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Rosângela Berman Bieler
Rosângela Berman Bieler
Rosângela Berman Bieler in 2022
Global Advisor and Chief of Disability Area at United Nations Children's Fund (UNICEF)
In office
2011–2022
Advisor to the World Bank
In office
2004–2010
Advisor to the Inter-American Development Bank (IDB or IADB)
In office
2004–2010
Member of Ashoka Social Entrepreneurs
In office
1989–2022
Representative of Brazil to Disabled People's International (DPI)
In office
1980 decade – 1990 decade
Vice-president of Latin America of the Rehabilitation International (RI)
In office
1980 decade – 1990 decade
Founder and Head of the Inter- American Institute on Disability and Inclusive Development (iiDi)
Chartering of Independent Living Center of Rio de Janeiro (ILC-Rio)
Personal details
BornRio de Janeiro, Rio de Janeiro, Brasil
SpouseMichael Christian Bieler
Alma materPontifical Catholic University of Rio de Janeiro (PUC-Rio)
Professionjournalist, editor, activist

Rosângela Berman Bieler (Rio de Janeiro, Rio de Janeiro - October 31st in 1957)[1][2] is a journalist, editor and Brazilian activist on the rights of people with disabilities. She is the current Global Senior Advisor on Children and Disability at United Nations Children's Fund (UNICEF). Rosangela was one of the founders of the Movement for Rights of Persons with Disabilities and the Independent Life Movement in Brazil (MVI)[3]. Also, she was a representative of Brazil to the Disabled People's International (DPI)[4], vice-president of Latin America of the Rehabilitation International (RI) and a regular consultant to the World Bank[5] and Inter-American Development Bank (IDB or IADB). Rosângela is the Head and founder of the Inter-American Institute on Disability and Inclusive Development (iiDi), an ONG created to promote the rights and empowerment of people with disabilities in the Latin American region, as well as in Portuguese-speaking countries.

Biography

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Childhood and education

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Bieler was born in the city of Rio de Janeiro. Her mother was Argentinian of Turkish ascendancy and her father was Brazilian of Russian ascendancy. She is the oldest between her two brothers. At childhood, she frequented a Judaic school, was a volleyball player, and appreciated guitar, music and art. At 1970 decade, she studied Communication and Journalism at Pontifical Catholic University of Rio de Janeiro (PUC-Rio). Besides her studies in a journalist, Rosângela got a master’s degree in Social Inclusion of People with Disabilities at the University of Salamanca[6], Spain.

Youth and the beginning of activism

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At the age of nineteen, she suffered a car accident that left her paraplegic. The medical treatment she received at Brazilian Beneficent Association for Rehabilitation (ABBR)[7] was fundamental to her rehabilitation process, making her re-adaptation to the new situation possible. During the treatment, she met people who became her friends and activist partners, like Lilia Pinto Martins, Flávio Wolf, Sheila Bastos Salgado, José Carlos Morais, Celso Lima, Izabel Maria Loureiro Maior, Maria Paula Teperino, Carmen Galassi, Paulo Roberto Guimarães Moreira, Maruf, Elaine Aride and others. It was also during her rehabilitation process in 1977, that she started to work as a public relations person at the Club of the People with Disabilities Friends (CLAM/ABBR). In the same year, she joined the Association of the Physically Handicapped in the State of Rio de Janeiro (ADEFERJ). In 1983, she was one of the founders and the first national coordinator and editor of the Organização Nacional de Deficientes Físicos (ONEDEF)[8].

Professional career and activism

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Foundation of the Center of Independent Living of Rio de Janeiro

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In 1988, after traveling to the United States where she found out about the Independent Living Movement , she founded with Lilia Pinto Martins and Sheila Salgado, in Rio de Janeiro, the Center of Independent Living of Rio de Janeiro (CVI) the first in Brazil[9]. This was the beginning of a movement for social inclusion and autonomy led by people with disabilities themselves, which did not accept to living segregated from society, at the mercy of institutions, specialists and relatives that decided for them.

Book cover “History of the Political Movement of People with Disabilities in Brazil”, published in 2010[10]

Involvement in the Movement for the Rights of Persons with Disabilities in Brazil and in Latin America

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In 1984, there was a total renewal of ideas within the Movement for the Rights of Persons with Disabilities in Brazil[11]. The end of the National Coalition which reunited all the disability conditions, brought the biggening of national federations by each disability condition: National Organization of Disabled People Entities (ONEDEF), National Movement of Reintegration of the People Hit by Hansen’s Disease (MORHAN) [12], National Federation of Education and Integration of the Deaf (FENEIS)[13], Brazilian Society of Ostomized(SBO) and the Association of Cerebral Paralysis of Brazil (APCB) [14]. Therefore, from 1984 onwards, what happened in Brazil was a very diverse movement, organized by type of disability, articulated as a Brazilian Council of People with Disabilities.

In the international arena, our organizations joined Disabled Peoples International (DPI), the global organization that reunites all disability groups. The blind joined the World Blind Union and the Latin American Blind Union; the deaf joined the World Federation of the Deaf. From there, we started to articulate ourselves internationally, strengthening the movement, carrying Brazil to a wider and more participative scenery, and beginning to act in th Latin American region (BIELER, 2010, apud LANNA JÚNIOR, 2010)[15].

The official foundation of the National Organization of Disabled People Entities (ONEDEF) happened during the first National Meeting of the Physically Disabled, in Brasilia, from April 13 to 16, 1984, when the general assembly of the organizations of physically disabled approved the statutes and defined the scope of its fight for disability rights. Rio de Janeiro was chosen to hold the National Coordination of the (ONEDEF), whose coordinator was Bieler. As president of the Center of Independent Living of Rio de Janeiro (CVI-Rio), in 1993, Rosângela prepared the document “National and International History of the Movement of People with Disabilities” which recap the chronology of the movement.

Gender perspective

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In the report “National and International History of the Movement of People with Disabilities”, Bieler review the role of women with some disability in the context of the global disability movement. In 1984, Disabled People's International (DPI) made a World Congress in Canada, when, for the first time, women with disabilities expressed themselves as group and demanded to have voice in the disability movement. Even in that context, there was a feeling of exclusion as the main leaders were unanimously male. As consequence of this, the organization Disabled Women’s International, a dissent in the DPI, was created[16]. In addition, the DPI members choose a women's committee as part of the organizational structure, starting to ensure, at least formally, the participation of women with disabilities. In April, 1992, Brazil sent to Canada a delegation of eleven women in order to participate in the World Conference of Women with Disabilities organized by the World Coalition of Women with Disabilities. The event was result of the United Nations Convention on Women and Disability, in which Rosângela participated as a guest specialist. It was the first time that women with disabilities were considered as a particular group in an international summit of vulnerable women, which generated specific recommendations[17][18].

HIV and Disability

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Between 2008 and 2013, some Bieler’s work focused on the interface between disability and HIV, which contributed to the visibility of very important topics such as the sexual and reproductive rights of people with disabilities, and the need to make HIV and Sex information and education accessible in adequate formats as well as provide adequate treatment to women and men with disabilities who had HIV around the world.

Contributions to the Convention on the Rights of Persons with Disabilities[19][20] (CRPD)

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Rosângela had a constant and strategic role during the process of articulation, development and approval of the UN Convention on the Rights of Persons with Disabilities (CRPD). The production of the Convention’s text involved the participation of the disability movement as well as specialists and representatives of several UN member states. At the 8th meeting, the Committee President emphasized the presence of 800 civil society activists from all parts of the world. Indeed, disable people organizations had an active role in preparing this unique human rights treaty. Civil society leaders from all over the world gathered at the International Disability Caucus (IDC) [21], a system composed of more than 70 international, regional and national organizations of people with disabilities, and active ONGs in the area.

Inter-American Institute on Disability and Inclusive Development (iiDi) creation

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The Inter-American Institute on Disability and Inclusive Development (iiDi), was created in 2005, as a meeting point for activists and professionals with and without disabilities. From the beginning iiDi worked with support from various UN agencies such as the World Bank and Organization of American States (OAS) to advocate for disability rights and influence international cooperation to advance inclusive public policies in the Region. Nowadays, iDii continues promoting inclusive development in Latin America with a focus on preparing a new generation of young activists through the META network.

Focus on children (UNICEF)

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In 2013, Bieler led the preparation of the first UNICEF thematic study on children with disabilities. The State of the World's Children 2013: Children with Disabilities[22] the report marked a turning point in the information produced on this topic and the way that several agencies approached disability issues, emphasizing a rights-based approach and the principles of equity and diversity. The report seeks to send the following message to governments and societies worldwide: "See the child, not the disability". After presenting this global vision, Rosângela's work was directed towards mainstreaming the theme of disability in all areas and programmers of UNICEF with the aim of ensuring global impact on the global development agenda. A UNICEF policy and global strategy on inclusion prepared by her and her team was approved and is being implemented. Her work also brought a gender approach and promoted the use of assistive technologies to contribute to inclusive education for children and adolescents with disabilities worldwide.

Personal life

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Bieler got married with Michael Christian Bieler, who died in 2011, after 25 years together. Her daughter, Mel, was born in 1986[23].

Leadership and affiliation

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  • 2011-2022: United Nations Children's Fund (UNICEF), Global Senior Advisor in Childhood and Disability
  • 2011-2022: United Nations Children's Fund (UNICEF), Chief of Disability Area.
  • 2004-2010: Inter-American Development Bank (IDB or IADB), Advisor.
  • 1989- currently: Ashoka Social Entrepreneurs, Social Entrepreneurs[24].
  • From 1980 decade until 1990 decade: Disabled People's International (DPI), Representative of Brazil.
  • From 1980 decade until 1990 decade: Rehabilitation International (RI), Vice-president of Latin America.
  • 2001: Inter-American Institute on Disability and Inclusive Development (iiDi), Founder and Director.
  • 1988: Independent Living Center of Rio de Janeiro (CVI-Rio), Founder and President.

Awards and recognition

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  • 2007: Award International Service Human Rights in the category: “Defense of the Human Rights of the People with Disabilities”
  • 2009: Award Human Rights in the category Guaranty of the Rights of the People with Disabilities. This is the main grant of the Brazilian Government on the Human Rights area, created by Presidential Decree in 1995.

Other publications and interviews

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  • Voices on the Convention on the Rights of Persons with Disabilities[25]
  • Being a Disabled Mother: Parenting and Family[26]
  • Brazilian activist awarded the International Service Human Rights Award[27]
  • Podcast episode ‘Leaving no one behind’, Rosângela Berman-Bieler[28]
  • Global Disability Summit: Leaving no one behind, Episode 8[29]
  • CVI of Rio: much history to tell [30]
  • “If the movement is not ruled by the human rights, it does not generate what it has to generate”[31]
  • “The strength of a militant”[32]

References

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  1. ^ ORGANIZAÇÃO das Nações Unidas. Dia Internacional da Mulher: Rosângela Berman Bieler, conselheira-sênior do Unicef. mar.2018. Available in: [1]. Access on: 15 out. 2022.
  2. ^ SYNERGOS. Network. Available in: [2]. Access on: 15 out. 2022.
  3. ^ CORDEIRO, Mariana Prioli. Nada sobre nós sem nós: os sentidos de vida independente para os militantes de um movimento de pessoas com deficiência. 2007. 187 f. Dissertação (Mestrado em Psicologia) - Pontifícia Universidade Católica de São Paulo, São Paulo, 2007. Available in: [3]. Access on: 15 out. 2022.
  4. ^ DISABLED People’s International. Website. 2022. Available in: [4]. Access on: 15 out. 2022.
  5. ^ WORLD Bank. En Breve. n.167. mar.2011. Available in: [5]. Access on: 15 out. 2022.
  6. ^ UNIVERSIDAD de Salamanca. Website. 2022. Available in: [6]. Access on: 15 out. 2022.
  7. ^ ASSOCIAÇÃO Brasileira Beneficente de Reabilitação. Website. 2022. Available in: [7]. Access on: 15 out. 2022.
  8. ^ ORGANIZAÇÃO Nacional de Deficientes Físicos. Blog da Organização Nacional de Entidades de Deficientes Físicos no Brasil.
  9. ^ CENTRO de Vida Independente do Rio de Janeiro. Website. Available in: [8]. Access on: 15 out. 2022.
  10. ^ LANNA JÚNIOR, Mário Cléber Martins (Comp.). História do Movimento Político das Pessoas com Deficiência no Brasil. Brasília: Secretaria de Direitos Humanos. Secretaria Nacional de Promoção dos Direitos da Pessoa com Deficiência, 2010. Available in: [9]. Access on: 21 out. 2022.
  11. ^ ALMEIDA, Késia Pontes de. A gente quer é ser um cidadão. 2011. Available in: [10]. Access on: 15 out. 2022.
  12. ^ MOVIMENTO Nacional de Reintegração das Pessoas Atingidas pela Hanseníase. Available in: [11]. Access on: 15 out. 2022.
  13. ^ LIBRAS. O que é a WFD? Available in: [12]. Access on: 15 out. 2022.
  14. ^ ASSOCIAÇÃO de Paralisia Cerebral do BrasiL. Website. Available in: [13]. Access on: 15 out. 2022.
  15. ^ LANNA JÚNIOR, Mário Cléber Martins (Comp.). História do Movimento Político das Pessoas com Deficiência no Brasil. Brasília: Secretaria de Direitos Humanos. Secretaria Nacional de Promoção dos Direitos da Pessoa com Deficiência, 2010.
  16. ^ UNITED Nations, Department of Economic and Social Affairs. Getting Women with Disabilities on the Development Agenda of the United Nations. Available in: [14]. Access on: 15 out. 2022.
  17. ^ ABILITIES. Independence 92. Available in: [15]. Access on: 15 out. 2022.
  18. ^ BIELER, Rosangela Berman. História nacional e internacional do movimento de pessoas portadoras de deficiência. Rio de Janeiro, 1993.
  19. ^ CONVENÇÃO Internacional sobre os Direitos das Pessoas com Deficiência. In: Wikipedia. Available in: [16]. Access on: 15 out. 2022.
  20. ^ CONVENÇÃO INTERNATIONAL Disability Alliance. Rosangela Berman-Bieler, UNICEF. Available in: [17]. Access on: 15 out. 2022.
  21. ^ UNITED Nations, Department of Economic and Social Affairs. International Disability Caucus. Available in: [18] ] Access on: 15 out. 2022.
  22. ^ FUNDO das Nações Unidas para a Infância. Situação Mundial da Infância 2013 - Crianças com deficiência. New York: United Nations publication, 2012. Available in: [19]. Access on: 15 out. 2022.
  23. ^ Singleton and Related Genealogy Pages. Michael Christian BIELER. Available in: [20]. Access on: 15 out. 2022.
  24. ^ ASHOKA. Fellow. Available in: [21]. Access on: 15 out. 2022.
  25. ^ THE CONVENTION on the Rights of Persons with Disabilities. Interviews: Rosângela Berman Bieler. Available in: [22]. Access on: 20 out.2022.
  26. ^ NGAI, Karen. Being a Disabled Mother: Parenting and Family Issues. Asia & Pacific Journal on Disability, n.3, sep. 1998. Available in: [23]. Access on: 20 out. 2022.
  27. ^ ASSOCIATION Pour le Progrès des Communications. Brazilian activist awarded with the International Service Human Rights Award. dez.2007. Available in: [24]. Access on: 20 out. 2022.
  28. ^ ENABLING education Network. New podcast episode ‘Leaving no one behind’, Rosangela Berman-Bieler. 10 fev. 2022. Available in: [25]. Access on: 20 out. 2022.
  29. ^ THE ATLAS Alliance. Episode 8: Global Disability Summit: Leaving no one behind. YouTube. 9 fev. 2022.
  30. ^ CENTRO de Vida Independente do Rio de Janeiro. Centro de Vida Independente do Rio de Janeiro. Revista Reação. Available in: [26]. Access on: 15 out. 2022.
  31. ^ VILLON. Elsa. Rosangela Berman Bieler: “Se o movimento não estiver pautado pelos direitos humanos, não gera o que tem que gerar”. Instituto Paradigma. dez.2021. Available in: [27]. Access on: 15 out. 2022.
  32. ^ BIELER, Rosangela Berman. A força de uma militante. Bengala Legal, nov.2011. Available in: [28]. Access on: 22 out. 2022.
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