Bioethics: Difference between revisions
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== Purpose and scope == |
== Purpose and scope == |
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The field of bioethics has addressed a broad swathe of human inquiry; ranging from debates over the boundaries of life (e.g. [[abortion]], [[euthanasia]]), surrogacy, the allocation of scarce health care resources (e.g. [[organ donation]], [[health care rationing]]), to the right to refuse medical care for religious or cultural reasons. |
The field of bioethics has addressed a broad swathe of human inquiry; ranging from debates over the boundaries of life (e.g. [[abortion]], [[euthanasia]]), surrogacy, the allocation of scarce health care resources (e.g. [[organ donation]], [[health care rationing]]), to the right to refuse medical care for religious or cultural reasons. Bioethicists often disagree among themselves over the precise limits of their discipline, debating whether the field should concern itself with the ethical evaluation of all questions involving biology and medicine, or only a subset of these questions.<ref>{{cite journal | vauthors = Bracanovic, T | title = From integrative bioethics to pseudoscience | journal = Developing World Bioethics | volume = 12 | issue = 3 | pages = 148–156 | date = June 2012 | pmid = 22708689 | doi = 10.1111/j.1471-8847.2012.00330.x }}</ref> Some bioethicists would narrow ethical evaluation only to the [[morality]] of medical treatments or [[technology|technological]] innovations, and the timing of medical treatment of humans. Others would broaden the scope of ethical evaluation to include the morality of all actions that might help or harm organisms capable of feeling fear. |
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The scope of bioethics has expanded beyond biotechnology, including [[cloning]], [[gene therapy]], [[life extension]], [[human genetic engineering]], astroethics and life in space,<ref>{{cite web |url=http://www.astroethics.com/ |title=Astroethics | publisher = Legacy Books | date = 2004 |access-date=21 December 2005 |url-status=live |archive-url=https://web.archive.org/web/20131023060209/http://www.astroethics.com/ |archive-date=23 October 2013 }}</ref><ref>{{Cite web| vauthors = Kaçar B |date=20 November 2020|title=If we're alone in the Universe, should we do anything about it?|url=https://aeon.co/essays/if-were-alone-in-the-universe-should-we-do-anything-about-it|access-date=11 December 2020|website=Aeon|language=en}}</ref> and manipulation of basic biology through altered DNA, [[Xeno nucleic acid|XNA]] and proteins.<ref>{{cite book | vauthors = Freemont PF, Kitney RI | year = 2012 | title = Synthetic Biology | publisher = World Scientific | location = New Jersey | isbn = 978-1-84816-862-6}}</ref> These developments |
The scope of bioethics has expanded beyond biotechnology, and while including topics such as [[cloning]], [[gene therapy]], [[life extension]], [[human genetic engineering]], it can also include astroethics and life in space,<ref>{{cite web |url=http://www.astroethics.com/ |title=Astroethics | publisher = Legacy Books | date = 2004 |access-date=21 December 2005 |url-status=live |archive-url=https://web.archive.org/web/20131023060209/http://www.astroethics.com/ |archive-date=23 October 2013 }}</ref><ref>{{Cite web| vauthors = Kaçar B |date=20 November 2020|title=If we're alone in the Universe, should we do anything about it?|url=https://aeon.co/essays/if-were-alone-in-the-universe-should-we-do-anything-about-it|access-date=11 December 2020|website=Aeon|language=en}}</ref> and manipulation of basic biology through altered DNA, [[Xeno nucleic acid|XNA]] and proteins.<ref>{{cite book | vauthors = Freemont PF, Kitney RI | year = 2012 | title = Synthetic Biology | publisher = World Scientific | location = New Jersey | isbn = 978-1-84816-862-6}}</ref> These (and other) developments may affect future evolution and require new principles that address life at its core, such as [[biotic ethics]] that values life itself at its basic biological processes and structures, and seeks their propagation.<ref name="Bioethics">{{cite journal | vauthors = Mautner MN | title = Life-centered ethics, and the human future in space | journal = Bioethics | volume = 23 | issue = 8 | pages = 433–440 | date = October 2009 | pmid = 19077128 | doi = 10.1111/j.1467-8519.2008.00688.x | s2cid = 25203457 | url = http://www.astro-ecology.com/PDFLifeCenteredBioethics2009Paper.pdf | archive-url = https://web.archive.org/web/20121102064743/http://www.astro-ecology.com/PDFLifeCenteredBioethics2009Paper.pdf | url-status = live | archive-date = 2 November 2012 }}</ref>. Moving beyond the biological, issues raised in public health such as [[vaccination]] and [[resource allocation]] have also encouraged the development of novel ethics frameworks to address such challenges. |
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Historian [[Yuval Noah Harari]] sees an existential threat in an arms race in artificial intelligence and [[Biological engineering|bioengineering]] and he expressed the need for close co-operation between nations to solve the threats by technological disruption. Harari said AI and biotechnology could destroy what it means to be human.<ref>{{Cite web| vauthors = Churm PA |date=14 May 2019|title=Yuval Noah Harari talks politics, technology and migration|url=https://www.euronews.com/2019/05/14/a-i-is-as-threatening-as-climate-change-and-nuclear-war-says-philosopher-yuval-noah-harari|access-date=12 December 2020|website=euronews|language=en}}</ref> |
Historian [[Yuval Noah Harari]] sees an existential threat in an arms race in artificial intelligence and [[Biological engineering|bioengineering]] and he expressed the need for close co-operation between nations to solve the threats by technological disruption. Harari said AI and biotechnology could destroy what it means to be human.<ref>{{Cite web| vauthors = Churm PA |date=14 May 2019|title=Yuval Noah Harari talks politics, technology and migration|url=https://www.euronews.com/2019/05/14/a-i-is-as-threatening-as-climate-change-and-nuclear-war-says-philosopher-yuval-noah-harari|access-date=12 December 2020|website=euronews|language=en}}</ref> |
Revision as of 17:20, 22 October 2022
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Bioethics is both a field of study and professional practice, interested in ethical issues related to health (primarily focus on the human, but also increasingly includes animal ethics, including those emerging from advances in biology, medicine and technologies. It proposes the discussion about moral discernment in society and it is often related to medical policy and practice, but also to broader questions as environment and well-being. Bioethics is concerned with the ethical questions that arise in the relationships among life sciences, biotechnology, medicine, politics, law, theology and philosophy. It includes the study of values relating to primary care, other branches of medicine ("the ethics of the ordinary"), ethical education in science, animal, and environmental ethics.
Etymology
The term Bioethics (Greek bios, life; ethos, behavior) was coined in 1927 by Fritz Jahr in an article about a "bioethical imperative" regarding the use of animals and plants in scientific research.[1] In 1970, the American biochemist Van Rensselaer Potter used the term to describe the relationship between the biosphere and a growing human population. Potter's work laid the foundation for global ethics, a discipline centered around the link between biology, ecology, medicine, and human values.[2][3] Sargent Shriver, the spouse of Eunice Kennedy Shriver, claimed that he had invented the word "bioethics" in the living room of his home in Bethesda, Maryland in 1970. He stated that he thought of the word after returning from a discussion earlier that evening at Georgetown University, where he discussed with others a possible Kennedy family sponsorship of an institute focused around the "application of moral philosophy to concrete medical dilemmas."[4]
Purpose and scope
The field of bioethics has addressed a broad swathe of human inquiry; ranging from debates over the boundaries of life (e.g. abortion, euthanasia), surrogacy, the allocation of scarce health care resources (e.g. organ donation, health care rationing), to the right to refuse medical care for religious or cultural reasons. Bioethicists often disagree among themselves over the precise limits of their discipline, debating whether the field should concern itself with the ethical evaluation of all questions involving biology and medicine, or only a subset of these questions.[5] Some bioethicists would narrow ethical evaluation only to the morality of medical treatments or technological innovations, and the timing of medical treatment of humans. Others would broaden the scope of ethical evaluation to include the morality of all actions that might help or harm organisms capable of feeling fear.
The scope of bioethics has expanded beyond biotechnology, and while including topics such as cloning, gene therapy, life extension, human genetic engineering, it can also include astroethics and life in space,[6][7] and manipulation of basic biology through altered DNA, XNA and proteins.[8] These (and other) developments may affect future evolution and require new principles that address life at its core, such as biotic ethics that values life itself at its basic biological processes and structures, and seeks their propagation.[9]. Moving beyond the biological, issues raised in public health such as vaccination and resource allocation have also encouraged the development of novel ethics frameworks to address such challenges.
Historian Yuval Noah Harari sees an existential threat in an arms race in artificial intelligence and bioengineering and he expressed the need for close co-operation between nations to solve the threats by technological disruption. Harari said AI and biotechnology could destroy what it means to be human.[10]
Professional practice
Bioethics as a field of professional practice (although not a formal profession) developed initially in North America in the 1980s-90s, in the areas of clinical / medical ethics and research ethics. Slowly internationalizing as a field, since the 2000s professional bioethics has expanded to include other specialties, such as organizational ethics in health systems, public health ethics, and more recently Ethics of artificial intelligence. Professional ethicists may be called consultants, ethicists, coordinators, or even analysts; and they may work in healthcare organizations, government agencies, and in both the public and private sectors. They may be full-time employees, independent consultants, or have cross-appointments with academic institutions, such as research centres or universities.[11]
Principles
One of the first areas addressed by modern bioethicists was that of human experimentation. The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research was initially established in 1974 to identify the basic ethical principles that should underlie the conduct of biomedical and behavioral research involving human subjects. However, the fundamental principles announced in the Belmont Report (1979)—namely, respect for persons, beneficence and justice—have influenced the thinking of bioethicists across a wide range of issues. Others have added non-maleficence, human dignity, and the sanctity of life to this list of cardinal values. Overall, the Belmont Report has guided research in a direction focused on protecting vulnerable subjects as well as pushing for transparency between the researcher and the subject. Research has flourished within the past 40 years and due to the advance in technology, it is thought that human subjects have outgrown the Belmont Report, and the need for revision is desired.[12]
Another important principle of bioethics is its placement of value on discussion and presentation. Numerous discussion based bioethics groups exist in universities across the United States to champion exactly such goals. Examples include the Ohio State Bioethics Society[13] and the Bioethics Society of Cornell.[14] Professional level versions of these organizations also exist.
Many bioethicists, especially medical scholars, accord the highest priority to autonomy. They believe that each patient should determine which course of action they consider most in line with their beliefs. In other words, the patient should always have the freedom to choose their own treatment .[15]
Medical ethics
Ethics affects medical decisions made by healthcare providers and patients.[16] Medical ethics is the study of moral values and judgments as they apply to medicine. The four main moral commitments are respect for autonomy, beneficence, nonmaleficence, and justice. Using these four principles and thinking about what the physicians' specific concern is for their scope of practice can help physicians make moral decisions.[17] As a scholarly discipline, medical ethics encompasses its practical application in clinical settings as well as work on its history, philosophy, theology, and sociology.
Medical ethics tends to be understood narrowly as applied professional ethics; whereas bioethics has a more expansive application, touching upon the philosophy of science and issues of biotechnology. The two fields often overlap, and the distinction is more so a matter of style than professional consensus. Medical ethics shares many principles with other branches of healthcare ethics, such as nursing ethics. A bioethicist assists the health care and research community in examining moral issues involved in our understanding of life and death, and resolving ethical dilemmas in medicine and science. Examples of this would be the topic of equality in medicine, the intersection of cultural practices and medical care, ethical distribution of healthcare resources in pandemics,[citation needed] and issues of bioterrorism.[18]
Medical sociology
The practice of bioethics in clinical care have been studied by medical sociology.[19] Many scholars consider that bioethics arose in response to a perceived lack of accountability in medical care in the 1970s.[20]: 2 Studying the clinical practice of ethics in medical care, Hauschildt and Vries found that ethical questions were often reframed as clinical judgments to allow clinicians to make decisions. Ethicists most often put key decisions in the hands of physicians rather than patients.[20]: 14
Communication strategies suggested by ethicists act to decrease patient autonomy. Examples include, clinicians discussing treatment options with one another prior to talking to patients or their family to present a united front limited patient autonomy, hiding uncertainty amongst clinicians. Decisions about overarching goals of treatment were reframed as technical matters excluding patients and their families. Palliative care experts were used as intermediaries to guide patients towards less invasive end-of-live treatment.[20]: 11 In their study, Hauschild and Vries found that 76% of ethical consultants were trained as clinicians.[20]: 12
Studying informed consent, Corrigan found that some social processes resulted in limitations to patients choice, but also at times patients could find questions regarding consent to medical trials burdensome.[21]
Perspectives and methodology
Bioethicists come from a wide variety of backgrounds and have training in a diverse array of disciplines. The field contains individuals trained in philosophy such as Baruch Brody of Rice University, Arthur Caplan of NYU, Peter Singer of Princeton University, Daniel Callahan of the Hastings Center, and Daniel Brock of Harvard University; medically trained clinician ethicists such as Mark Siegler of the University of Chicago and Joseph Fins of Cornell University; lawyers such as Nancy Dubler of Albert Einstein College of Medicine or Jerry Menikoff of the federal Office for Human Research Protections; political scientists like Francis Fukuyama; religious studies scholars including James Childress; and theologians like Lisa Sowle Cahill and Stanley Hauerwas. The field, formerly dominated by formally trained philosophers, has become increasingly interdisciplinary, with some critics even claiming that the methods of analytic philosophy have harmed the field's development. Leading journals in the field include The Journal of Medicine and Philosophy, the Hastings Center Report, the American Journal of Bioethics, the Journal of Medical Ethics, Bioethics, the Kennedy Institute of Ethics Journal and the Cambridge Quarterly of Healthcare Ethics. Bioethics has also benefited from the process philosophy developed by Alfred North Whitehead.[22][23]
Another discipline that discusses bioethics is the field of feminism; the International Journal of Feminist Approaches to Bioethics has played an important role in organizing and legitimizing feminist work in bioethics.[24]
Many religious communities have their histories of inquiry into bioethical issues and have developed rules and guidelines on how to deal with these issues from within the viewpoint of their respective faiths. The Jewish, Christian and Muslim faiths have each developed a considerable body of literature on these matters.[25] In the case of many non-Western cultures, a strict separation of religion from philosophy does not exist. In many Asian cultures, for example, there is a lively discussion on bioethical issues. Buddhist bioethics, in general, is characterized by a naturalistic outlook that leads to a rationalistic, pragmatic approach. Buddhist bioethicists include Damien Keown. In India, Vandana Shiva is a leading bioethicist speaking from the Hindu tradition.
In Africa, and partly also in Latin America, the debate on bioethics frequently focuses on its practical relevance in the context of underdevelopment and geopolitical power relations.[26] In Africa, their bioethical approach is influenced by and similar to Western bioethics due to the colonization of many African countries.[27] Some African bioethicists are calling for a shift in bioethics that utilizes indigenous African philosophy rather than western philosophy. Some African bioethicists also believe that Africans will be more likely to accept a bioethical approach grounded in their own culture, as well as empower African people.[27][vague]
Masahiro Morioka argues that in Japan the bioethics movement was first launched by disability activists and feminists in the early 1970s, while academic bioethics began in the mid-1980s. During this period, unique philosophical discussions on brain death and disability appeared both in the academy and journalism.[28] In Chinese culture and bioethics, there is not as much of an emphasis on autonomy as opposed to the heavy emphasis placed on autonomy in Western bioethics. Community, social values, and family are all heavily valued in Chinese culture, and contribute to the lack of emphasis on autonomy in Chinese bioethics. The Chinese believe that the family, community, and individual are all interdependent of each other, so it is common for the family unit to collectively make decisions regarding healthcare and medical decisions for a loved one, instead of an individual making an independent decision for his or her self.[29]
Some argue that spirituality and understanding one another as spiritual beings and moral agents is an important aspect of bioethics and that spirituality and bioethics are heavily intertwined with one another. As a healthcare provider, it is important to know and understand varying world views and religious beliefs. Having this knowledge and understanding can empower healthcare providers with the ability to better treat and serve their patients. Developing a connection and understanding of a patient's moral agent helps enhance the care provided to the patient. Without this connection or understanding, patients can be at risk of becoming "faceless units of work" and being looked at as a "set of medical conditions" as opposed to the storied and spiritual beings that they are.[30]
Islamic bioethics
Bioethics in the realm of Islam differs from Western bioethics, but they share some similar perspectives viewpoints as well. Western bioethics is focused on rights, especially individual rights. Islamic bioethics focuses more on religious duties and obligations, such as seeking treatment and preserving life.[31] Islamic bioethics is heavily influenced and connected to the teachings of the Qur'an as well as the teachings of Prophet Muhammad. These influences essentially make it an extension of Shariah or Islamic Law. In Islamic bioethics, passages from the Qur'an are often used to validate various medical practices. For example, a passage from the Qur'an states "whosoever killeth a human being … it shall be as if he had killed all humankind, and whosoever saveth the life of one, it shall be as if he saved the life of all humankind." This excerpt can be used to encourage using medicine and medical practices to save lives, but can also be looked at as a protest against euthanasia and assisted suicide. A high value and worth are placed on human life in Islam, and in turn, human life is deeply valued in the practice of Islamic bioethics as well. Muslims believe all human life, even one of poor quality, needs to be given appreciation and must be cared for and conserved.[32]
To react to new technological and medical advancements, informed Islamic jurists regularly will hold conferences to discuss new bioethical issues and come to an agreement on where they stand on the issue from an Islamic perspective. This allows Islamic bioethics to stay pliable and responsive to new advancements in medicine.[33] The standpoints taken by Islamic jurists on bioethical issues are not always unanimous decisions and at times may differ. There is much diversity among Muslims varying from country to country, and the different degrees to which they adhere by Shariah.[34] Differences and disagreements in regards to jurisprudence, theology, and ethics between the two main branches of Islam, Sunni, and Shia, lead to differences in the methods and ways in which Islamic bioethics is practiced throughout the Islamic world.[35] An area where there is a lack of consensus is brain death. The Organization of Islamic Conferences Islamic Fiqh Academy (OIC-IFA) holds the view that brain death is equivalent to cardiopulmonary death, and acknowledges brain death in an individual as the individual being deceased. On the contrary, the Islamic Organization of Medical Sciences (IOMS) states that brain death is an "intermediate state between life and death" and does not acknowledge a brain dead individual as being deceased.[36]
Islamic bioethicists look to the Qur'an and religious leaders regarding their outlook on reproduction and abortion. It is firmly believed that the reproduction of a human child can only be proper and legitimate via marriage. This does not mean that a child can only be reproduced via sexual intercourse between a married couple, but that the only proper and legitimate way to have a child is when it is an act between husband and wife. It is okay for a married couple to have a child artificially and from techniques using modern biotechnology as opposed to sexual intercourse, but to do this out of the context of marriage would be deemed immoral.
Islamic bioethics is strongly against abortion and strictly prohibits it. The IOMS states that "from the moment a zygote settles inside a woman's body, it deserves a unanimously recognized degree of respect." Abortion may only be permitted in unique situations where it is considered to be the "lesser evil."[36]
Christian bioethics
In Christian bioethics it is noted that the Bible, especially the New Testament, teaches about healing by faith. Healing in the Bible is often associated with the ministry of specific individuals including Elijah, Jesus and Paul.[37] The largest group of miracles mentioned in the New Testament involves cures, the Gospels give varying amounts of detail for each episode, sometimes Jesus cures simply by saying a few words, at other times, he employs material such as spit and mud.[38][39]
Christian physician Reginald B. Cherry views faith healing as a pathway of healing in which God uses both the natural and the supernatural to heal.[40] Being healed has been described as a privilege of accepting Christ's redemption on the cross.[41] Pentecostal writer Wilfred Graves Jr. views the healing of the body as a physical expression of salvation.[42] Matthew 8:17, after describing Jesus exorcising at sunset and healing all of the sick who were brought to him, quotes these miracles as a fulfillment of the prophecy in Isaiah 53:5: "He took up our infirmities and carried our diseases".
Jesus endorsed the use of the medical assistance of the time (medicines of oil and wine) when he told the parable of the Good Samaritan (Luke 10:25–37), who "bound up [an injured man's] wounds, pouring on oil and wine" (verse 34) as a physician would. Jesus then told the doubting teacher of the law (who had elicited this parable by his self-justifying question, "And who is my neighbor?" in verse 29) to "go, and do likewise" in loving others with whom he would never ordinarily associate (verse 37).[43]
The principle of the sacredness of human life is at the basis of Catholic bioethics.[44] On the subject of abortion, for example, Catholics and Orthodox are on very similar positions. Catholic bioethics insists on this concept,[44] without exception, while Anglicans, Waldensians and Lutherans have positions closer to secular ones, for example with regard to the end of life.[45][46]
In 1936, Ludwig Bieler argued that Jesus was stylized in the New Testament in the image of the "divine man" (Greek: theios aner), which was widespread in antiquity. It is said that many of the famous rulers and elders of the time had divine healing powers.[47]
Feminist bioethics
Feminist bioethics critiques the fields of bioethics and medicine for its lack of inclusion of women's and other marginalized group's perspectives.[24] This lack of perspective from women is thought to create power imbalances that favor men.[48] These power imbalances are theorized to be created from the androcentric nature of medicine.[48] One example of a lack of consideration of women is in clinical drug trials that exclude women due to hormonal fluctuations and possible future birth defects.[49] This has led to a gap in the research on how pharmaceuticals can affect women.[49] Feminist bioethicists call for the necessity of feminist approaches to bioethics because the lack of diverse perspectives in bioethics and medicine can cause preventable harm to already vulnerable groups.[24]
This study first gained prevalence in the field of reproductive medicine as it was viewed as a "woman's issue".[48] Since then, feminist approaches to bioethics has expanded to include bioethical topics in mental health, disability advocacy, healthcare accessibility, and pharmaceuticals.[48] Lindemann notes the need for the future agenda of feminist approaches to bioethics to expand further to include healthcare organizational ethics, genetics, stem cell research, and more.[48]
Notable figures in feminist bioethics include Carol Gilligan, Susan Sherwin, and the creators of the International Journal of Feminist Approaches to Bioethics, Mary C. Rawlinson and Anne Donchin. Sherwin's book No Longer Patient: Feminist Ethics in Health Care (1992) is credited with being one of the first full-length books published on the topic of feminist bioethics and points out the shortcomings in then-current bioethical theories.[24] Sherwin's viewpoint incorporates models of oppression within healthcare that intend to further marginalize women, people of color, immigrants, and people with disabilities.[50] Since created in 1992, the International Journal of Feminist Approaches to Bioethics has done much work to legitimize feminist work and theory in bioethics.[24]
Ethical issues in gene therapy
Gene therapy involves ethics, because scientists are making changes to genes, the building blocks of the human body.[16] Currently, therapeutic gene therapy is available to treat specific genetic disorders by editing cells in specific body parts. For example, gene therapy can treat hematopoietic disease.[51] There is also a controversial gene therapy called "germline gene therapy", in which genes in a sperm or egg can be edited to prevent genetic disorder in the future generation. It is unknown how this type of gene therapy affects long-term human development. In the United States, federal funding cannot be used to research germline gene therapy.[16]
Education
Bioethics is taught in courses at the undergraduate and graduate level in different academic disciplines or programs, such as Philosophy, Medicine, Law, Social Sciences. It has become a requirement for professional accreditation in many health professional programs (Medicine, Nursing, Rehabilitation), to have obligatory training in ethics (e.g., professional ethics, medical ethics, clinical ethics, nursing ethics). Interest in the field and professional opportunities[52] have led to the development of dedicated programs with concentrations in Bioethics, largely in the United States[53] and Europe, offering undergraduate majors/minors, graduate certificates, and master's and doctoral degrees. Every medical school in Canada teaches bioethics so that students can gain an understanding of biomedical ethics and use the knowledge gained in their future careers to provide better patient care. Canadian residency training programs are required to teach bioethics as it is one of the conditions of accreditation, and is a requirement by the College of Family Physicians of Canada and by the Royal College of Physicians and Surgeons of Canada.[54]
Criticism
As a study, bioethics has also drawn criticism. For instance, Paul Farmer noted that bioethics tends to focus its attention on problems that arise from "too much care" for patients in industrialized nations while giving little or no attention to the ethical problem of too little care for the poor.[55]: 196–212 Farmer characterizes the bioethics of handling morally difficult clinical situations, normally in hospitals in industrialized countries, as "quandary ethics".[55]: 205 He does not regard quandary ethics and clinical bioethics as unimportant; he argues, rather, that bioethics must be balanced and give due weight to the poor.
Additionally, bioethics has been condemned for its lack of diversity in thought, particularly concerning race. Even as the field has grown to include the areas of public opinion, policymaking, and medical decision-making, little to no academic writing has been authored concerning the intersection between race–especially the cultural values imbued in that construct–and bioethical literature. John Hoberman illustrates this in a 2016 critique, in which he points out that bioethicists have been traditionally resistant to expanding their discourse to include sociological and historically relevant applications.[56] Central to this is the notion of white normativity, which establishes the dominance of white hegemonic structures in bioethical academia[57] and tends to reinforce existing biases.
These points and critiques, along with the neglect of women's perspectives within bioethics, have also been discussed amongst feminist bioethical scholars.[24]
Issues
Areas of bioethics research that are the subject of published, peer-reviewed bioethical analysis include:
- Abortion
- Alternative Medicine
- Animal rights
- Applied ethics
- Artificial insemination
- Artificial life
- Artificial womb
- Assisted suicide
- Biocentrism
- Biological agent
- Biological patent
- Biopiracy
- Biorisk
- Biotic ethics
- Blood transfusion
- Body modification
- Brain–computer interface
- Chimeras
- Circumcision
- Cloning
- Cognitive liberty
- Confidentiality (medical records)
- Conflict of interest in the healthcare industry
- Consent
- Contraception (birth control)
- Cryonics
- Disability
- End-of-life care
- Eugenics
- Euthanasia (human, non-human animal)
- Exorcism
- Faith healing
- Feeding tube
- Gain-of-function research
- Gene theft
- Gene therapy
- Genetic testing
- Genetically modified food
- Genetically modified organism
- Genomics
- Great Ape Project
- HeLa cells
- Human cloning
- Human enhancement
- Human experimentation in the United States
- Human genetic engineering
- Iatrogenesis
- Infertility treatments
- Intersex
- Life extension
- Life support
- Lobotomy
- Medicalization
- Medical malpractice
- Medical research
- Medical torture
- Mediation
- Mitochondrial donation
- Moral obligation
- Moral status of animals
- Nanomedicine
- Neuroethics
- Neuroenhancement
- Nazi human experimentation
- Ordinary and extraordinary care
- Overtreatment
- Organ donation
- Organ transplant
- Pain management
- Parthenogenesis
- Patients' Bill of Rights
- Placebo
- Pharmacogenetics
- Political abuse of psychiatry
- Population control
- Prescription drug prices in the United States
- Procreative beneficence
- Professional ethics
- Psychosurgery
- Quality of Life (Healthcare)
- Quaternary prevention
- Recreational drug use
- Reproductive rights
- Reproductive technology
- Reprogenetics
- Research ethics
- Resource allocation
- Sex reassignment therapy
- Sperm and egg donation
- Spiritual drug use
- Stem cell research
- Sterilization (medicine)
- Suicide
- Surrogacy
- Transsexuality
- Transhumanism
- Transplant trade
- Triage
- Tubal ligation
- Vaccination controversy
- Xenotransfusion
- Xenotransplantation
See also
- List of bioethics journals
- List of Canadian bioethics programs
- Biotechnology risk
- Cytoplasmic transfer
- The Hastings Center
- Johns Hopkins Berman Institute of Bioethics
- Medical law
- Neuroethics
- Preimplantation genetic diagnosis
- Resources for clinical ethics consultation
- The Convention on Human Rights and Biomedicine
References
- ^ Sass HM (2007). "Fritz Jahr's 1927 concept of bioethics". Kennedy Institute of Ethics Journal. 17 (4): 279–295. doi:10.1353/ken.2008.0006. PMID 18363267. S2CID 21957991.
- ^ Lolas F (2008). "Bioethics and animal research: a personal perspective and a note on the contribution of Fritz Jahr". Biological Research. 41 (1): 119–123. doi:10.4067/S0716-97602008000100013. PMC 2997650. PMID 18769769.
- ^ Goldim JR (2009). "Revisiting the beginning of bioethics: the contribution of Fritz Jahr (1927)". Perspectives in Biology and Medicine. 52 (3): 377–380. doi:10.1353/pbm.0.0094. PMID 19684372. S2CID 41451993.
- ^ Martensen R (April 2001). "The history of bioethics: an essay review". Journal of the History of Medicine and Allied Sciences. 56 (2): 168–175. doi:10.1093/jhmas/56.2.168. PMID 11392084.
- ^ Bracanovic, T (June 2012). "From integrative bioethics to pseudoscience". Developing World Bioethics. 12 (3): 148–156. doi:10.1111/j.1471-8847.2012.00330.x. PMID 22708689.
- ^ "Astroethics". Legacy Books. 2004. Archived from the original on 23 October 2013. Retrieved 21 December 2005.
- ^ Kaçar B (20 November 2020). "If we're alone in the Universe, should we do anything about it?". Aeon. Retrieved 11 December 2020.
- ^ Freemont PF, Kitney RI (2012). Synthetic Biology. New Jersey: World Scientific. ISBN 978-1-84816-862-6.
- ^ Mautner MN (October 2009). "Life-centered ethics, and the human future in space" (PDF). Bioethics. 23 (8): 433–440. doi:10.1111/j.1467-8519.2008.00688.x. PMID 19077128. S2CID 25203457. Archived (PDF) from the original on 2 November 2012.
- ^ Churm PA (14 May 2019). "Yuval Noah Harari talks politics, technology and migration". euronews. Retrieved 12 December 2020.
- ^ "Jobs". Bioethics Today. AJOB Bioethics Today. Retrieved 22 October 2022.
- ^ Friesen P, Kearns L, Redman B, Caplan AL (July 2017). "Rethinking the Belmont Report?". The American Journal of Bioethics. 17 (7): 15–21. doi:10.1080/15265161.2017.1329482. PMID 28661753. S2CID 5659722.
- ^ "The Bioethics Society of Ohio State". Thebioethicssociety.org.ohio-state.edu. Archived from the original on 13 June 2013. Retrieved 17 September 2013.
- ^ "Bioethics Society of Cornell". Cornell University. Archived from the original on 17 June 2012.
- ^ Entwistle VA, Carter SM, Cribb A, McCaffery K (July 2010). "Supporting patient autonomy: the importance of clinician-patient relationships" (PDF). Journal of General Internal Medicine. 25 (7): 741–745. doi:10.1007/s11606-010-1292-2. PMC 2881979. PMID 20213206.
- ^ a b c "Medical Ethics". medlineplus.gov. Retrieved 6 May 2019.
- ^ Gillon R (July 1994). "Medical ethics: four principles plus attention to scope". BMJ. 309 (6948): 184–188. doi:10.1136/bmj.309.6948.184. PMC 2540719. PMID 8044100.
- ^ Horne LC (October 2016). "Medical Need, Equality, and Uncertainty". Bioethics. 30 (8): 588–96. doi:10.1111/bioe.12257. PMID 27196999. S2CID 23682804.
- ^ Orfali K, de Vries R (2021). "Bioethics". The Wiley Blackwell Companion to Medical Sociology. John Wiley & Sons, Ltd. pp. 82–101. doi:10.1002/9781119633808.ch5. ISBN 978-1119633808. S2CID 241369995.
- ^ a b c d Hauschildt K, De Vries R (February 2020). "Reinforcing medical authority: clinical ethics consultation and the resolution of conflicts in treatment decisions". Sociology of Health & Illness. 42 (2): 307–326. doi:10.1111/1467-9566.13003. PMC 7012693. PMID 31565808.
- ^ Corrigan O (2003). "Empty ethics: the problem with informed consent". Sociology of Health & Illness. 25 (7): 768–792. doi:10.1046/j.1467-9566.2003.00369.x. PMID 19780205.
- ^ Weber M, Desmond W, eds. (2008). Handbook of Whiteheadian process thought. Frankfurt: Ontos Verlag. ISBN 978-3938793923.
- ^ Desmet R, Weber M, eds. (July 2010). Whitehead-The Algebra of Metaphysics (Les éditions Chromatika ed.). Archived from the original on 27 July 2017.
- ^ a b c d e f Donchin A (2008). "Remembering Fab's Past, Anticipating Our Future". International Journal of Feminist Approaches to Bioethics. 1 (1): 145–160. ISSN 1937-4585. JSTOR 40339216.
- ^ As regards the Christian Orthodox perspective see e.g. Constantine B. Scouteris, Bioethics in the light of orthodox anthropology, Polytechnic School of Crete (ed), First International Conference: Christian Anthropology and Biotechnological Progress (Financially Supported by CTNS, U.S.A.), Orthodox Academy of Crete, 26–29 September 2002, pp. 75–81.
- ^ Bobyrov VM, Vazhnicha OM, Devyatkina TO (2012). Basics of Bioethics and Safety. Nova Knyha. ISBN 978-9663824079.
- ^ a b Behrens KG (2013). "Towards an Indigenous African Bioethics". South African Journal of Bioethics and Law. 6: 30. doi:10.7196/sajbl.255.
- ^ Morioka M (July 2015). "Feminism, Disability, and Brain Death: Alternative Voices from Japanese Bioethics". Journal of Philosophy of Life. 5 (1): 19–41.
- ^ Bowman KW, Hui EC (November 2000). "Bioethics for clinicians: 20. Chinese bioethics". CMAJ. 163 (11): 1481–1485. PMC 80420. PMID 11192658.
- ^ Muldoon M, King N (1995). "Spirituality, health care, and bioethics". Journal of Religion and Health. 34 (4): 329–349. doi:10.1007/BF02248742. PMID 11660133. S2CID 2483306.
- ^ Chamsi-Pasha H, Albar MA (January 2013). "Western and Islamic bioethics: How close is the gap?". Avicenna Journal of Medicine. 3 (1): 8–14. doi:10.4103/2231-0770.112788. PMC 3752859. PMID 23984261.
{{cite journal}}
: CS1 maint: unflagged free DOI (link) - ^ Shomali MA (2008). "Islamic bioethics: a general scheme". Journal of Medical Ethics and History of Medicine. 1: 1. PMC 3713653. PMID 23908711.
- ^ Daar AS, al Khitamy AB (January 2001). "Bioethics for clinicians: 21. Islamic bioethics". CMAJ. 164 (1): 60–63. PMC 80636. PMID 11202669.
Whosoever killeth a human being … it shall be as if he had killed all humankind, and whosoever saveth the life of one, it shall be as if he saved the life of all humankind.
- ^ Bagheri A (December 2014). "Priority Setting in Islamic Bioethics: Top 10 Bioethical Challenges in Islamic Countries". Asian Bioethics Review. 6 (4): 391–401. doi:10.1353/asb.2014.0031. S2CID 144977787.
- ^ Aramesh K (December 2009). "Iran's Experience on Religious Bioethics: An Overview". Asian Bioethics Review. 1: 318–328.
- ^ a b Padela AI, Arozullah A, Moosa E (March 2013). "Brain death in Islamic ethico-legal deliberation: challenges for applied Islamic bioethics". Bioethics. 27 (3): 132–139. doi:10.1111/j.1467-8519.2011.01935.x. PMID 22150919. S2CID 15869323.
- ^ Village, Andrew (1 June 2005). "Dimensions of belief about miraculous healing". Mental Health, Religion & Culture. 8 (2): 97–107. doi:10.1080/1367467042000240374. ISSN 1367-4676. S2CID 15727398.
- ^ Twelftree (1999) p. 263
- ^ H. Van der Loos, 1965 The Miracles of Jesus, E.J. Brill Press, Netherlands.
- ^ Cherry, Reginald B. (1999) [1998]. The Bible Cure (reprint ed.). HarperOne. ISBN 9780062516152.[page needed] Citing: John 9:1–7 and Mark 10:46–52.
- ^ Bosworth 2001, p. 32.
- ^ Graves, Wilfred Jr. (2011). In Pursuit of Wholeness: Experiencing God's Salvation for the Total Person. Shippensburg, PA: Destiny Image. p. 52. ISBN 9780768437942.
- ^ Booth, Craig W. (16 December 2003). "Faith Healing – God's Compassion, God's Power, and God's Sovereignty: Is a Christian permitted to seek medical assistance and to use medicine?". thefaithfulword.org. Retrieved 1 May 2007.
- ^ a b "Abortion and Catholic Thought: The Little-Told History" Archived 18 February 2012 at the Wayback Machine
- ^ When Children Became People: the birth of childhood in early Christianity by Odd Magne Bakke
- ^ Abortion and the Politics of Motherhood by Kristin Luker, University of California Press
- ^ ST. PATRICK, SAINT & SECUNDINUS (1 January 1953). The Works of St. Patrick. St. Secundus: Hymn on St. Patrick. Translated and Annotated by Ludwig Bieler. Newman Press.
- ^ a b c d e Nelson HL (2000). "Feminist Bioethics: Where We've Been, Where We're Going". Metaphilosophy. 31 (5): 492–508. doi:10.1111/1467-9973.00165. ISSN 0026-1068. JSTOR 24439396.
- ^ a b "History of Women's Participation in Clinical Research | Office of Research on Women's Health". orwh.od.nih.gov. Retrieved 12 November 2020.
- ^ Taylor AT (1 July 1993). "No Longer Patient: Feminist Ethics and Health Care". American Journal of Health-System Pharmacy. 50 (7): 1510–1513. doi:10.1093/ajhp/50.7.1510a. ISSN 1079-2082.
- ^ Kohn DB, Porteus MH, Scharenberg AM (May 2016). "Ethical and regulatory aspects of genome editing". Blood. 127 (21): 2553–2560. doi:10.1182/blood-2016-01-678136. PMID 27053531.
- ^ "Bioethics Grows, But Will Jobs Follow?". MD Magazine. Retrieved 1 July 2018.
- ^ Lee K (2016). "An Overview of Graduate Educational Bioethics Programs in the United States" (PDF). BCM. Retrieved 1 July 2018.
- ^ McKneally MF, Singer PA (April 2001). "Bioethics for clinicians: 25. Teaching bioethics in the clinical setting". Canadian Medical Association Journal. 164 (8): 1163–1167. PMC 80975. PMID 11338804.
- ^ a b Farmer P (2004). Pathologies of Power. University of California Press. doi:10.1525/9780520931473. ISBN 978-0520931473. S2CID 242296634.
- ^ Hoberman J (2016). "Why Bioethics Has a Race Problem". The Hastings Center Report. 46 (2): 12–18. doi:10.1002/hast.542. PMID 27120279.
- ^ Karsjens KL, Johnson JM (2003). "White normativity and subsequent critical race deconstruction of bioethics". The American Journal of Bioethics. 3 (2): 22–23. doi:10.1162/152651603766436144. PMID 12859809. S2CID 9386244.
Further reading
- Bosworth, Fred (2001). Christ the Healer. Revell. ISBN 0-8007-5739-4.
- Fry-Revere, Sigrid (2008). "Bioethics". In Hamowy, Ronald (ed.). The Encyclopedia of Libertarianism. Thousand Oaks, CA: Sage; Cato Institute. pp. 33–35. doi:10.4135/9781412965811.n21. ISBN 978-1412965804. LCCN 2008009151. OCLC 750831024.
External links
- Bioethics entry in the Internet Encyclopedia of Philosophy.
- « What's bioethics ? »
- "Feminist Bioethics" at the Stanford Encyclopedia of Philosophy