National Down Syndrome Society

National Down Syndrome Society

NDSS Logo
Abbreviation	NDSS
Formation	1979
Purpose	Disability Advocate
Headquarters	Manhattan, New York City, New York, USA
Official language	English, Espanol
President	Sara Hart Weir
Budget	$2,000,000+
Website	NDSS Official Website

The National Down Syndrome Society (NDSS) is an American organization that offers support to people with Down syndrome, their families, friends, teachers, and coworkers, and educates the general public about Down syndrome. The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.

History

When Carson Goodwin was born with Down syndrome in 1978, her parents, Betsy and Barton Goodwin, dedicated themselves to gathering as much information as possible about Down syndrome and creating opportunities for Carson to grow and learn like any other child. They soon discovered that support and resources available to parents of a child with Down syndrome were very limited. Betsy began collaborating with her close friend, Arden Moulton, on an idea to address those pressing needs.

Through the efforts of Betsy and Arden, the NDSS gained official nonprofit status in 1979.

Areas of Programming

NDSS focuses on four items of programming to enhance the quality of life for people with Down syndrome.

- The National Policy Center creates systematic change through legislative policy.

- The National Buddy Walk Program honors and celebrates individuals with Down syndrome in their communities.

- The Public Awareness Initiatives bring new and positive presentations of Down syndrome to the public.

- The Community Programs provide information and resources about Down syndrome.

External links

• National Buddy Walk® Program
• Official website