May 29, 1978|
Washington, D.C., U.S
|Died||May 30, 2008
Fairfax, Virginia, U.S
|Known for||Adrenoleukodystrophy patient|
Lorenzo Michael Murphy Odone (May 29, 1978 – May 30, 2008) was an Italian-American with adrenoleukodystrophy (ALD) whose parents, Augusto and Michaela Odone, sought a treatment for the disease and invented Lorenzo's oil.
He was also the subject of the 1992 film Lorenzo's Oil which starred Nick Nolte and Susan Sarandon, and of the 1990 TV-movie Voglia di vivere, starring Tomas Milian and Dominique Sanda. Additionally, Phil Collins translated a poem written by Michaela to Lorenzo to music for the song "Lorenzo" in his 1996 album Dance into the Light.
Quest for a treatment
In 1984, when diagnosed with adrenoleukodystrophy, there was not much information available about this disease, let alone a treatment. His parents therefore decided to take matters into their own hands, and began researching myelin and adrenoleukodystrophy. They eventually invented "Lorenzo's oil", which they hoped would stop the progress of the disease. It is a mixture of fatty acids refined from olive and rapeseed oil.
Lorenzo died at his home in Fairfax, Virginia on May 30, 2008, 26 years after his first diagnosis, and one day after his 30th birthday, due to complications from aspiration pneumonia, with his father Augusto and his lifelong friend Oumouri at his side.
- "Lorenzo Odone Subject of Lorenzo's Oil, the film portraying his parents' quest to cure his degenerative disease". The Telegraph. 1 Jun 2008. Retrieved 14 June 2010.
- "About Lorenzo, his Parents, and Oumouri". The Myelin Project. Retrieved 2010-01-02.
- Augusto Odone. L'olio di Lorenzo. Una storia d'amore. Mondadori, 2011. ISBN 8804611081.
- "Obituaries: Lorenzo Odone". The Telegraph. 1 Jun 2008. Retrieved 5 September 2011.
- Kugler, Mary. "ALD and Lorenzo's Oil". About. Retrieved 2006-06-03.
- Vedantam, Shankar. "A Real-Life Sequel to 'Lorenzo's Oil'; After His Death, Scientist's Work May Bear Fruit." The Washington Post. January 28, 2007.
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