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|WikiProject Medicine / Dermatology / Neurology||(Rated B-class, Mid-importance)|
This is a painful disorder
This is so painfull it has changched my life it is killing me and some people just dont get that just becase you can not see it it still is a disabilatating pain! Frogsms 14:21, 23 March 2007 (UTC)
I'm 19 years old, but my pain started when i was 8. To this day, it still bothers me. Sometimes i wake up screaming in my sleep because it hurts so bad. It causes me unable to move because if i move my leg, it burns worse. It usually only happens while i am asleep. Sometimes when i wear tight Jeans. I don't know what to do for it anymore. Doctor claims there isn't anything they can do. There were times, the pain would be so bad, i'd beg them to just amputate my leg! I fear, the older i get, the worse the pain will be. & I don't want to live like that. It's a living hell. Pain is not as bad as it was when i was a child, but it still bothers me. Someone please help me. — Preceding unsigned comment added by 184.108.40.206 (talk) 22:21, 15 March 2014 (UTC)
I have been in pain for a year now and I was even beginning to doubt myself. The pain in my leg has been continuous and I believe I have been almost impossible to live with. I cry a lot from the pain and from what I can not understand about the medical profession and the insurances that have hampered my diagonis and treatments. It is all a vicious circle. Finally a name has been found for all the pain I have and the waiting game is still on. Referrals and other things still need to be done. Begging for appointments as early as possible and still not knowing if I will have a treatment or more tests. Please I am in pain can anyone hear my crying? No one can understand this pain unless you have had it. I don't sleep, can't sit, can't walk, can't even breath without the pain being present. HELP!! —Preceding unsigned comment added by 220.127.116.11 (talk) 04:20, 12 September 2007 (UTC)
- I can understand your situation. I have the same syndrome and it comes and goes in cycles ... several weeks or months of severe pain then several months with just a small numb area. I am an MD who quit practicing because of pain - and I miss helping people but not the hassles of the medical profession both from the patient side and the physician side. These types of disorders ... the one mentioned in this article, fibromyalgia, chronic fatigue symdrome and others are difficult for physicians because there is no test for them and they must rely totally on the patients description of the symptoms. Unfortunately for those who really suffer, there are those that pretend to have the symptoms to either request pain meds and/or to qualify for disability insurance. These imposters make it so much more difficult for many health care providers to believe those that are not crying wolf!
Back to the condition ... I am overweight, but not in the abdominal or groin region. Obesity is the only thing listed as a cause that could possibly apply to me, and I admittedly need to loose weight but do not think this is the cause of my symptoms. Tests have been negative. Multiple meds have not worked. Tenz unit-type nerve stimulator has helped ... but have only been able to use a few times. Walking and swimming have not helped. Too much exercise makes it worse. Leg elevation and a low setting heating pad help some. A positive attitude and being not only hopeful but insistant to oneself that the pain will go away helps too. —Preceding unsigned comment added by 18.104.22.168 (talk) 18:16, 16 February 2009 (UTC)
Another Cause: Pregnancy-induced
I developed this condition while pregnant with my first child, but it subsided after she was born. While pregnant with my second child, it came back worse than before, and continued to be a problem for several years. My children grew up knowing they needed to sit on my "good" leg because the other one hurt so much. But interestingly, the symptoms subsided while I was pregnant with my third child, and never really returned. Today, I only occasionally experience the pain after standing for long periods of time. And, sadly, I now weigh more than I did when I was pregnant, so I feel very fortunate that it has not continued to plague me. Mvogler2 (talk) 13:49, 11 November 2014 (UTC)