Disability in the arts
Disability in the arts is an aspect within various arts disciplines of inclusive practices involving disability, and manifests itself in the output and mission of some stage and modern dance performing-arts companies, as well as the subject matter of individual works of art, such as the work of specific painters and those who draw.
Disability in the arts is distinguished from disability art in that it refers to art that includes disabled people, whether in themes, performance, or the creation of the artwork, rather than works focusing on disability as the central theme. It[specify] can also refer to work that is made as a political act toward shaping a new community, fostering disability culture:
Disability culture is the difference between being alone, isolated, and individuated with a physical, cognitive, emotional or sensory difference that in our society invites discrimination and reinforces that isolation – the difference between all that and being in community. Naming oneself part of a larger group, a social movement or a subject position in modernity can help to focus energy, and to understand that solidarity can be found – precariously, in improvisation, always on the verge of collapse.—Petra Kuppers
People with disabilities sometimes participate in artistic activities as part of expressive therapy (also known as "expressive arts therapy" or "creative arts therapy"). Expressive therapy may take the form of writing therapy, music therapy, drama therapy, or another artistic method. While creativity and artistic expression are important parts of expressive therapy, they are secondary to the goal of achieving a therapeutic benefit. This article describes disability in the arts where artistic achievement is the primary goal.
- 1 Performing arts
- 2 Film
- 3 Visual Arts
- 4 Literature
- 5 Accessibility of arts and cultural facilities and programs
- 6 Accessibility organizations for the arts
- 7 See also
- 8 References
- 9 External links
The physically integrated dance movement is part of the disability culture movement, which recognizes and celebrates the first-person experience of disability, not as a medical model construct but as a social phenomenon, through artistic, literary, and other creative means.
Musicians and composers have a long history of overcoming a variety of disabilities to master the art of music. The ability to play a musical instrument requires several physical skills, that are different depending upon which instrument is being played. Finger dexterity may be needed for piano, guitar, or woodwind instruments such as the flute; the ability to hold an instrument for long periods of time to perform or practise, such as with string or brass instruments, may be a challenge to someone with mobility, muscle strength, or balance impairments; and cognitive abilities such as great concentration, the ability to remember techniques, and the ability to memorize or improvise new music on the spot may be necessary.
Beethoven is remembered for his ability to compose classic music after completely losing his hearing. He tried several ways of using his deteriorating hearing before it completely disappered; for example, he had the legs of his pianoforte (an early model of piano) cut off, so that it was sitting directly on the floor. By lying on the floor in front of the keyboard, he could feel vibrations while he played, helping him to compose. Different attempts were made to help Beethoven with adaptive or assistive technology. Thomas Broadwood, the Streichers, and Conrad Graf were all piano manufacturers who tried different methods of adapting the instrument to make it louder for Beethoven: ear trumpets were attached to the soundboard, resonance plates were added to the underside of a piano, and using four strings for every key were all tried. Beethoven ultimately suffered a total loss of hearing, and could no longer rely on an instrument to help him compose. Beethoven still persevered, and composed his Ninth Symphony at this time in his life.
Belgian jazz guitarist Django Reinhardt was a 20-year-old, accomplished guitarist when his left hand was severely burned in a house fire, leaving him with only the use of two fingers for playing the fretboard on the neck of the guitar. While he recovered from his burns, his brother gave him a new guitar. Reinhardt devised his own physical therapy, practising daily to stretch his functioning fingers. He also invented new techniques to compensate for the lost fingers:
Instead of playing scales and arpeggios horizontally across the fretboard as was the norm, he searched out fingerings that ran vertically up and down the frets as they were easier to play with just two fingers. He created new chord forms using a minimum of notes—often just triads with his two good fingers on the bass strings. He pushed his paralyzed fingers to grip the guitar as well, his smallest digit on the high E string, his ring finger on the B, and sometimes barring his index finger to fashion chords of four to five notes. He then slid his hand up and down the fretboard, employing these chord forms to craft a fluent vocabulary.
Reinhardt continued to work as a guitarist, and became world famous as a recording artist. Reinhardt's creative techniques became part of the jazz guitar repertoire, and are used today by guitarists who have no physical limitations on their playing.
Melody Gardot, a jazz vocalist, suffered a severe traumatic brain injury after she was hit by a car while riding a bicycle. Gardot's injury impaired her memory, including her ability to speak. She spent a year recovering in hospital. While in hospital, her therapy required her to relearn the process of completing simple tasks, such as remembering to shut off a water tap after brushing her teeth. Remembering words to complete sentences was a challenge for Gardot. A doctor suggested that Gardot try singing sentences as an alternative to speaking them, as a way of improving her ability to remember longer sentences. Gardot discovered that this method improved her memory. Gardot gained a music following by adding recordings of her music to Myspace in 2006. Gardot is now a world-famous recording artist, in both French and English, and gives concerts around the globe. She sometimes still has memory lapses while performing, and Gardot needs to wear sunglasses to protect her light-sensitive eyes. She carries a cane when she occasionally experiences vertigo. Her hit songs are known to many people who are unaware of her injuries and her continued recovery.
In 2011, British composer Charles Hazlewood formed the British Paraorchestra, an orchestra that aims to consist entirely of skilled disabled musicians to counter his belief that orchestras do not contain enough disabled musicians. The formation of the orchestra was the subject of a Channel 4 documentary, and it also performed during the closing ceremony of the 2012 Summer Paralympics in London.
In the UK the One Handed Musical Instrument Trust has the objective of removing the barriers to music-making faced by the physically disabled. It comments: "There is currently no orchestral instrument that can be played without two fully functioning hands and arms, denying unlimited participation in musical life to those with congenital disabilities and amputees, as well as the millions who may have been injured, suffered a stroke or developed arthritis. The primary obstacle is the absence of suitable instruments."
As part of the intellectual and political project of Disability Studies, a notable number of recent books have been published on the subject disability in / and music, including:
Neil Lerner and Joseph N. Straus, eds. Sounding Off: Theorizing Disability in Music
Alex Lubet, Music, Disability, and Society
George McKay, Shakin' All Over: Popular Music and Disability
George McKay, ed. Popular Music, special issue on disability
Terry Rowden, The Songs of Blind Folk: African American Musicians and the Cultures of Blindness
Joseph N. Straus, Extraordinary Measures: Disability in Music
In modern times, the treatment of disability in theatre works has reflected an evolution in mainstream social attitudes towards disability. In Western culture, disability was once rarely mentioned in plays. Notable exceptions include Shakespeare's Richard III. The character of Richard III, who is deformed and lame, has served as an influential example of an "anti-hero". Richard's physical disabilities symbolize the fundamental weakness in his character. Yet Shakespeare was conscious of the common mistake of equating physical beauty with personal or moral qualities, or the reverse perception, that physical unattractiveness represents personal flaws (he satirizes such attitudes in his Sonnet 130). Richard III is portrayed as a complex character, one whose tragedy is in surrendering to his moral weaknesses rather than overcoming them.
The inclusion of disabled performers in theatre has developed in tandem with wider public acceptance of integrating people with disabilities in mainstream society. French theatre actress Sarah Bernhardt was already famous when she suffered a leg amputation at age 71. She determined to continue her stage career despite the prevailing 19th-century attitude that deformity was a shameful condition to be hidden. Bernhardt won public acceptance of her decision to continue performing, which she often did from a wheelchair (which she preferred to a prosthetic leg).
Today, pioneering work is done by such theatre groups as the National Theatre Workshop of the Handicapped (NTWH), based in New York City. NTHW maintains a professional repertory theatre company, as well as handling work in advocacy, training, and production in theatre for performers with disabilities. It was primarily inclusive of performers and playwrights with physical disabilities when it was founded in 1977. NTWH now oversees projects such as the Writers’ Program for Wounded Warriors, which serves as both a therapeutic and artistic program for war veterans to explore the psychological, emotional and spiritual experiences of war. Famous People Players (founded in 1974) is a well-known touring puppetry company based in Toronto, Canada, that integrates developmentally disabled performers.
Some notable 20th century plays have dealt directly with disability. American playwright Tennessee Williams wrote many plays with female leads who were at least in part inspired by his sister Rose, who was diagnosed with schizophrenia, and then left severely disabled by a lobotomy as a young woman. Characters who reflect Rose's struggle with mental illness include Laura in The Glass Menagerie, Blanche DuBois in A Streetcar Named Desire, and Catherine in the screenplay Williams wrote for the 1959 film Suddenly, Last Summer. In Williams' plays, such women are seen as suffering tragedy as a result of their illness.
Leonard Gershe's Butterflies Are Free, about a young blind man who wins his independence from an overprotective mother, debuted on Broadway in 1969, was made into a popular film in 1972. However, the main character was played by non-blind actors in both the original run of the play and the film version. In contrast, the play Children of a Lesser God, written by Mark Medoff and debuting in 1980, included a deaf actress playing the female lead role of a character who is deaf. This continued in the 1986 film version; Marlee Matlin, who is deaf, won an Academy Award for Best Actress.
Blue Apple Theatre
Blue Apple Theatre is an award-winning inclusive theatre company based in Winchester, England. It was founded in 2005 by Jane Jessop to pioneer the inclusion of actors with intellectual disabilities on mainstream stages. In May 2012, six Blue Apple actors made history by touring a ground-breaking re-imagining of William Shakespeare's Hamlet around the South of England. They were the first actors with Down Syndrome to perform the play professionally. The title role was played by Tommy Jessop.
Graeae Theatre Company
Graeae Theatre Company is a British organisation composed of artists and managers with physical and sensory impairments. It was founded in 1980 by Nabil Shaban and Richard Tomlinson and named for the Graeae of Greek mythology. In 1981 the Company was offered the use of an office, rehearsal space and facilities for 18 months by the West End Centre, an Arts Centre in Aldershot in Hampshire.
Nicu's Spoon Theater Company
PHAMALY, the Physically Handicapped Actors & Musical Artists League, is a theater group and touring company formed in 1989 when a group of former students of the Boettcher School in Denver, Colorado, frustrated with the lack of theatrical opportunities for people with disabilities, decided to found a company of their own. PHAMALY performs at the Denver Performing Arts Complex and the Aurora Fox Theatre. The company's season also includes various touring and educational shows.
Theater Breaking Through Barriers
Theater Breaking Through Barriers (TBTB), formerly Theater By the Blind, is an inclusive theater company in New York City that strives develop the talents of individuals with disabilities for work onstage, backstage, in the office and in the audience. It began in 1979 as sighted actors recording plays for the blind. The theater then moved to performances for the blind and then blind performances for the sighted.
Film in disability typically involves the portrayal of one disability or another in a way that is meant to communicate a specific message or perspective. Many films strive to create a sense of inclusiveness and awareness, thereby eliminating the apparent social stigma associated with disability. Many films aim to trigger discussion and other forms of engagement revolving around disability. Independent disability film is often screened on a larger scale during disability film festivals. ReelAbilities, for example, acts to “[promote] appreciation and awareness of the lives, stories and artistic expressions of people with various disabilities.” They additionally aim to “bring together our community to explore, discuss, embrace, and celebrate the diversity of our shared human experience.” Disability in film has been a relatively recent phenomenon; as Hollywood has “kept its distance, favouring conditions such as blindness, deafness and discreet mental illnesses which exhibit no outward sign of deformity, though good-looking wheelchair users have proved acceptable.” According to scholar David T. Mitchell, it was nearly thirty years ago that “a resurgence of concern over the consequences of dehumanizing representations (monster, freak, madman, suffering innocent, hysteric, beggar) resulted in suspicion over the ultimate utility of representational studies about disability.” Mitchell further discusses the shift to altering the social perception of various disabilities in the public sphere.
Disability has been portrayed in film since the era of silent cinema. Disability may be an essential plot element or make a significant contribution in another way as part of the screenplay. The experiences of disabled war veterans were often the basis of early films that dealt with disability. The Light That Failed, a popular short story by British author Rudyard Kipling, was filmed in 1916, 1923 and 1939. The protagonist, a veteran gradually losing his eyesight, became in many ways a template for many films that would portray disabled veterans as tragic victims. Films in this pattern include The Men (1950), starring Marlon Brando, and Johnny Got His Gun (film) (1971), an anti-war film directed by Dalton Trumbo. Other early films established the pattern of portraying disabled soldiers as "noble warriors", confronting and overcoming both physical disability and society's lack of understanding upon their return home. Some examples include Thirty Seconds Over Tokyo (1944), Since You Went Away (1944), and the groundbreaking The Best Years of Our Lives (1945). The Best Years of Our Lives tells the story of several veterans who are disabled in battle, then return home to face their own bitterness and the challenge of reintegrating into society as men with a disability. Some members of the film industry opposed the decision to cast Harold Russell, a real-life veteran who lost both hands in a training accident, stating that it was in "poor taste". However, the film was popular with audiences, and Russell was awarded the Academy Award for Best Supporting Actor, as well as "a special Oscar for 'Bringing hope and courage to his fellow veterans'".
Early portrayals of women with disabilities rarely strayed from an image of an innocent, sheltered young woman. Even a nuanced film like Charlie Chaplin's City Lights (1931) follows this pattern. This film tells the story of the Little Tramp's efforts to help a blind flower girl with whom he falls in love. The film was radical in challenging the audience at the end of the film to take the point of view of someone blind, to metaphorically "see" beyond their prejudices towards others. The melodrama Johnny Belinda (1948), which depicts an innocent young deaf woman raped and then defending herself from an attempted murder, does little to give the lead character any depth beyond being a typical "plucky" and brave hero. Yet, the film was notable for bringing sign language to mainstream film audiences for the first time, and for making a woman with a disability the main character and allowing her to triumph over adversity. Children of a Lesser God (1986) shattered the stereotype of the innocent young woman with a disability. The character Sarah is independent, strong-willed, and often fails to recognize what is in her own best interests. Marlee Matlin won the Academy Award for Best Actress, and was an exception to the general rule that only non-disabled actors would appear in high-profile film roles depicting someone with a disability.
ReelAbilities, is an annual film festival in the United States screening films about disability issues.
- Sur mes lèvres features a heroine who is introduced immediately with a shot of her putting her earpiece in. Carla (Emmanuelle Devos) is by no means weak-willed, but her partial deafness makes it more distressing to watch her cope with her job as an overworked and under-appreciated secretary. It is only when she faints from the exhaustion of picking up after her unpleasant coworkers that Carla accepts the boss's offer of an intern assistant. She rapidly falls in love with her new colleague, an ex-convict, and ends up colluding with him in an outlandish scheme.
- Rory O'Shea Was Here, about a young rebel man with muscular dystrophy who tries to help a fellow young man with cerebral palsy follow him in the arts of "getting drunk and getting laid". Rory dies at the film's end, but his mission has been accomplished: his friend with CP has successfully been taught self-determination, and carries on the legacy.
- One Flew Over the Cuckoo's Nest is a drama about the (mis)treatment of mental patients which was the second film to win all five main Academy Awards.
- The Cost of Living, by DV8 Physical Theatre, which is less a coherent plotline and more a loosely-gathered collection of scenes features dancer David Toole interacting with other dancers and having a close friendship with an able-bodied fellow artist.
- Helena Bonham Carter plays a woman with motor neurone disease in The Theory of Flight. The film deals with the sexuality of people with disabilities.
- The Australian film Dance Me to My Song, with similar themes to The Theory of Flight, was written by and stars Heather Rose, who herself has cerebral palsy.
- In Wait Until Dark, a blind woman (Audrey Hepburn) must fight criminals who break into her home. Hepburn was nominated for an Academy Award for Best Actress.
- In Snow Cake, Sigourney Weaver plays an autistic woman, and has said that she spent enormous amounts of time with a real-life autistic individual in order to totally immerse herself in this role.
- In The Horse Whisperer, teenager Grace (Scarlett Johansson) loses her lower right leg in a riding accident which also leaves her horse traumatised. The film portrays the physical and mental recovery of both horse and rider after her mother (Kristin Scott Thomas) drives them from New York to Montana to meet "horse whisperer" Robert Redford.
Spencer Tracy plays a handicapped war veteran in Bad Day at Black Rock. He steps off the train at the almost-deserted desert hamlet of Black Rock. It is the first time the train has stopped there in four years. The remaining inhabitants are unaccountably hostile, but Tracy proves that one good arm is all you need to win a fight.
Some visual media companies have a particular focus on issues involving disability. Some examples follow.
- Digital Theatre Systems - Surround sound and DTS-CSS or Cinema Subtitling System, captioning for film theatres
- Narrative Television Network in Tulsa, Oklahoma, adds audio description (delivered by television broadcast, cable, satellite, and the Internet) to an existing soundtrack.
- Roaring Girl Productions is a professional media company based in Bristol, UK, which creates fresh representations of disability in its productions. Founded in 1999 by artist-activist Liz Crow, RGP's work tours internationally and has set new standards of good practice for the inclusion of disabled people in film production and as audiences.
- Audio Description Associates creates audio description services for theatre, media, and visual arts exhibitions.
Adaptive technology is helping an increasing number of artists overcome challenges that would otherwise prevent them from fully exercising their creativity. Mobility impairments can be overcome with tools such as Wii Remote, which allows users to create digital graphics and digital paintings. Computer technology can also help artists with restricted vision.
The creative use of adaptive or assistive technology in media can also provide ways for the visually impaired to enjoy visual arts. Audio devices are made available to visitors at some museums, galleries, and other cultural institutions, to provide an informative narration for visitors, whether or not they have a visual impairment. Audio narration for theatre, film or television provides necessary description, added between dialogue, for visually-impaired audience members.
Conceptual art is also a way for disabled artists to engage in the arts, by using studio assistants to carry out the artist's creative vision. This is prevalent in current art practice, where several disabled artists have found success in this field.
A number of well-known visual artists have worked professionally despite the challenges of disability. Some include:
- Henri de Toulouse-Lautrec, who had restricted mobility in his legs, and became famous for his paintings of 19th-century French dancers.
- Frida Kahlo, an iconic Mexican feminist and painter, wore a body brace due to multiple severe body injuries, which she depicted in self-portraits.
- Claude Monet, French Impressionist painter, gradually lost much of his vision from cataracts. His vision was left restricted to a mainly blue colour range, so he used a predominantly blue palette in his later works, such as Water Lilies.
- Vincent van Gogh, Dutch post-Impressionist painter, probably had bipolar disorder. Symptoms of hallucinations and psychosis that he experienced may have influenced some of his experiments with visual style in his paintings.
- Al Capp, American cartoonist (L'il Abner), suffered a leg amputation at age nine, which was said to have influenced his sardonic humour.
- John Callahan, American cartoonist, began his career after becoming a quadriplegic in an accident at age 21.
- Chuck Close, American painter, paralyzed in 1988, a quadriplegic.
- Yinka Shonibare, MBE, British conceptual artist, diagnosed with Transverse Myelitis. Turner Prize nominee.
- Ryan Gander, British conceptual artist, a wheelchair user with a long term disability.
- Ketra Oberlander gradually lost much of her vision, including much of her colour perception (cone of the eye) and black and white perception (rod of the eye). She is now legally blind, although she retains a restricted degree of vision. In mid-life, she changed careers, becoming a professional artist. Oberlander is able to use computers to create digital graphics, and also paints in acrylics. She founded an art licensing company that helps mobility-impaired artists distribute their work.
- Riva Lehrer, an American artist with spina bifida, draws and paints largely from life.
- Angela de la Cruz, London-based Spanish artist, paralysed following a stroke at the age of 40 and uses a wheelchair, Turner Prize nominee.
- Beverly Wheeler Mastrim Award winning American Landscape artist suffering from legal blindness due to Macular Degeneration. Uses telemicroscopes to continue painting and sculpting.
Oral literature, the oldest form of literature, can be enjoyed by anyone, including the deaf or hearing-impaired (depending upon their ability to lip-read), and impaired verbal ability is the only impediment to storytelling. Homer, the ancient Greek author of the verse epics the Odyssey and the Iliad, is believed to have been blind. This disability was no barrier to the challenge of composing, and reciting for others, his classic creations, which contain over 15,000 lines (Iliad) and 12,000 lines (Odyssey). The Iliad itself is divided into 24 "books" that each take around one hour to recite. The tradition of oral storytelling, and the greater ease with which verse stories are memorized and retold, helped John Milton compose the 17th-century epic English poem Paradise Lost. Milton gradually lost most of his eyesight and dictated Paradise Lost to willing assistants who wrote it down for publication (a process called Amanuensis).
The shift in modern Western culture away from oral storytelling to the written and printed word has created a barrier for the visually-impaired. Writing and self-editing prose writing is often impossible without the use of assistive technology. Software developed for the visually-impaired, called screen readers, enable users to hear a voice reading the user's choice of digital printed material, such as e-books or Websites. Braille keyboards enable users to type and edit using a computer. Assistive technology is also available to help users with a learning disability, such as dyslexia, that impairs literacy, to read and write more easily using computers.
Literature that includes disability as a theme has become more common in recent decades. In non-fiction, memoirs have raised mainstream awareness of the experiences of people with disabilities. Notable recent first-person accounts include My Left Foot, written by painter and writer Christy Brown. First published in 1954, it describes his upbringing in Ireland, his challenges brought on by severe cerebral palsy, and his early career. It was made into a popular film in 1989, for which Daniel Day-Lewis won an Academy Award for Best Actor. American writer Jim Knipfel took a humorous, irreverent approach with Slackjaw (1999), a memoir in which he details his struggles in accepting the loss of his eyesight to retinitis pigmentosa.
The Ship Who Sang is a collection of stories by science fiction author Anne McCaffrey about the brainship Helva. In a far future, young children with severe physical handicaps can be placed in a life-support shell and specially trained for tasks that a "normal" human would be unable to undertake. McCaffrey, who has described The Ship Who Sang, an early work, as the best story she ever wrote, asked herself one day: "what if severely disabled people were given a chance to become starships?"
Accessibility of arts and cultural facilities and programs
Accessibility is one component of serving the public that arts organizations may overlook. Universal design provides a means of including audience members, or participants, with disabilities. Some of the accessibility factors that cultural facilities and arts organizations can take into account include:
- accessible seating integrated into the audience area;
- accessible production areas, such as the stage, backstage, and orchestra pit areas;
- audio description devices, film captioning, and even sign language interpreting;
- Signage indicating accessible entrances and elevators;
- Accessible height and design for displays, food services, and box office;
- Exhibition labels and printed materials can include braille.
- Visiting a trained low vision Optometrists specializing in the advanced optic techniques that can improve the remaining vision a person with advanced eye disease, Low vision doctors are trained to provide numerous techniques to help to the visually impaired a variety of optical,surgical and adaptive techniques to help one continue performing the field of art.
Adaptive or accessible technology is an innovative way of making traditional arts and cultural programs available to a larger audience that includes people with disabilities. For example, audio can be added to programs through live or pre-recorded captioning. Subtitling, audio description for broadcast programs, DVD and other home entertainment, and Internet projects, are some of the ways arts venues and groups can remove barriers faced by people with disabilities.
Accessibility organizations for the arts
There are many government initiatives that support the participation of people with disabilities in arts and cultural programs. Most U.S. state governments include an accessibility coordinator with their state arts agency or regional arts organization. There are a variety of non-governmental organizations (NGOs) and non-profit groups that support initiatives for inclusive arts and culture.
- Office for Accessibility at the National Endowment for the Arts
- Media Access Group at WGBH WGBH is the Public Television broadcaster for the Boston region. It has three divisions: the Caption Center, Descriptive Video Services (DVS), and the Carl and Ruth Shapiro Family National Center for Accessible Media (NCAM). WGBH pioneered accessible television and video in the United States.
- International Center on Deafness and the Arts provides education, training, and arts projects in areas such as theatre, arts festivals, museums, dance, distance learning, and children’s programming.
- Metropolitan Washington Ear is a non-profit organization founded in 1974 to develop projects that assist people with visual impairments. They have a program with Arena Stage in Washington, D.C., to advance audio description, a technique that uses trained narrators to provide descriptions of theatre or film action between lines of dialogue.
- Taping for the Blind provides free 24-hour radio programming, as well as custom recording, and audio description.
- National Captioning Institute is the largest captioning service provider in the United States, working with private broadcasters as well as colleges, corporations, and government agencies. It is a nonprofit corporation.
- Disability in children's literature
- Disability in the media
- Expressive therapy
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