:18, 18 August 2008 (UTC)

I have modified the section to eliminate those "believed to have" the syndrome, and expanded the hidden comment to require a valid reliable source confirming an actual diagnosis. Wikipedia should not engage in speculation nor repeat speculation, particularly about living persons. Kablammo (talk) 02:25, 20 August 2008 (UTC)

As the "speculative claims" section continued to attract rumors concerning living persons based on irresponsible "journalism", and as many of the names of historic figures had no citation, the list has been eliminated and only those names which are cited to a source have been retained. Kablammo (talk) 02:05, 7 January 2009 (UTC)

Osama Bin Laden does not have marfan Syndrome because he is short and some people, such as myself have large hands. it is not a valid arguement. —Preceding unsigned comment added by 209.175.88.246 (talk) 15:08, 18 February 2009 (UTC)

Does anybody know about Mick Fleetwood of Fleetwood Mac? I'm a 195cm Marfanic myself, and on some older album covers Fleetwood looks taller and thinner than I (he's been cited as being 198cm tall), with pectus excavatum and very thin arms and wrists. Harjasusi (talk) 14:47, 22 April 2009 (UTC)

See WP:MEDMOS and WP:MEDRS; a very reliable source would be needed at any rate. SandyGeorgia (Talk) 15:04, 22 April 2009 (UTC)

Free full-text review

Keane MG, Pyeritz RE (2008). "Medical management of Marfan syndrome". Circulation. 117 (21): 2802–13. doi:10.1161/CIRCULATIONAHA.107.693523. PMID 18506019. {{cite journal}}: Unknown parameter |month= ignored (help)

This 2008 review is available online and could be used to revise, update the article. I've added it to the Epidemiology section with refname=PMID18506019 . SandyGeorgia (Talk) 02:23, 17 January 2010 (UTC)

Phelps again

I have reverted this addition, because it misrepresented the source. Whether correctly written text could be added to the article is open to consensus; I don't see a need for it. SandyGeorgia (Talk) 19:06, 17 January 2010 (UTC)