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Self-help groups for mental health

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Self-help groups for mental health are voluntary associations of people who share a common desire to overcome mental illness or otherwise increase their level of cognitive or emotional wellbeing.[1] Despite the different approaches, many of the psychosocial processes in the groups are the same and they share similar relationships with mental health professionals.

Types

Mutual support and self-help

Mutual support or peer support is a process by which people voluntarily come together to help each other address common problems. Mutual support is social, emotional or instrumental support that is mutually offered or provided by persons with similar mental health conditions where there is some mutual agreement on what is helpful.[2][3]

Mutual support may include many other mental health consumer non-profits and social groups. Such groups are further distinguished as either Individual Therapy (inner-focused) or Social Reform (outer-focused) groups. The former is where members seek to improve themselves, where as the latter set encompasses advocacy organizations[4]

Self-help groups are subsets of mutual support and peer support groups, and have a specific purpose for mutual aid in satisfying a common need, overcoming a shared handicap or life-disrupting problem. Self-help groups are less bureaucratic and work on a more grassroots level.[2][5][6] Self-help Organizations are national affiliates of local self-help groups or mental health consumer groups that finance research, maintain public relations or lobby for legislation in favor of those affected.[5] Self-help groups include Family-to-Family education and support groups - the effectiveness of which has been confirmed in a recent controlled study.[7]

Behavior Control or Stress Coping groups

Of Individual Therapy groups, researchers distinguish between Behavior Control groups (such as Alcoholics Anonymous and TOPS) and Stress Coping groups (such as mental health support groups, cancer patient support groups, and groups of single parents).[8] German researchers refer to Stress Coping groups as Conversation Circles.[5]

Significant differences exist between Behavioral Control groups and Stress Coping groups. Meetings of Behavior Control groups tend to be significantly larger than Stress Coping counterparts (by more than a factor of two). Behavior Control group members have a longer average group tenure than members of Stress Coping groups (45 months compared to 11 months), and are less likely to consider their membership as temporary. While very few members of either set saw professionals concurrently while being active in their group, Stress Coping members were more likely to have previously seen professionals than Behavior Control group members. Similarly, Stress Coping groups worked closer with mental health professionals.[8][9]

Member vs professional leadership

Member leadership. In Germany a specific subset of Conversation Circles are categorized as Talking Groups (Gesprächsselbsthilfegruppen). In Talking Groups all members of the group have the same rights, each member is responsible only for themselves (group members do not make decisions for other group members), each group is autonomous, everyone attends the group on account of their own problems, whatever is discussed in the group remains confidential, and participation is free of charge.[5]

Professionally led group psychotherapy. Self-help groups are not intended to provide "deep" psychotherapy. Nevertheless, their emphasis on psychosocial processes, and the understanding shared by those with the same or similar mental illnesses does achieve constructive treatment goals.[10]

Interpersonal learning, which is done through processes such as feedback and confrontation, is generally deemphasized in self-help groups. This is largely because it can be threatening, and requires training and understanding of small group processes. Similarly, reality testing, is also deemphasized. Reality testing relies on consensual validation, offering feedback, seeking feedback and confrontation. These processes seldom occur in self-help groups, though they frequently occur in professionally directed groups.[3][9]

Group processes

No two self-help group are exactly alike, the make-up and attitudes are influenced by the group ideology and environment.[3] In most cases, the group becomes a miniature society that can function like a buffer between the members and the rest of the world.[10] The most essential processes are those that meet personal and social needs in an environment of safety and simplicity. Elegant theoretical formulations, systematic behavioral techniques, and complicated cognitive-restructuring methods are not necessary.[9]

Despite the differences, researchers have identified many psychosocial processes occurring in self-help groups related to their effectiveness. This list includes, but is not limited too: acceptance, behavioral rehearsal, changing member's perspectives of themselves, changing member's perspectives of the world, catharsis, extinction, role modeling, learning new coping strategies, mutual affirmation, personal goal setting, instilling hope, justification, normalization, positive reinforcement, reducing social isolation, reducing stigma, self-disclosure, sharing (or "opening up"), and showing empathy.[2][3][5][9][10][11][12]

Five theoretical frameworks have been used in attempts to explain the effectiveness of self-help groups.[2]

  1. Social support: Having a community of people to give physical and emotional comfort, people who love and care, is a moderating factor in the development of psychological and physical disease.
  2. Experiential knowledge: Members obtain specialized information and perspectives that other members have obtained through living with severe mental illness. Validation of their approaches to problems increase their confidence.
  3. Social learning theory: Members with experience become creditable role models.
  4. Social comparison theory: Individuals with similar mental illness are attracted to each other in order to establish a sense of normalcy for themselves. Comparing one another to each other is considered to provide other peers with an incentive to change for the better either through upward comparison (looking up to someone as a role model) or downward comparison (seeing an example of how debilitating mental illness can be).
  5. Helper theory: Those helping each other feel greater interpersonal competence from changing other's lives for the better. The helpers feel they have gained as much as they have given to others. The helpers receive "personalized learning" from working with helpees. The helpers' self-esteem improves with the social approval received from those they have helped, putting them an a more advantageous position to help others.

A framework derived from common themes in empirical data describes recovery as a contextual nonlinear process, a trend of general improvement with unavoidable paroxysms while negotiating environmental, socioeconomic and internal forces, motivated by a drive to move forward in one's life. The framework identified several negotiation strategies, some designed to accommodate illnesses and others designed to change thinking and behavior. The former category includes strategies such as acceptance and balancing activities. The latter includes positive thinking, increasing one's own personal agency/control and activism within the mental health system.[13]

Relationship with mental health professionals

A 1978 survey of mental health professionals in the United States found they had a relatively favorable opinion of self-help groups and there was a hospitable climate for integration and cooperation with self-help groups in the mental health delivery system.[6] The role of self-help groups in instilling hope, facilitating coping, and improving the quality of life of their members is now widely accepted in many areas both inside and outside of the general medical community.[3]

A survey of psychotherapists in Germany found that 50% of the respondents reported a high or very high acceptance of self-help groups and 43.2% rated their acceptance of self-help groups as moderate. Only 6.8% of respondents rated their acceptance of self-help groups as low or very low.[14]

Surveys of self-help groups has shown very little evidence of antagonism towards mental health professionals.[15] The maxim of self-help groups in the United States is "Doctors know better than we do how a sickness can be treated. We know better than doctors how sick people can be treated as humans."[5]

Professional referrals to self-help groups for mental health are less effective than arranging for prospective self-help members to meet with veterans of the self-help group. This is true even when compared to referrals from professionals familiar with the self-help group when referring clients to it.[11] Referrals mostly come from informal sources (e.g. family, friends, word of mouth, self). Those attending groups as a result of professional referrals account for only one fifth to one third of the population.[3] One survey found 54% of members learned about their self-help group from the media, 40% learned about the their group from friends and relatives, and relatively few learned about them from professional referrals.[8]

Effectiveness

Self-help groups are effective for helping people cope with, and recover from, a wide variety of problems.[2][16] German Talking Groups have been shown to be as effective as psychoanalytically oriented group therapy.[5][17] Effects of 12-step programs exceed those of cognitive-behavioral inpatient programs.[18] Participation in self-help groups for mental health is correlated with reductions in psychiatric hospitalizations, and shorter hospitalizations if they occur. Members demonstrate improved coping skills, greater acceptance of their illness, improved medication adherence, decreased levels of worry, higher satisfaction with their health, improved daily functioning and improved illness management. Participation in self-help groups for mental health encourages more appropriate use of professional services, making the time spent in care more efficient. The amount of time spent in the programs, and how proactive the members are in them, has also been correlated with increased benefits.[2][11] Decreased hospitalization and shorter durations of hospitalization indicate that self-help groups result in financial savings for the health care system, as hospitalization is one of the most expensive mental health services. Similarly, reduced utilization of other mental health services may translate into additional savings for the system.[2]

While self-help groups for mental health increase self-esteem, reduce stigma, accelerate rehabilitation, improve decision-making, decrease tendency to decompensate under stress, and improve social functioning, they are not always shown to reduce psychiatric symptomatology.[3][10][19] The therapeutic effects are attributed to the increased social support, sense of community, education and personal empowerment.[20][21][22]

Members of self-help groups for mental health rated their perception of the group's effectiveness on average at 4.3 on a 5-point Likert scale.[8]

Affiliation and lifespan

If self-help groups are not affiliated with a national organization, professional involvement increases their life expectancy. Conversely, if particular groups are affiliated with a national organization professional involvement decreases their life expectancy.[23] Rules enforcing self-regulation in Talking Groups are essential for the group's effectiveness.[5]

List of self-help groups for mental health

National Alliance on Mental Illness

Main article: National Alliance on Mental Illness § NAMI Peer-to-Peer

NAMI Peer to Peer is an educational program hosted by the National Alliance on Mental Illness, a mental illness advocacy and psycho-education group with branches in most areas of the United States. The program involves a 10-week educational course target at those diagnosed with a mental illness and aims to impress on its attendees better practical coping skills and knowledge of mental illnesses in hopes of empowering individuals.

NAMI has Peer-to-Peer classes in addition to the family-to-family classes.[24] In recent years, culturally adapted versions of the Family to Family program have begun to spread to lower income countries, for example, in El Salvador (www.ACISAM.org, in collaboration with the U.S. based Center for Health and Human Development), Mexico, and Malaysia.

Emotions Anonymous

Main article: Emotions Anonymous

Emotions Anonymous (EA) is a twelve-step program similar to Alcoholics Anonymous (AA), but for the purpose of helping its members recover from depression and other mental illnesses. EA is the largest of three organizations that have adapted AA's Twelve Steps to create a program for people suffering from mental or emotional illness, replacing the word "alcohol" with "our emotions" in the First Step. Smaller organizations include Neurotics Anonymous (N/A or NAIL) and Emotional Health Anonymous (EHA). EA is a successor organization of Neurotics Anonymous.

EA and NAIL are open to anyone who desires to become emotionally well,[25][26] EHA additionally requires that members are not suffering from problems that are specifically addressed by other twelve-step groups (e.g. substance abuse, eating disorders, sexual addiction, compulsive gambling, etc.).[27] According to the Twelve Traditions, EA, NAIL, and EHA groups cannot accept outside contributions.[15]

BPDFamily.com

Main article: BPDFamily.com

BPDFamily.com is 75,000 member online group of family members of individuals suffering from Borderline personality disorder (BPD). It is an independent, multi-national support resource for families with limited access to mental health care.

The site's platform is "stress coping" and "family to family" and it focuses on the teaching of conventional behavioral and interpersonal relationship tools and self-awareness. The site has an interactive web program that teaches the basic principles of Cognitive behavior therapy[28] which is commonly used to treat depression.[29] Depression is common among family members. In a survey of 448 family members, using a self-administered questionnaire developed by David Burns MD (Stanford University), 56% self-identified as having mild to moderate depression and 21% self-identified as having severe to extreme depression.[30] The interactive Cognitive behavior therapy program, "MoodGym", was developed by the Centre for Mental Health Research at the Australian National University. It consists of five modules: an interactive game, anxiety and depression assessments, down-loadable relaxation audio file, a workbook and feedback assessment. The program takes one to two weeks to complete.[28] Clinical studies have demonstrated that computerized-CBT can be an effective alternative treatment for mild and moderate depression.[31][32]

GROW

Main article: GROW

GROW was founded in Sydney, Australia, in 1957 by a Roman Catholic priest, Father Cornelius Keogh, and people who had sought help with their mental illness at Alcoholics Anonymous (AA) meetings. After its inception, GROW members learned of Recovery, Inc. (the organization now known as Recovery International) and integrated its processes into their program. GROW's original literature includes the Twelve Stages of Decline, which state that emotional illness begins with self-centeredness, and the Twelve Steps of Recovery and Personal Growth, a blend of AA's Twelve Steps and will-training methods from Recovery International. GROW groups are open to anyone who would like to join, though they specifically recruit people who have been in psychiatric hospitals or are socioeconomically disadvantaged. GROW does not operate with funding restrictions and have received state and outside funding in the past.[15]

Recovery International

Main article: Recovery International

Recovery, Inc. was founded in Chicago, Illinois in 1937 by psychiatrist Abraham Low using principles in contrast to those popularized by psychoanalysis.[33] During the organization's annual meeting in June 2007 it was announced that Recovery, Inc. would thereafter be known as Recovery International.[34] Recovery International is open to anyone identifying as "nervous" (a compromise between the loaded term neurotic and the colloquial phrase "nervous breakdown");[33] strictly encourages members to follow their physician's, social worker's, psychologist's or psychiatrist's orders; and does not operate with funding restrictions.[15]

Fundamentally, Low believes "Adult life is not driven by instincts but guided by Will," using a definition of will opposite of Arthur Schopenhauer's. Low's program is based on increasing determination to act, self-control and self-confidence. Edward Sagarin compared it to a modern, reasonable, and rational implementation of Émile Coué's psychotherapy.[33] Recovery International is "twelve-step friendly." Members of any twelve-step group are encourage to attend Recovery International meetings in addition to their twelve-step group participation.[35]

Criticism

There are several limitations of self-help groups for mental health, including but not limited to their inability to keep detailed records, lack of formal procedures to follow up with members, absence of formal screening procedures for new members, lack formal leadership training, and likely inability of members to recognize a "newcomer" presenting with a serious illness requiring immediate treatment. Additionally, there is a lack of professional or legal regulatory constraints determining how such groups can operate, there is a danger that members may disregard the advice of mental health professionals, and there can be an anti-therapeutic suppression of ambivalence and hostility.[10][15] Researchers have also elaborated specific criticisms regarding self-help groups' formulaic approach, attrition rates, over-generalization, and "panacea complex".

Researchers have questioned whether formulaic approaches to self-help group therapy, like the Twelve Steps, could stifle creativity or if adherence to them may prevent the group from making useful or necessary changes.[10][36] Similarly others have criticized self-help group structure as being too rigid.[15]

There is not a universal appeal of self-help groups; as few as 17% of people invited to attend a self-help group will do so. Of those, only one third will stay for longer than four months. Those who continue are people who value the meetings and the self-help group experience.[3][10][15]

Since these groups are not specifically diagnosis-related, but rather for anyone seeking mental and emotional health, they may not provide the necessary sense of community to evoke feelings of oneness required for recovery in self-help groups.[11] Referent power is only one factor contributing to group effectiveness. A study of Schizophrenics Anonymous found expert power to be more influential in measurements of perceived group helpfulness.[37]

There is a risk that self-help group members may come to believe that group participation is a panacea—that the group's processes can remedy any problem.[3][10]

See also

References

  1. ^ Humphreys, Keith; Rappaport, Julian (Autumn 1994). "Researching self-help/mutual aid groups and organizations: Many roads, on journey". Applied and Preventive Psychology. 3 (4): 217–231. doi:10.1016/S0962-1849(05)80096-4.
  2. ^ a b c d e f g Solomon, Phyllis (2004). "Peer support/peer provided services underlying processes, benefits, and critical ingredients". Psychiatric rehabilitation journal. 27 (4): 392–401. doi:10.2975/27.2004.392.401. ISSN 1095-158X. PMID 15222150.
  3. ^ a b c d e f g h i Davidson, Larry; Chinman, Matthew; Kloos, Bret; Weingarten, Richard; Stayner, David; Kraemer, Jacob (1999). "Peer Support Among Individuals with Severe Mental Illness: A Review of the Evidence". Clinical Psychology: Science and Practice. 6 (2): 165–187. doi:10.1093/clipsy/6.2.165. ISSN 1468-2850.
  4. ^ Tomes, Nancy (May 2006). "The Patient As A Policy Factor: A Historical Case Study Of The Consumer/Survivor Movement In Mental Health". Health affairs (Project Hope). 25 (3): 720–729. doi:10.1377/hlthaff.25.3.720. ISSN 1544-5208. PMID 16684736.
  5. ^ a b c d e f g h Moeller, Michael L. (1999). "History, Concept and Position of Self-Help Groups in Germany". Group Analysis. 32 (2): 181–194. doi:10.1177/05333169922076653. ISSN 0533-3164.
  6. ^ a b Levy, Leon H. (1978). "Self-help groups viewed by mental health professionals: A survey and comments". American Journal of Community Psychology. 6 (4): 305–313. doi:10.1007/BF00885522. ISSN 0091-0562. PMID 696694.
  7. ^ Dixon, L. B., Lucksted, A., Medoff, D. R., Burland, J., Stewart, B., Lehman, A. F., Fang, L. J., Sturm, V., Brown, C., Murray-Swank, A. (2011). Outcomes of a randomized study of a peer-taught family-to-family education program for mental illness.
  8. ^ a b c d Knight, Bob (February 1980). "Self-help groups: The members' perspectives". American Journal of Community Psychology. 8 (1): 53–65. doi:10.1007/BF00892281. ISSN 0091-0562. PMID 7369192. {{cite journal}}: Unknown parameter |coauthors= ignored (|author= suggested) (help)
  9. ^ a b c d Wollert, Richard W.; Levy, Leon H.; Knight, Bob G. (May 1982). "Help-Giving in Behavioral Control and Stress Coping Self-Help Groups". Small Group Research. 13 (2): 204–218. doi:10.1177/104649648201300206. ISSN 1046-4964.
  10. ^ a b c d e f g h Dean, Stanley R. (January 1971). "The Role of Self-Conducted Group Therapy". American Journal of Psychiatry. 127 (7): 934–937. ISSN 0002-953X. PMID 5540340.
  11. ^ a b c d Powell, Thomas J.; Hill, Elizabeth M.; Warner, Lynn; Yeaton, Willian; Silk, Kenneth R. (2000). "Encouraging People With Mood Disorders to Attend a Self-Help Group". Journal of Applied Social Psychology. 20 (11): 2270–2288. doi:10.1111/j.1559-1816.2000.tb02436.x. ISSN 0021-9029.
  12. ^ Sargent, Judy (2002). "Sense of Belonging as a Buffer Against Depressive Symptoms". Journal of the American Psychiatric Nurses Association. 8 (4): 120–129. doi:10.1067/mpn.2002.127290. ISSN 1532-5725. {{cite journal}}: Unknown parameter |coauthors= ignored (|author= suggested) (help)
  13. ^ Ochocka, Joanna; Nelson, Geoff; Janzen, Rich (Spring 2005). "Moving Forward: Negotiating Self and External Circumstances in Recovery". Psychiatric Rehabilitation Journal. 28 (4): 315–322. doi:10.2975/28.2005.315.322. PMID 15895914.
  14. ^ Friedhelm, Meyer (December 2004). "Self-help groups for psychiatric and psychosomatic disorders in Germany—themes, frequency and support by self-help advice centres". Journal of Public Health. 12 (6): 359–364. doi:10.1007/s10389-004-0071-0. ISSN 0943-1853. {{cite journal}}: Unknown parameter |coauthors= ignored (|author= suggested) (help)
  15. ^ a b c d e f g Kurtz, Linda F.; Chambon, Adrienne (1987). "Comparison of self-help groups for mental health". Health & social work. 12 (4): 275–283. ISSN 0360-7283. PMID 3679015.
  16. ^ Kyrouz, Elaina M.; Humphreys, Keith; Loomis, Colleen (October 2002). "Chapter 4: A Review of Research on the Effectiveness of Self-help Mutual Aid Groups". In White, Barbara J.; Madara, Edward J. (ed.). American Self-Help Group Clearinghouse Self-Help Group Sourcebook (7th ed.). American Self-Help Group Clearinghouse. pp. 71–86. ISBN 1-930683-00-6. Retrieved 2008-01-06. {{cite book}}: External link in |chapterurl= (help); Unknown parameter |chapterurl= ignored (|chapter-url= suggested) (help)CS1 maint: multiple names: editors list (link)
  17. ^ Daum, K.W.; Matzat, J.; Moeller, M.L. (1984). "Psychologisch-therapeutische Selbsthilfegruppen: Ein Forschungsbericht". Schriftenreihe des Bundesministers fur Jugend, Familie und Gesundheit. (in German) (Stuttgart: Kohlhammer).
  18. ^ Humphreys K, Moos RH (1996). "Reduced substance abuse-related health care costs among voluntary participants in Alcoholics Anonymous". Psychiatr Serv. 47 (7): 709–713. PMID 8807683.
  19. ^ Kaufman, C. L. (1996). "The lion's den: Social identities and self help groups". The Community Psychologist. 29: 11–13. OCLC 14089992.
  20. ^ Hatzidimitriadou, E. (2002). "Political ideology, helping mechanisms and empowerment of mental health self-help/mutual aid groups". Journal of Community and Applied Social Psychology. 12 (4): 271–285. doi:10.1002/casp.681. ISSN 1099-1298. OCLC 43956503.
  21. ^ Kurtz, Linda (1990). "The self-help movement: review of the past decade of research". Social Work with Groups. 13 (3): 101–115. doi:10.1300/J009v13n03_11. ISSN 0160-9513.
  22. ^ Maton, Kenneth I. (February 1988). "Social support, organizational characteristics, psychological wellbeing and group appraisal in three self-help populations". American Journal of Community Psychology. 16 (1): 53–77. doi:10.1007/BF00906072. ISSN 0091-0562. PMID 3369383.
  23. ^ Maton, Kenneth I. (October 1989). "Factors affecting the birth and death of mutual-help groups: The role of national affiliation, professional involvement, and member focal problem". American Journal of Community Psychology. 17 (5): 643–671. doi:10.1007/BF00922640. ISSN 0091-0562. PMID 2627026. {{cite journal}}: Unknown parameter |coauthors= ignored (|author= suggested) (help)
  24. ^ Psychiatric Services, 62(6), 591-598.
  25. ^ Boydston, Grover (1974). "Part I. Introduction". A history and status report of Neurotics Anonymous, an organization offering self-help for the mentally and emotionally disturbed (Thesis). Miami, Florida: Barry University. pp. 1–5. OCLC 14126024.
  26. ^ Emotions Anonymous (1996). "Chapter 1. An Invitation". Emotions Anonymous (Revised ed.). St. Paul, Minnesota: Emotions Anonymous International Services. pp. 1–6. ISBN 0-9607356-5-8. OCLC 49768287.
  27. ^ Emotional Health Anonymous (2007-04-02). "Frequently Asked Questions". Retrieved 2007-06-02.
  28. ^ a b "On-Line Cognitive Therapy Program". BPDFamily.com. Retrieved 2014-11-21.
  29. ^ Goldberg, Joseph (23 July 2012). "Cognitive Behavioral Therapy for Depression". WebMD.
  30. ^ "Depression Self Testing". BPDFamily.com. Retrieved 2014-11-21.
  31. ^ Selmi, Carlo; Klein, Marjorie; Greist, John (January 1990). "Computer-administered cognitive-behavioral therapy for depression". Am J Psychiatry. 147 (1): 51–6. doi:10.1176/ajp.147.1.51. PMID 2403473.
  32. ^ Osgood-Hynes, Deb; Greist, John; Marks, Isaac (July 1998). "Self-administered psychotherapy for depression using a telephone-accessed computer system plus booklets: an open U.S.-U.K. study". J Clin Psychiatry. 59 (7): 358–65. doi:10.4088/jcp.v59n0704. PMID 9714264.
  33. ^ a b c Sagarin, Edward (1969). "Chapter 9. Mental patients: are they their brothers' therapists?". Odd Man In: Societies of Deviants in America. Chicago, Illinois: Quadrangle Books. pp. 210–232. ISBN 0-531-06344-5. OCLC 34435.
  34. ^ "Annual Meeting". Recovery Reporter. 70 (2). Chicago, Illinois: Recovery, Inc. 2007. OCLC 22518904.
  35. ^ Dey, Bob (2006-10-14). "How Recovery Inc. has Helped Me Stay Sober (page 1)". Archived from the original on 2009-02-20. Retrieved 2007-06-02.
    Dey, Bob (2006-10-14). "How Recovery Inc. has Helped Me Stay Sober (page 2)". Archived from the original on 2009-02-20. Retrieved 2009-02-20.
  36. ^ Sagarin, Edward (1969). "Chapter 3. Gamblers, addicts, illegitimates, and others: imitators and emulators". Odd man in; societies of deviants in America. Chicago, Illinois: Quadrangle Books. pp. 56–77. ISBN 0-531-06344-5. OCLC 34435.
  37. ^ Salem, Deborah; Reischl, Thomas M.; Gallacher, Fiona; Randall, Katie Weaver (June 2000). "Referent and Expert Power in Mutual Help". American Journal of Community Psychology. 28 (3): 303–324. doi:10.1023/A:1005101320639. ISSN 1573-2770. PMID 10945119.
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