Schizophrenics Anonymous
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Schizophrenics Anonymous is a peer support group to help people who are affected by schizophrenia and related disorders including bipolar disorder, schizoaffective disorder, psychotic depression and psychosis.
History
The program was established in the Detroit, Michigan in 1985.[1][2] The founder was Joanne Verbanic, who was diagnosed with schizophrenia in 1970.[3] Shortly before forming SA, Verbanic publicly disclosed her diagnosis and discussed her illness on national television in an effort to challenge the stigma associated with the condition.[4] She was a 2006 recipient of a Lilly Reintegration Award in recognition of her lifetime contributions to the mental health community, and she continued to be active as a spokesperson for persons with schizophrenia and other mental illness[3] until her death on May 7, 2015.[5]
By 2007, more than 150 local SA groups operated in 31 of the 50 United States, and in Australia, Brazil, Canada, Mexico, France, India and Venezuela.[6]
Technical support for Schizophrenics Anonymous was provided by the National Schizophrenia Foundation (NSF) until 2007 when NSF ceased operations.[citation needed] In response to the loss of a national sponsor, a group of consumers, family members, and mental health providers came together to form a not-for-profit organization, Schizophrenia and Related Disorders Alliance of America (SARDAA).[7]
SARDAA promotes recovery for persons with schizophrenia and related brain disorders including bipolar disorder, schizoaffective disorder, depression with psychosis,[citation needed] and experience with psychosis. They envision a future in which every person with a schizophrenia-related brain disorder has the opportunity to recover from their disorders. The name Schizophrenics Anonymous was changed to Schizophrenia Alliance in 2015 and added Psychosis Support and Acceptance in 2018.[citation needed] They provide an online directory of SA groups, sponsor five weekly SA conference calls, and one Family and Friends conference call. At their annual conference, the group trains individuals and groups who have started or would like to start an SA group.[8]
Although some SA groups are organized by mental health professionals, research has suggested that peer-led SA groups are more sustainable and longer lasting.[9] Some groups are organized in psychiatric hospitals or jails and are not open to the public.
Program principles
The SA program is based on the twelve-step model,[10] but includes just six steps.[6][11] The organization describes the program's purpose of helping participants to learn about schizophrenia, "restore dignity and sense of purpose," obtain "fellowship, positive support, and companionship," improve their attitudes about their lives and their illnesses, and take "positive steps towards recovery."[1]
Joanne Verbanic wrote the original "Schizophrenics Anonymous" book, better known as "The Blue Book," which describes the six steps to recovery. The steps require members to admit they need help, take responsibility for their choices and consequences, believe they have the inner strength to help themselves and others, forgive themselves and others, understand that false beliefs contribute to their problems and change those beliefs, and decide to turn their lives over to a higher power.[12]
Research
Self-help groups are more available to people who live independently. Researchers at Michigan State University studied whether SA would be successful in group homes. The results were positive: the groups had high attendance and participation and were well liked. However, staff members controlled who could lead and who could attend the meetings, and how the meetings should be run. The programs fell apart. The same obstacle occurred in SA groups started in prisons and monitored by employees.[13]
See also
References
- ^ a b What Is Schizophrenics Anonymous?, Schizophrenics Anonymous website
- ^ Working Their Way Back, by James Willwerth, Time, Nov. 14, 1999
- ^ a b Linda Whitten and Bruce Black (2005). "Schizophrenics Anonymous" (PPT, slide 4). NAMI (the National Alliance on Mental Illness) website. Retrieved 2008-02-10.
Joanne Verbanic / Founder of Schizophrenics Anonymous / 1970 diagnosed with paranoid schizophrenia / 1985 with Mental Health Association in Michigan Founded Schizophrenics Anonymous / Motivated to erase stigma / "The stigma is harder to deal with than the illness itself." / Spokesperson at Mental Health conferences, universities, schools, clubs, TV, radio in an effort to educate the public.
- ^ Vance, Daniel (1 January 2011). "Verbanic Started Schizophrenics Anonymous". Atlantic Highlands Herald.
- ^ Eli Lilly and Company Announces 2006 Lilly Reintegration Awards Recipients, Eli Lilly press release, October 10, 2006
- ^ a b Recovery World
- ^ "About SARDAA | SARDAA". sardaa.org. Retrieved 2018-05-16.
- ^ "Linda Whitten Stalters." Annals of the American Psychotherapy Association. 2008
- ^ Helping Mutual Help: Managing the Risks of Professional Partnerships. D.A. Salem, et al. Department of Health Behavior and Health Education, University of Michigan School of Public Health. 2010
- ^ Linda Whitten and Bruce Black (2005). "Schizophrenics Anonymous" (PPT, slide 11). NAMI (the National Alliance on Mental Illness) website. Retrieved 2008-02-10.
Initially based on 12 Steps of AA / Self-help only—not advocacy or group therapy
- ^ Linda Whitten and Bruce Black (2005). "Schizophrenics Anonymous" (PPT, slides 25-31). NAMI (the National Alliance on Mental Illness) website. Retrieved 2008-02-10.
- ^ Schizophrenics Anonymous, by Joanne Verbanic
- ^ The initiation of mutual-help groups within residential treatment settings. Salem DA, Gant L, Campbell R. Community Ment Health J. 1998 Aug;34(4):419-29.
External links
- "SARDAA – Schizophrenia and Related Disorders Alliance of America". sardaa.org. Retrieved 2018-05-23.
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