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'''Bartha Maria Knoppers''', [[Order of Canada|OC]] [[National Order of Quebec|OQ]] (born May 26, 1951) is a [[Canadians|Canadian]] law Professor and an expert on the ethical aspects of [[genetics]], [[genomics]] and [[biotechnology]].
'''Bartha Maria Knoppers''', [[Order of Canada|OC]] [[National Order of Quebec|OQ]] (born May 26, 1951) is a [[Canadians|Canadian]] law Professor and an expert on the ethical aspects of [[genetics]], [[genomics]] and [[biotechnology]].


Born in [[Hilversum]], [[Netherlands]], she received a Bachelor of Arts (French and English Literature) from [[McMaster University]] (1972), a Master of Arts degree in comparative literature from the [[University of Alberta]] (1974), Bachelor of Common Law (1978) and Civil Law (1981) degrees from [[McGill University]], where she was selected as an Executive Editor for the ''[[McGill Law Journal]]'',<ref>{{cite journal |journal=[[McGill Law Journal]] |date=1980 |title=Masthead, Volume 24}}</ref> a Diploma of Legal Studies from [[University of Cambridge]] (1981), and a Doctorate of Laws from the [[University of Paris 1 Pantheon-Sorbonne]]<ref name="McGill">{{cite web|url=http://academic.mcgill.ca/newfac/profiles/2009/by-name/knoppers.htm |title=Bartha M. Knoppers |work=McGill University |url-status=dead |archiveurl=https://web.archive.org/web/20110706185218/http://academic.mcgill.ca/newfac/profiles/2009/by-name/knoppers.htm |archivedate=2011-07-06 }}</ref> (1985).  In addition, she became a member of the [[Bar of Quebec|Quebec Bar]] (1985).
Born in [[Hilversum]], [[Netherlands]], she received a Bachelor of Arts (French and English Literature) from [[McMaster University]] (1972), a Master of Arts degree in comparative literature from the [[University of Alberta]] (1974), Bachelor of Common Law (1978) and Civil Law (1981) degrees from [[McGill University]], where she was selected as an Executive Editor for the ''[[McGill Law Journal]]'',<ref>{{cite journal |journal=[[McGill Law Journal]] |date=1980 |title=Masthead, Volume 24}}</ref> a Diploma of Advanced Studies from the [[University of Paris 1 Pantheon-Sorbonne]] (1979), a Diploma of Legal Studies from [[University of Cambridge]] (1981), and a Doctorate of Laws from the [[University of Paris 1 Pantheon-Sorbonne]]<ref name="McGill">{{cite web|url=http://academic.mcgill.ca/newfac/profiles/2009/by-name/knoppers.htm |title=Bartha M. Knoppers |work=McGill University |url-status=dead |archiveurl=https://web.archive.org/web/20110706185218/http://academic.mcgill.ca/newfac/profiles/2009/by-name/knoppers.htm |archivedate=2011-07-06 }}</ref> (1985).  In addition, she became a member of the [[Bar of Quebec|Quebec Bar]] (1985).


She was a professor at the Faculty of Law, [[Université de Montréal]] (1985-2009). Currently, she is Full Professor at the Department of Human Genetics, [[McGill University Faculty of Medicine and Health Sciences|Faculty of Medicine]], [[McGill University]] (2009-)<ref name="McGill" />, and is an Associate Member of the [[McGill University Faculty of Law|Faculty of Law]] (2011) and the Biomedical Ethics Unit (2013). She is also the Director of the Centre of Genomics and Policy, McGill University (2009-), and the Founder and Chair of [[Public Population Project in Genomics|Public Population Project in Genomics (P<sup>3</sup>G)]] Consortium and [[CARTaGENE biobank|CARTaGENE]], Quebec (2003-2019).
She was a professor at the Faculty of Law, [[Université de Montréal]] (1985-2009). Currently, she is Full Professor at the Department of Human Genetics, [[McGill University Faculty of Medicine and Health Sciences|Faculty of Medicine and Health Sciences]], [[McGill University]] (2009-)<ref name="McGill" />, and is an Associate Member of the [[McGill University Faculty of Law|Faculty of Law]] (2011) and the Biomedical Ethics Unit (2013). She is also the Founding Director of the Centre of Genomics and Policy, McGill University (2009-), and the Founder and Chair of [[Public Population Project in Genomics|Public Population Project in Genomics (P<sup>3</sup>G)]] Consortium and [[CARTaGENE biobank|CARTaGENE]], Quebec (2007-2019).


Prof. Knoppers has held the [[Canada Research Chair]] in Law and Medicine since 2001. This involves analyzing and developing of national and international policies, laws and guidelines in the field of genomics. She is Co-Founder of the [[Global Alliance for Genomics and Health|Global Alliance for Genomics and Health (GA4GH)]] (2013-) and Co-Chair of the Governance Ethics Working Group for the [[Human Cell Atlas|Human Cell Atlas (HCA)]] (2018-). Previously, Prof. Knoppers was the Chair of the Ethics and Policy Committee of the [[International Cancer Genome Consortium|International Cancer Genome Consortium (ICGC)]] (2009-2017), the Chair of the International Ethics Committee of the [[Human Genome Project]] (2012-2016), and the Chair of the Ethics Working Group of the [[World Anti-Doping Agency|World Anti-Doping Agency (WADA)]]<ref>{{cite web |title=WADA ethics expert group |url=https://www.wada-ama.org/en/who-we-are/governance/wada-ethics-expert-group |publisher=WADA |accessdate=16 January 2020}}</ref> (2016-2021). She was also a member of the Drafting Group for the Recommendation of the OECD Council on Health and Data Governance (2015-2016). During the [[COVID-19 pandemic in Canada|COVID-19 pandemic]], she participated as a member of the COVID-19 Vaccine Task Force convened by the [[National Research Council Canada]] and [[Innovation, Science and Economic Development Canada]].<ref>{{Cite web |date=2020-08-05 |title=COVID-19 Vaccine Task Force |url=https://nrc.canada.ca/en/corporate/covid-19-vaccine-task-force |url-status=usurped |archive-url=https://web.archive.org/web/20200808224638/https://nrc.canada.ca/en/corporate/covid-19-vaccine-task-force |archive-date=2020-08-08 |access-date=2023-04-29 |website=[[Government of Canada]]}}</ref>
Prof. Knoppers has held the [[Canada Research Chair]] in Law and Medicine since 2001. This involves analyzing and developing of national and international policies, laws and guidelines in the field of genomics. She is Co-Founder and on the Board of Directors of the [[Global Alliance for Genomics and Health|Global Alliance for Genomics and Health (GA4GH)]] (2022-) and Co-Chair of the Governance Ethics Working Group for the [[Human Cell Atlas|Human Cell Atlas (HCA)]] (2018-). Previously, Prof. Knoppers was the Chair of the Ethics and Policy Committee of the [[International Cancer Genome Consortium|International Cancer Genome Consortium (ICGC)]] (2009-2017), the Chair of the International Ethics Committee of the [https://www.hugo-international.org/ Human Genome Organisation (HUGO)]<ref>{{Cite journal |last=Knoppers |first=Bartha Maria |last2=Thorogood |first2=Adrian |last3=Chadwick |first3=Ruth |date=2013-04-29 |title=The Human Genome Organisation: towards next-generation ethics |url=https://doi.org/10.1186/gm442 |journal=Genome Medicine |volume=5 |issue=4 |pages=38 |doi=10.1186/gm442 |issn=1756-994X |pmc=PMC3706969 |pmid=23673253}}</ref> (2012-2016), and the Chair of the Ethics Working Group of the [[World Anti-Doping Agency|World Anti-Doping Agency (WADA)]]<ref>{{cite web |title=WADA ethics expert group |url=https://www.wada-ama.org/en/who-we-are/governance/wada-ethics-expert-group |publisher=WADA |accessdate=16 January 2020}}</ref> (2016-2021). She was also a member of the Drafting Group for the Recommendation of the OECD Council on Health and Data Governance (2015-2016). During the [[COVID-19 pandemic in Canada|COVID-19 pandemic]], she participated as a member of the COVID-19 Vaccine Task Force convened by the [[National Research Council Canada]] and [[Innovation, Science and Economic Development Canada]].<ref>{{Cite web |date=2020-08-05 |title=COVID-19 Vaccine Task Force |url=https://nrc.canada.ca/en/corporate/covid-19-vaccine-task-force |url-status=usurped |archive-url=https://web.archive.org/web/20200808224638/https://nrc.canada.ca/en/corporate/covid-19-vaccine-task-force |archive-date=2020-08-08 |access-date=2023-04-29 |website=[[Government of Canada]]}}</ref>


Prof. Knoppers has published over 539 peer-reviewed articles, over 114 book chapters and 38 books. She is the lead author of the Stem Cell Charter (2010) and co-edited the Routledge Handbook of Medical Law and Ethics (2014). Her work has been featured in various peer-reviewed academic journals, such as [[Science (journal)|SCIENCE]], [[Nature (journal)|Nature]], [[BMJ Open]], [[Frontiers Media#List of journals|Frontiers in Genetics]], to name a few.
Prof. Knoppers has published over 562 peer-reviewed articles, over 115 book chapters and 38 books. She is the lead author of the Stem Cell Charter (2010) and co-edited the Routledge Handbook of Medical Law and Ethics (2014). Her work has been featured in various peer-reviewed academic journals, such as [[Science (journal)|SCIENCE]], [[Nature (journal)|Nature]], [[BMJ Open]], [[Frontiers Media#List of journals|Frontiers in Genetics]], to name a few.


== Honours ==
== Honours ==
In 2002, Prof. Knoppers was made an Officer of the [[Order of Canada]]<ref>{{cite web|url=http://www.gg.ca/honour.aspx?id=7101&t=12|title=Order of Canada citation|date=11 June 2018 }}</ref> in recognition for being "a world authority on the ethical aspects of genetics, genomics and biotechnology". She was also made an Officer of the [[National Order of Quebec]]<ref>{{cite web |url=http://www.premier-ministre.gouv.qc.ca/actualites/communiques/2012/mai/2012-05-28-annexe.asp |language=French |title=Les récipiendaires de l'Ordre national du Québec |url-status=dead |archiveurl=https://web.archive.org/web/20120604004058/http://www.premier-ministre.gouv.qc.ca/actualites/communiques/2012/mai/2012-05-28-annexe.asp |archivedate=2012-06-04 }}</ref> (2012), and a Commander of the [[Order of Montreal|Order of Montréal]] (2016). She holds four Doctorate Honoris Causa: Doctor of Laws from the [[University of Waterloo]] (2001); Doctor of Medicine from the [[Paris Descartes University|University of Paris V – René Descartes]] (2002); Doctor of Laws from [[McMaster University]] (2007); and Doctor of Laws from the [[University of Alberta]] (2008).
In 2002, Prof. Knoppers was made an Officer of the [[Order of Canada]]<ref>{{cite web|url=http://www.gg.ca/honour.aspx?id=7101&t=12|title=Order of Canada citation|date=11 June 2018 }}</ref> in recognition for being "a world authority on the ethical aspects of genetics, genomics and biotechnology". She was also made an Officer of the [[National Order of Quebec]]<ref>{{cite web |url=http://www.premier-ministre.gouv.qc.ca/actualites/communiques/2012/mai/2012-05-28-annexe.asp |language=French |title=Les récipiendaires de l'Ordre national du Québec |url-status=dead |archiveurl=https://web.archive.org/web/20120604004058/http://www.premier-ministre.gouv.qc.ca/actualites/communiques/2012/mai/2012-05-28-annexe.asp |archivedate=2012-06-04 }}</ref> (2012), and a Commander of the [[Order of Montreal|Order of Montréal]] (2016). She holds four Doctorate Honoris Causa: Doctor of Laws from the [[University of Waterloo]] (2001); Doctor of Medicine from the [[Paris Descartes University|University of Paris V – René Descartes]] (2002); Doctor of Laws from [[McMaster University]] (2007); and Doctor of Laws from the [[University of Alberta]] (2008).


She was elected as a Fellow of the [[American Association for the Advancement of Science]] (2002), and is a Fellow of the [[Hastings Center]] (2000-2002), an independent bioethics research institution. In addition, Prof. Knoppers is a member of the [[American Association for the Advancement of Science|AAAS']] Committee on Scientific Freedom and Responsibility since 2020, and is a Fellow of the [[Canadian Academy of Health Sciences|Canadian Academy of Health Sciences (CAHS)]] (2017), the [[Royal Society of Canada]]’s Academy of Social Sciences (2017), and the [[Galton Institute]] (2017). She is a Senior Fellow for the PHG Foundation, [[University of Cambridge]], UK (2019), and gave the Baron de Lancey Lecture in 2022.<ref name="Baron de Lancey Lecture 2022">{{cite web |title=Baron de Lancey Lecture 2022 - Prof. Bartha Maria Knoppers |url=https://www.lml.law.cam.ac.uk/events/baron-de-lancey-lecture-2022-prof-bartha-maria-knoppers |website=Centre for Law, Medicine and Life Sciences |date=7 February 2022 |publisher=University of Cambridge |access-date=9 August 2022}}</ref>
She was elected as a Fellow of the [[American Association for the Advancement of Science]] (2002), and is a Fellow of the [[Hastings Center]] (2000-2002), an independent bioethics research institution. In addition, Prof. Knoppers is a member of the [[American Association for the Advancement of Science|AAAS']] Committee on Scientific Freedom and Responsibility since 2019, and is a Fellow of the [[Canadian Academy of Health Sciences|Canadian Academy of Health Sciences (CAHS)]] (2005), the [[Royal Society of Canada]]’s Academy of Social Sciences (2017), and the [[Galton Institute]] (2017). She is a Senior Fellow for the PHG Foundation, [[University of Cambridge]], UK (2019), and gave the Baron de Lancey Lecture in 2022.<ref name="Baron de Lancey Lecture 2022">{{cite web |title=Baron de Lancey Lecture 2022 - Prof. Bartha Maria Knoppers |url=https://www.lml.law.cam.ac.uk/events/baron-de-lancey-lecture-2022-prof-bartha-maria-knoppers |website=Centre for Law, Medicine and Life Sciences |date=7 February 2022 |publisher=University of Cambridge |access-date=9 August 2022}}</ref>


Prof. Knoppers has received numerous awards for her academic achievements. Her most recent recognitions include the Henry G. Friesen International Prize in Health Research (2019), the Till and McCulloch Award for international policy (2020), and the Canadian Bioethics Society Lifetime Achievement award (2021)<ref name="Lifetime Achievement Award">{{cite web |title=Bartha Maria Knoppers receives Lifetime Achievement Award |url=https://healthenews.mcgill.ca/bartha-maria-knoppers-receives-lifetime-achievement-award/ |website=McGill Health e-News |date=10 June 2021 |publisher=McGill University |access-date=9 August 2022}}</ref> in recognition of her significant contributions to healthcare ethics through her scholarship and leadership.
Prof. Knoppers has received numerous awards for her academic achievements. Her most recent recognitions include the Henry G. Friesen International Prize in Health Research (2019), the Till and McCulloch Award for international policy (2020), and the Canadian Bioethics Society Lifetime Achievement award (2021)<ref name="Lifetime Achievement Award">{{cite web |title=Bartha Maria Knoppers receives Lifetime Achievement Award |url=https://healthenews.mcgill.ca/bartha-maria-knoppers-receives-lifetime-achievement-award/ |website=McGill Health e-News |date=10 June 2021 |publisher=McGill University |access-date=9 August 2022}}</ref> in recognition of her significant contributions to healthcare ethics through her scholarship and leadership.

Revision as of 19:44, 26 January 2024

Bartha Maria Knoppers
Bartha Knoppers in 2010
Born (1951-05-26) May 26, 1951 (age 73)
Hilversum, Netherlands
Alma materMcMaster University
University of Cambridge
University of Alberta
McGill University
University of Paris 1 Pantheon-Sorbonne
Employer(s)Université de Montréal
McGill University

Bartha Maria Knoppers, OC OQ (born May 26, 1951) is a Canadian law Professor and an expert on the ethical aspects of genetics, genomics and biotechnology.

Born in Hilversum, Netherlands, she received a Bachelor of Arts (French and English Literature) from McMaster University (1972), a Master of Arts degree in comparative literature from the University of Alberta (1974), Bachelor of Common Law (1978) and Civil Law (1981) degrees from McGill University, where she was selected as an Executive Editor for the McGill Law Journal,[1] a Diploma of Advanced Studies from the University of Paris 1 Pantheon-Sorbonne (1979), a Diploma of Legal Studies from University of Cambridge (1981), and a Doctorate of Laws from the University of Paris 1 Pantheon-Sorbonne[2] (1985).  In addition, she became a member of the Quebec Bar (1985).

She was a professor at the Faculty of Law, Université de Montréal (1985-2009). Currently, she is Full Professor at the Department of Human Genetics, Faculty of Medicine and Health Sciences, McGill University (2009-)[2], and is an Associate Member of the Faculty of Law (2011) and the Biomedical Ethics Unit (2013). She is also the Founding Director of the Centre of Genomics and Policy, McGill University (2009-), and the Founder and Chair of Public Population Project in Genomics (P3G) Consortium and CARTaGENE, Quebec (2007-2019).

Prof. Knoppers has held the Canada Research Chair in Law and Medicine since 2001. This involves analyzing and developing of national and international policies, laws and guidelines in the field of genomics. She is Co-Founder and on the Board of Directors of the Global Alliance for Genomics and Health (GA4GH) (2022-) and Co-Chair of the Governance Ethics Working Group for the Human Cell Atlas (HCA) (2018-). Previously, Prof. Knoppers was the Chair of the Ethics and Policy Committee of the International Cancer Genome Consortium (ICGC) (2009-2017), the Chair of the International Ethics Committee of the Human Genome Organisation (HUGO)[3] (2012-2016), and the Chair of the Ethics Working Group of the World Anti-Doping Agency (WADA)[4] (2016-2021). She was also a member of the Drafting Group for the Recommendation of the OECD Council on Health and Data Governance (2015-2016). During the COVID-19 pandemic, she participated as a member of the COVID-19 Vaccine Task Force convened by the National Research Council Canada and Innovation, Science and Economic Development Canada.[5]

Prof. Knoppers has published over 562 peer-reviewed articles, over 115 book chapters and 38 books. She is the lead author of the Stem Cell Charter (2010) and co-edited the Routledge Handbook of Medical Law and Ethics (2014). Her work has been featured in various peer-reviewed academic journals, such as SCIENCE, Nature, BMJ Open, Frontiers in Genetics, to name a few.

Honours

In 2002, Prof. Knoppers was made an Officer of the Order of Canada[6] in recognition for being "a world authority on the ethical aspects of genetics, genomics and biotechnology". She was also made an Officer of the National Order of Quebec[7] (2012), and a Commander of the Order of Montréal (2016). She holds four Doctorate Honoris Causa: Doctor of Laws from the University of Waterloo (2001); Doctor of Medicine from the University of Paris V – René Descartes (2002); Doctor of Laws from McMaster University (2007); and Doctor of Laws from the University of Alberta (2008).

She was elected as a Fellow of the American Association for the Advancement of Science (2002), and is a Fellow of the Hastings Center (2000-2002), an independent bioethics research institution. In addition, Prof. Knoppers is a member of the AAAS' Committee on Scientific Freedom and Responsibility since 2019, and is a Fellow of the Canadian Academy of Health Sciences (CAHS) (2005), the Royal Society of Canada’s Academy of Social Sciences (2017), and the Galton Institute (2017). She is a Senior Fellow for the PHG Foundation, University of Cambridge, UK (2019), and gave the Baron de Lancey Lecture in 2022.[8]

Prof. Knoppers has received numerous awards for her academic achievements. Her most recent recognitions include the Henry G. Friesen International Prize in Health Research (2019), the Till and McCulloch Award for international policy (2020), and the Canadian Bioethics Society Lifetime Achievement award (2021)[9] in recognition of her significant contributions to healthcare ethics through her scholarship and leadership.

References

Scholia has an author profile for Bartha Knoppers.
  1. ^ "Masthead, Volume 24". McGill Law Journal. 1980.
  2. ^ a b "Bartha M. Knoppers". McGill University. Archived from the original on 2011-07-06.
  3. ^ Knoppers, Bartha Maria; Thorogood, Adrian; Chadwick, Ruth (2013-04-29). "The Human Genome Organisation: towards next-generation ethics". Genome Medicine. 5 (4): 38. doi:10.1186/gm442. ISSN 1756-994X. PMC 3706969. PMID 23673253.{{cite journal}}: CS1 maint: PMC format (link) CS1 maint: unflagged free DOI (link)
  4. ^ "WADA ethics expert group". WADA. Retrieved 16 January 2020.
  5. ^ "COVID-19 Vaccine Task Force". Government of Canada. 2020-08-05. Archived from the original on 2020-08-08. Retrieved 2023-04-29.{{cite web}}: CS1 maint: unfit URL (link)
  6. ^ "Order of Canada citation". 11 June 2018.
  7. ^ "Les récipiendaires de l'Ordre national du Québec" (in French). Archived from the original on 2012-06-04.
  8. ^ "Baron de Lancey Lecture 2022 - Prof. Bartha Maria Knoppers". Centre for Law, Medicine and Life Sciences. University of Cambridge. 7 February 2022. Retrieved 9 August 2022.
  9. ^ "Bartha Maria Knoppers receives Lifetime Achievement Award". McGill Health e-News. McGill University. 10 June 2021. Retrieved 9 August 2022.
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